CML AdvocatesNetwork (@cmlnet) 's Twitter Profile
CML AdvocatesNetwork

@cmlnet

CML Advocates Network: Network of 128 chronic myeloid leukemia patient groups in 93 countries.
#CML #Leukemia #CureCML #PatientAdvocacy

ID: 236987449

linkhttp://www.cmladvocates.net calendar_today11-01-2011 20:38:41

7,7K Tweet

2,2K Followers

653 Following

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πŸ“’ Know someone living with CML? Help us reach more patients so we can gather powerful insights to improve treatment options. πŸ’‘ More participants = Stronger patient-driven research! Together, we can shape the future of CML care. πŸ”— Join now: survey.valorem.health/cmlan-ohe-scre… #CMLSupport

πŸ“’ Know someone living with CML?
Help us reach more patients so we can gather powerful insights to improve treatment options.
πŸ’‘ More participants = Stronger patient-driven research!
Together, we can shape the future of CML care.
πŸ”— Join now: survey.valorem.health/cmlan-ohe-scre…
#CMLSupport
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πŸ“’ If you or someone you know is living with CML, now is the time to have your say in shaping future treatments. πŸ’¬ This confidential survey takes just 20-30 minutes but could change CML care for years to come. πŸ”— Participate now: survey.valorem.health/cmlan-ohe-scre… #CMLAwareness

πŸ“’ If you or someone you know is living with CML, now is the time to have your say in shaping future treatments.
πŸ’¬ This confidential survey takes just 20-30 minutes but could change CML care for years to come.
πŸ”— Participate now: survey.valorem.health/cmlan-ohe-scre…
#CMLAwareness
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πŸ§ͺ Help Shape the Future of CML Treatment! Are you living with Ph+ Chronic Phase-CML? We want to hear from you! πŸ’¬ We are running a multi-country study to better understand what matters most to patients when it comes to treatment. If you are: βœ”οΈ 18+ years old βœ”οΈ Diagnosed with

πŸ§ͺ Help Shape the Future of CML Treatment!
Are you living with Ph+ Chronic Phase-CML? We want to hear from you! πŸ’¬

We are running a multi-country study to better understand what matters most to patients when it comes to treatment.

If you are:
βœ”οΈ 18+ years old
βœ”οΈ Diagnosed with
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πŸ“’ Help Shape the Future of CML Care! Your Voice Matters! We are conducting a multi-country study to understand what matters most to people living with chronic phase CML when choosing treatments. πŸ” How does it work? πŸ“Š Patients will complete a Discrete Choice Experiment (DCE),

πŸ“’ Help Shape the Future of CML Care! Your Voice Matters!
We are conducting a multi-country study to understand what matters most to people living with chronic phase CML when choosing treatments.
πŸ” How does it work?
πŸ“Š Patients will complete a Discrete Choice Experiment (DCE),
CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

πŸ” What matters most to you when it comes to CML treatment? Your voice can help shape the future of care! The CML Advocates Network is conducting a global study to better understand which treatment characteristics matter most to people living with CML. We are inviting CML

πŸ” What matters most to you when it comes to CML treatment?
Your voice can help shape the future of care!

The CML Advocates Network is conducting a global study to better understand which treatment characteristics matter most to people living with CML. We are inviting CML
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🧬 Do you have a diagnosis of Ph+ Chronic Phase-CML? Your voice matters β€” especially when it comes to side effects that impact your daily life. πŸ“£ We are conducting a global study to better understand what matters most to CML patients. We’re inviting you to take a 20–30 minute

🧬 Do you have a diagnosis of Ph+ Chronic Phase-CML?
Your voice matters β€” especially when it comes to side effects that impact your daily life.

πŸ“£ We are conducting a global study to better understand what matters most to CML patients. We’re inviting you to take a 20–30 minute
CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

πŸ“Š This study uses a Discrete Choice Experiment (DCE) to explore what matters most to people when choosing CML treatments. πŸ‘€ You’ll be shown two different treatment options with various side effects and asked to choose between them - just like real life decision-making! ⏳ It

πŸ“Š This study uses a Discrete Choice Experiment (DCE) to explore what matters most to people when choosing CML treatments.
πŸ‘€ You’ll be shown two different treatment options with various side effects and asked to choose between them - just like real life decision-making!
⏳ It
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πŸ’¬ Why should you take part in this study? βœ… Your input can shape future treatment decisions βœ… Help improve therapies for people living with CML βœ… Guide researchers to focus on what truly matters to patients πŸ’‘ Real experiences = Real impact! πŸ”— Take the survey now:

πŸ’¬ Why should you take part in this study?
βœ… Your input can shape future treatment decisions
βœ… Help improve therapies for people living with CML
βœ… Guide researchers to focus on what truly matters to patients
πŸ’‘ Real experiences = Real impact!
πŸ”— Take the survey now:
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🧬 Do you or someone you know have Chronic Myeloid Leukaemia (CML)? πŸ—£οΈ We want to hear from you! πŸ“‹ Help us understand which side effects matter most to people living with CML. Your voice can help shape future treatment approaches and improve care. πŸ’‘ It’s anonymous, quick, and

🧬 Do you or someone you know have Chronic Myeloid Leukaemia (CML)?
πŸ—£οΈ We want to hear from you!
πŸ“‹ Help us understand which side effects matter most to people living with CML. Your voice can help shape future treatment approaches and improve care.
πŸ’‘ It’s anonymous, quick, and
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We need your voice! Please take a few minutes to participate in this important survey: πŸ‘‰ survey.valorem.health/cmlan-ohe-scre… Your anonymous responses will contribute to a scientific publication and help us as a patient organization better understand what truly matters to people living with

We need your voice!
Please take a few minutes to participate in this important survey:
πŸ‘‰ survey.valorem.health/cmlan-ohe-scre…
Your anonymous responses will contribute to a scientific publication and help us as a patient organization better understand what truly matters to people living with
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πŸ“’ New ELN Guidelines for CML Published! We are pleased to share that the 2025 European LeukemiaNet (ELN) recommendations for the management of chronic myeloid leukemia (CML) have now been published! ➑️ Read here: nature.com/articles/s4137… As in previous years, CML Advocates

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Living with CML changes everything, including intimacy. In this latest article for CML Life, Canadian CML expert Dr. Caroline Hamm answers questions about sex, pregnancy and how medications affect libido. Read more here: cml-life.com/articles/lets-… #CMLLIFE #CML #lifestyle

Living with CML changes everything, including intimacy. In this latest article for CML Life, Canadian CML expert Dr. Caroline Hamm answers questions about sex, pregnancy and how medications affect libido. 

Read more here: cml-life.com/articles/lets-…

#CMLLIFE #CML #lifestyle
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πŸ“’ Are you living with CML in the USA or Canada? Your voice matters! Take a few minutes to complete an anonymous survey about your treatment experience. Your insights will help improve CML care, guide treatment development, and inform healthcare professionals around the world.

πŸ“’ Are you living with CML in the USA or Canada?
Your voice matters!
Take a few minutes to complete an anonymous survey about your treatment experience. Your insights will help improve CML care, guide treatment development, and inform healthcare professionals around the world.
CML AdvocatesNetwork (@cmlnet) 's Twitter Profile Photo

πŸ“’ The Pediatric CML Course is back – and enrollment is now open! Join us starting August 16 for this free, online course designed for patient advocates, caregivers, young adult patients, and healthcare professionals. 🌟 Learn how pediatric CML differs from adult-onset CML, and

πŸ“’ The Pediatric CML Course is back – and enrollment is now open!
Join us starting August 16 for this free, online course designed for patient advocates, caregivers, young adult patients, and healthcare professionals.

🌟 Learn how pediatric CML differs from adult-onset CML, and
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πŸŒπŸ“’ World CML Day 2025 is approaching next month! This year’s theme is β€œEquity in Action: Leaving No CML Patient Behind” β€” a powerful reminder that everyone deserves access to the right care, at the right time, no matter where they live. πŸ’ŠπŸŒ± πŸ”΄ Share your story:

πŸŒπŸ“’ World CML Day 2025 is approaching next month!
This year’s theme is β€œEquity in Action: Leaving No CML Patient Behind” β€” a powerful reminder that everyone deserves access to the right care, at the right time, no matter where they live. πŸ’ŠπŸŒ±

πŸ”΄ Share your story:
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🎧 New EHA Unplugged Episode! "Empowering Healthcare through Patient Advocacy" with Jan Geissler is now streaming! Jan - a cancer survivor, founder of Patvocates, and a global leader in patient engagement, shares how collaboration, lived experience, and advocacy can drive real

🎧 New EHA Unplugged Episode!
"Empowering Healthcare through Patient Advocacy" with <a href="/jangeissler/">Jan Geissler</a> is now streaming!

Jan - a cancer survivor, founder of Patvocates, and a global leader in patient engagement, shares how collaboration, lived experience, and advocacy can drive real
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πŸŽ™ Casada con el Cangrejo is a powerful Spanish-language podcast. It gives voice to the cancer journey - when silence is heavy and answers are few. Because talking about cancer matters. 🎧 Now streaming on Spotify πŸ”— open.spotify.com/show/2LnhoND7z… #CML #podcastv #Cancerjourney

πŸŽ™ Casada con el Cangrejo is a powerful Spanish-language podcast. It gives voice to the cancer journey - when silence is heavy and answers are few. Because talking about cancer matters. 
🎧 Now streaming on Spotify
πŸ”— open.spotify.com/show/2LnhoND7z…
#CML #podcastv #Cancerjourney