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It’s International Nurses Day! 🧑‍⚕️🌎️💙 Thank you to all the hardworking nurses across the globe. The work of the nursing community is deeply appreciated not only today but every day. #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia #nursesday

This week is National Hospital Week! Through our Centers of Excellence (COE) program, CHI has distinguished eight hyperinsulinism centers providing exceptional care at the highest level. To read the full list of COEs and more about the designation, visit congenitalhi.org/the-chi-center…

The Million Dollar Bike Ride (MDBR) is just one month away! This is an excellent opportunity to directly support a hyperinsulinism research project. Ride with us in-person OR fundraise from anywhere in the world: congenitalhi.org/2025-million-d… #hyperinsulinism #raredisease #MDBR

Today is the International Day of Families. We know that living with HI affects families deeply, whether you are a caretaker, sibling, or diagnosed with HI yourself. Our Facebook Family Support Forum is an excellent resource to connect with HI families: facebook.com/share/g/1LwaXQ…

Today is International Clinical Trials Day! Clinical trials are necessary for the development of new HI medications and devices. There are two biotechs, Hanmi and Rezolute, currently running clinical trials for HI therapies. More info at congenitalhi.org/clinical-resea…

The Million Dollar Bike Ride is on June 14 in Philadelphia, PA, and for the 13th year, we are raising funds for HI research! Meet a member of Team CHIbra: Julie Raskin, CHI CEO, an HI mom, & an all-around CHI champion! Support Julie's fundraising page at charity.pledgeit.org/f/h8szZ4CjR0

CHI's time in Denmark was truly jam-packed! In addition to our Family Conference in Copenhagen, we attended the filming of the documentary project of the LightCure grant, and shared posters and presented at the ESPE/ESE joint meeting! Read more at congenitalhi.org/copenhagen-202…

Meet a member of Team CHIbra: Pamela Weber-Leaf, CHI's Development Director! You can support Pam's fundraising page at: charity.pledgeit.org/MillionDollarB…

NEW! Rezolute Announces Completion of Enrollment in the Phase 3 sunRIZE Study of Ersodetug in Patients with Congenital Hyperinsulinism. Read the full press release at ir.rezolutebio.com/news/detail/35…

Meet one of our returning Team CHIbra riders: Dr. Charles Stanley - a legend in the field of pediatric endocrinology and the founder of the Congenital Hyperinsulinism Center at the Children's Hospital of Philadelphia. You can support Dr. Stanley’s ride at charity.pledgeit.org/f/1ZtvYd92X1

The team at CHOP has a new study to understand how cognitive function changes over time in children with HI. Must be 7-15 years old and have a diagnosis of either congenital HI or are a healthy volunteer. If you’re interested in learning more, please email [email protected]!

Last Saturday, our Team CHIbra gathered at the MDBR to raise funds for a HI research grant. We have until June 30th to complete our fundraising goal of raising $70,000! Will you help us cross the finish line? Visit charity.pledgeit.org/t/9EK4B2jSW1 to show your support

Gia's first blood glucose level was 46 mg/dL (70-100 mg/dL = normal).⁠ ⚠️ A healthy brain depends on normal blood glucose. 🩸🧠 ⁠ ⁠ It is vital to check and manage blood glucose in newborns. ⁠ View a slideshow of all of our HI Day submissions at congenitalhi.org/hyperinsulinis…

Emrys's first blood glucose level was 1.1 mmol/L (3.9–5.6 mmol/L = normal).⁠ A healthy brain depends on normal blood glucose. It is vital to check and manage blood glucose in newborns. ⁠ View a slideshow of all of our Hyperinsulinism Day submissions at congenitalhi.org/hyperinsulinis…

Felicia is our June HI Global Registry (HIGR) Ambassador spotlight and is a mother to 11-year-old Jilani with post-pancreatectomy diabetes. ⁠ ⁠ To read about Felicia and Jilani's perspectives, please visit her recent blog post: ⁠congenitalhi.org/tracking-hope-…

Looking to connect with the hyperinsulinism community? Join us this October in Philadelphia, PA, with Children's Hospital of Philadelphia (CHOP) at our next Family Conference! ➡️ Register now and get all the details on hotels and scholarships here: congenitalhi.org/2025-congenita… 🔗

We've funded HI research grants for 11 years. We need your support to complete our 12th! We need new treatments, diagnostic tests, & management tools to improve the lives of HI patients. Will you join our movement to make a difference? Show your support at charity.pledgeit.org/t/9EK4B2jSW1

Thank you to our supporters who helped us raise $45,000 for HI research! We set out to raise $70,000, & we’ve got $25,000 to go! CHI will help close the gap, but we still need your support. Every donation gets us closer to advancing lifesaving research: congenitalhi.org/donate/

With prompt diagnosis, early treatment and aggressive prevention of hypoglycemia, brain damage and death can be prevented #StopTheLows Learn the signs and symptoms of hypoglycemia and spread the word. ⁠ #hyperinsulinism #raredisease #congenitalhyperinsulinism #hypoglycemia

Meet Meina and her daughter, Camilla!⁠ Read their HI Story at congenitalhi.org/camillas-journ… ⁠ HIGR is the only patient-powered registry for HI. Not registered? It’s not too late to share your experiences and make a difference! Learn more at higlobalregistry.org and sign up today.