CMV Action UK (@cmvactionuk) 's Twitter Profile
CMV Action UK

@cmvactionuk

The CMV virus affects 2 to 3 UK babies every day. We are the only UK charity raising awareness & supporting families affected by this common virus. #stopCMV

ID: 557011080

linkhttp://linktr.ee/CMVACTION calendar_today18-04-2012 14:52:49

5,5K Tweet

3,3K Followers

1,1K Following

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Can you help UCL Global Health with this cCMV Study? We're looking for UK based families and carers with children aged between 4 and 12 years old. Click the link for more information cmvaction.org.uk/news/invitatio…

Can you help <a href="/UCLGlobalHealth/">UCL Global Health</a> with this cCMV Study?  We're looking for UK based families and carers with children aged between 4 and 12 years old.    Click the link for more information 
cmvaction.org.uk/news/invitatio…
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Small charities are often the ones making the biggest impact. Support #CMVAction this #SmallCharityWeek and help us raise awareness and support families affected by CMV. Every donation counts justgiving.com/campaign/cmvwa… #CMVAwarenessmonth #CMVAwareness #kNOwCMV

Small charities are often the ones making the biggest impact.  Support #CMVAction this #SmallCharityWeek and help us raise awareness and support families affected by CMV.  Every donation counts
justgiving.com/campaign/cmvwa…
#CMVAwarenessmonth #CMVAwareness #kNOwCMV
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

We’re looking for UK based families to help shape our new three-year strategy. If your family has been affected by CMV and you’re based in the UK, please complete our survey. Your voice matters! Thank you cmvaction.org.uk/news/cmv-actio…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

We're relaunching our newsletter! From next month the CMV Action newsletter will be hitting inboxes monthly. Sign up via the link below to keep up to date on all of the latest news and updates. cmvaction.org.uk/whats-going-on…

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Can you help CMV Action double our impact this Christmas time? Yes, we know it's only July! Light up a pledge star and give us the best gift we could ask for this December. cmvaction.org.uk/get-involved/t…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Help us reach our summer fundraising goals with your everyday online shopping! It only takes 2 minutes to join @GiveasyouLive, so start raising FREE donations today! giveasyoulive.com/join/cmvaction…

Help us reach our summer fundraising goals with your everyday online shopping! It only takes 2 minutes to join @GiveasyouLive, so start raising FREE donations today!
 
giveasyoulive.com/join/cmvaction…
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Our newsletter is back and out now! Click the link to find out the latest news from CMV Action and subscribe to receive our updates directly to your inbox. cmvaction.org.uk/whats-going-on…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Free Resources! Are you a parent navigating a journey with #CMV or a healthcare professional looking for more information? We have lots of information and resources available to download or order on our website. cmvaction.org.uk/resources/publ…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Exciting news! We have secured a charity place for the 2025 #LondonMarathon. If you'd like to run for CMV Action, please complete our expression of interest by Saturday 21st September. cmvaction.org.uk//news/run-for-…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Read about how Dad Sam will be taking to the boxing ring this November to raise funds for CMV Action. cmvaction.org.uk/fundraisers/fi…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

We're excited to announce that the results of our 2024 Family Survey are now available for download on our website. cmvaction.org.uk/news/cmv-actio… #cmvaction #familysurveyresults #smallcharity #strategy #cytomegalovirus #familysupport

We're excited to announce that the results of our 2024 Family Survey are now available for download on our website. 
cmvaction.org.uk/news/cmv-actio…

#cmvaction #familysurveyresults #smallcharity #strategy #cytomegalovirus #familysupport
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Our family survey reinforced what we already knew. Training for healthcare professionals is crucial to providing the right support for families during and beyond diagnosis. Our new strategy will see us work to enhance our training and support services. #CMVAction #healthcare

Our family survey reinforced what we already knew.  Training for healthcare professionals is crucial to providing the right support for families during and beyond diagnosis. Our new strategy will see us work to enhance our training and support services.  #CMVAction #healthcare
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Family Survey Results - our families want us to enhance our support services and provide them with more accessible support networks. This will be a key focus area for our new 3 year strategy #cmvaction #cmvawareness #strategy #supportservices

Family Survey Results - our families want us to enhance our support services and provide them with more accessible support networks.   This will be a key focus area for our new 3 year strategy  #cmvaction #cmvawareness #strategy #supportservices
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

At CMV Action we value all feedback, positive and negative.  We've heard what our families have told us via our survey and are committed to making the necessary changes needed to improve as an organisation. #cmvaction #cmvawareness #feedback #familysurvey #smallcharity #cmv

At CMV Action we value all feedback, positive and negative.  

We've heard what our families have told us via our survey and are committed to making the necessary changes needed to improve as an organisation.

#cmvaction #cmvawareness #feedback #familysurvey #smallcharity #cmv
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

We’ve got the message loud and clear.  Raising awareness of CMV amongst the public is essential.   It’s a huge part of our organisation’s mission, & awareness raising is an area that we will continue to prioritise as part of our new strategy. #cmvawareness #cmvaction #strategy

We’ve got the message loud and clear.  Raising awareness of CMV amongst the public is essential.   
It’s a huge part of our organisation’s mission, &amp; awareness raising is an area that we will continue to prioritise as part of our new strategy. #cmvawareness #cmvaction #strategy
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Family Survey top five revealed ☑Development of new online information for parent, carers and families ☑Access to practical courses, such as benefits advice, managing changes, etc. ☑Family days/social events ☑Emotional health support ☑Peer support for parents & carers

Family Survey top five revealed
 ☑Development of new online information for parent, carers and families
☑Access to practical courses, such as benefits advice, managing changes, etc.
☑Family days/social events
☑Emotional health support
☑Peer support for parents &amp; carers
CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

Earlier this week we launched our #HopeforChristmas campaign. Born with a diagnosis of cCMV, Hope's family were told she wouldn't make it through her first night. This Christmas Day, Hope will celebrate her 5th birthday. Watch her story here. youtube.com/watch?v=nIaNdf…

CMV Action UK (@cmvactionuk) 's Twitter Profile Photo

We are proud to have recently published an article in BJM highlighting the story of Hope, the inspiring face of our 2024 Christmas campaign and raising awareness of CMV amongst healthcare professionals cmvaction.org.uk//our-stories/h… #hopeforchristmas #cmvaction #midwifery