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Tomorrow we meet with Jennifer Carroll MacNeill TD to discuss the ongoing scandal facing children with scoliosis and/or spina bifida. 📍 Meeting at Department of Health 🕐 1:15pm 🧒🏽 Children continue to suffer due to unacceptable delays in care 🏥 Broken promises, endless waiting lists,

Parents of children with scoliosis and spina bifida give Health Minister Jennifer Carroll MacNeill two weeks to respond to demands | Irish Independent ⁦Spina Bifida & Hydrocephalus Paeds Advocacy#backus⁩ ⁦Úna Keightley⁩ ⁦Amanda Coughlan⁩ ⁦michelle long⁩ ⁦Claire Cahill⁩ independent.ie/irish-news/hea…

Yesterday we called for action from the Minister for Health on the catastrophic failures that continue to harm children with scoliosis/spina bifida. Jennifer Carroll MacNeill TD We presented four urgent asks: • Stand down the Board of CHI. • Expedite and deliver all outstanding reports.

Peter Chap Cleere TD The statements were to address Children's Health Ireland, not deflect onto kids in sport. This is my son in his 🇮🇪 swim hat. He’s 14, part of Paralympics Ireland preparing for Brisbane 2032. He gives blood, sweat & tears for 🇮🇪 & is being denied healthcare #SpinaBifida #Scoliosis

👂 Listened to the CHI statements yesterday. 🏥 The “transition of care” to the Mater Hospital was presented as a new and transformative action. Jennifer Carroll MacNeill TD ❌ But this was marked complete in the 2018 Scoliosis Action Plan. This is exactly why families have zero faith

Reflecting on the statements on Children's Health Ireland yesterday - this isn’t just about delays or poor communication as highlighted by Jennifer Carroll MacNeill TD. HIQA found poor governance, poor oversight, and confirmed that children were not protected from harm. The most urgent and

Young adults aged out of Children's Health Ireland and were “transferred” to Tallaght — then left to rot on waiting lists for years. ⏳ ❌ No care. No follow-up. No plan. Just forgotten. We’ve been contacted by multiple young adults who waited YEARS — only to receive a cold letter saying:

How many more damning reports are sitting unpublished? Children missed critical treatment windows while internal systems failed them. Families deserve transparency and accountability. Publish the full report now. Jennifer Carroll MacNeill TD Bernard Gloster Thank you John Mooney.

The pace of events involving Children's Health Ireland is truly astonishing. Given the run of events, it is difficult to see how CHI, in its current structure, can survive, writes Health Correspondent Fergal Bowers rte.ie/news/analysis-…

Three years ago today, our son turned 13 & was admitted to have his MAGEC rods removed/replaced. Today, he turns 16. Once again on a waiting list for #scoliosis surgery. Delays haven’t just defined his childhood they’ve defined his outcomes. It should never be this way. #EOS

4 mums that have given up years of their lives campaigning for 1000s of Children with Scoliosis, 100s of children with Spina Bifida and now 1000s of children that had hip surgery. People forget that those mums have their own battles to face. Heroes, is too small a word.

We’ve another big one on Children's Health Ireland tomorrow. CHI unit unaware how many seriously ill ‘orphans’ in its system thetimes.com/article/7109a7…

A full audit of the governance and practices of Children’s Health Ireland has been ordered by Jennifer Carroll MacNeill after an internal report found that a consultant financially exploited the state’s waiting list management system. -John Mooney “The audit aims to assess

🚨 “Failure to provide procedures went against best practice procedures & could result in infertility or cancer, the inquiry found” We call on Jennifer Carroll MacNeill TD to instruct the CHI Board to publish a redacted report in the public interest The Scoliosis Advocacy Network #BackUs #MedicalOrphans #backus

I need to speak to people inside Children's Health Ireland who are aware of its financial practices, management of waiting lists and HR issues. Please contact me in confidence. Reach me on Signal +353 89 975 3779 or [email protected]. Don't use a work comms. #PleaseRT #CHI

Gavan Reilly

If Jennifer Carroll MacNeill truly listened to parents, she’d call for an independent statutory inquiry. Jennifer Carroll MacNeill TD If a wait list audit is necessary, then so is a medical device audit. HPRA Families have reported serious concerns at Children's Health Ireland , including: –

Mick Caul The Sunday Times Ireland Children's Health Ireland

‘There is a continued withholding of information, claiming this to be a human resources report. The reality is very different,’ says one patients’ group about this report. Children’s Health Ireland won’t publish it. Here it is in full. ontheditch.com/heres-the-repo…

Consistently ourselves & The Scoliosis Advocacy Network #BackUs have advised that children are not prioritised on clinical need This "orphan" report categorically proves this It is true of scoliosis orthopaedic & urology services #backus in our call for a statutory inquiry into Children's Health Ireland