
CF STORM
@cfstormstudy
Working with the CF community to find out if we can reduce long term nebulised treatments once people with cystic fibrosis are established on triple therapy.
ID: 1511723198882226178
https://www.cfstorm.org.uk/ 06-04-2022 15:13:13
67 Tweet
247 Followers
63 Following

Did you know that the name for the CF STORM came from a member of the CF community? Can you work it out? If you would like more information about the study please speak to your clinical team or visit: cfstorm.org.uk #cysticfibrosis Liverpool Clinical Trials Centre (LCTC) Cystic Fibrosis Trust


Could you help us with the CF STORM? For more information, please visit cfstorm.org.uk or use the QR code on the poster below. Liverpool Clinical Trials Centre (LCTC) Cystic Fibrosis Trust National Institute for Health and Care Research #cysticfibrosis




Thank you to the Cystic Fibrosis Trust for highlighting 'Five things about research to give us hope for the future' and for giving CF STORM a mention! We could not carry out this trial without the unwavering support of the Cystic Fibrosis Trust and the brilliant team at the CF Registry. Liverpool Clinical Trials Centre (LCTC)

Thank you to Dr Ross Langley and his team at Royal Hospital for Children, Glasgow for randomising CF STORM participant 350! Liverpool Clinical Trials Centre (LCTC) Louise Thomson @AnnieMayAvenue


Congratulations to Dr Pasteur and his team at Norfolk and Norwich University Hopsital for recruiting their first two patients to CF STORM Norfolk and Norwich University Hospitals Liverpool Clinical Trials Centre (LCTC) Cystic Fibrosis Trust National Institute for Health and Care Research #cysticfibrosis #TeamNNUH

📣400+ Recruits & Counting!📣Big thank-you to each and everyone of you taking part🩷Congratulations to all of our 38 amazing #NHS sites for reaching this milestone👏Special shout out to Heartlands University Hospitals Birmingham for recruiting the 400th participant Cystic Fibrosis Trust Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)

Did you know that we're now inviting 6-11 year olds to take part CF STORM?!? Please speak to your local CF team to find out more 💛 and visit cfstorm.org.uk #cysticfibrosis Liverpool Clinical Trials Centre (LCTC) Cystic Fibrosis Trust National Institute for Health and Care Research

Happy New Year CF STORM team! We welcomed 20 new participants onto the trial in December big shout out to all our peadiatric sites introducing the 6+years onto the trial 👏 Lets make January another big month 💛 Cystic Fibrosis Trust Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)

What a milestone! We are now 80%✨ of the way to reaching the #CFSTORM recruitment target💛! We have welcomed an amazing 28 recruits already into the trial this month👏! Liverpool Clinical Trials Centre (LCTC) Cystic Fibrosis Trust National Institute for Health and Care Research #cysticfibrosis

Only 99 patients left to recruit onto the study✨a BIG thank you👏 to all of the sites and people with CF involved in making this research possible!! We're almost there... Cystic Fibrosis Trust National Institute for Health and Care Research Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)

500 patients now recruited! Well done #KingsCollegeNHS for the 500th recruit🌟 almost there ... Cystic Fibrosis Trust National Institute for Health and Care Research Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)


✨1000✨ patients randomised into CF Registry based trials (CF START and CF STORM)! What an achievement and what a great resource the CF Registry is for our community CF START CF STORM Jay Ortiz Liverpool Clinical Trials Centre (LCTC) Gwyneth Davies #cysticfibrosis


Thank you for all your efforts towards recruitment for CF STORM. We are now on ✨528✨ We are holding a breakfast meeting at ECFS in Glasgow to discuss all things CF STORM. All CF STORM team members are welcome to join us. Cystic Fibrosis Trust Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)


CF STORM Breakfast meeting #ECFS2024 fantastic to see those faces behind the CF STORM trial!! #Glasgow #cfstrust Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)


Keep going 🤩, thanks so much to all the sites who helped us reach our recruitment target for April AND May! With two months left we are on track to reach our recruitment target at the end of next month🏆 #cfstrust Gwyneth Davies Liverpool Clinical Trials Centre (LCTC)

We are delighted to announce that we only have 20 participants left to recruit! ✨Can you help us reach our goal by the end of July so we can finally answer this important research question? CF STORM Jay Ortiz Liverpool Clinical Trials Centre (LCTC) Gwyneth Davies #cysticfibrosis

We did it🏅591 participants now in follow-up! Thank you SO much to everyone continuing to making the trial such a success!! CF STORM Jay Ortiz Liverpool Clinical Trials Centre (LCTC) Gwyneth Davies #cysticfibrosis