Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile
Cooley's Anemia Foundation

@cooleysanemia

Cooley's Anemia Foundation is a US nonprofit dedicated to serving people with all forms of the genetic blood disorder #thalassemia.

ID: 223849670

linkhttp://www.thalassemia.org calendar_today07-12-2010 14:08:26

4,4K Tweet

1,1K Followers

126 Following

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Imagine if your dollar is the one that helps us find a cure for all? Dec 3rd is #GivingTuesday - please help us in our fight against thalassemia by donating to ensure that patients get the care and support they need to live beyond 70.

Imagine if your dollar is the one that helps us find a cure for all? Dec 3rd is #GivingTuesday - please help us in our fight against thalassemia by donating to ensure that patients get the care and support they need to live beyond 70.
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

CAF's Staten Island chapter will be hosting a Blood Drive on January 12 at Our Lady of Pity's Gym from 8am to 2pm to help celebrate National Blood Donor Day. If you're in NYC, please attend as your involvement can help save many lives!

CAF's Staten Island chapter will be hosting a Blood Drive on January 12 at Our Lady of Pity's Gym from 8am to 2pm to help celebrate National Blood Donor Day. If you're in NYC, please attend as your involvement can help save many lives!
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Our foundation has been advocating for people with thalassemia for over 70 years. We will start sharing history on Thursdays going forward and what better way to kick it off than this image from 1961 with our community raising awareness for blood donors 💖

Our foundation has been advocating for people with thalassemia for over 70 years. We will start sharing history on Thursdays going forward and what better way to kick it off than this image from 1961 with our community raising awareness for blood donors 💖
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

The Long Island CAF Chapter invites you to come bowl and STRIKE OUT Thalassemia! On Feb 2nd, it'll be fun-filled afternoon to fundraise for thalassemia research and resources. Tell your friends & register at bit.ly/CAF

The Long Island CAF Chapter invites you to come bowl and STRIKE OUT Thalassemia! On Feb 2nd, it'll be  fun-filled afternoon to fundraise for thalassemia research and resources. 

Tell your friends & register at bit.ly/CAF
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Great news for our patients!! The FDA has accepted #Agios' supplemental new drug application for PYRUKYND® (mitapivat) in adult patients with Non-Transfusion-Dependent and Transfusion-Dependent Alpha- or Beta-Thalassemia! Read the full article here: investor.agios.com/news-releases/…

Great news for our patients!! 
The FDA has accepted #Agios' supplemental new drug application for PYRUKYND® (mitapivat) in adult patients with Non-Transfusion-Dependent and Transfusion-Dependent Alpha- or Beta-Thalassemia!  

Read the full article here: investor.agios.com/news-releases/…
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

As the temperatures drop, the need for blood donations rises—especially for thalassemia patients who rely on regular transfusions to stay healthy 🩸 Be a lifeline, and donate blood today ❤️

As the temperatures drop, the need for blood donations rises—especially for thalassemia patients who rely on regular transfusions to stay healthy 🩸

Be a lifeline, and donate blood today ❤️
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

The Painted Turtle will be hosting its first-ever Thalassemia Family Weekend from Friday, April 11th to Sunday, April 13th. This event is open to children with Thalassemia, ages 6 to 17, and their families. Camp is completely free for all who attend! Thepaintedturtle.org/apply

The Painted Turtle will be hosting its first-ever Thalassemia Family Weekend from Friday, April 11th to Sunday, April 13th. This event is open to children with Thalassemia, ages 6 to 17, and their families. Camp is completely free for all who attend! 

Thepaintedturtle.org/apply
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Join us for a zoom webinar on Wednesday, Feb 19th to discuss the upcoming thalassemia focused weekend hosted by Julia Bossi from The Painted Turtle Camp at 7:00 PM! Please save this link to attend: bit.ly/PaintedTurtleC…

Join us for a zoom webinar on Wednesday, Feb 19th to discuss the upcoming thalassemia focused weekend hosted by Julia Bossi from The Painted Turtle Camp at 7:00 PM! 

Please save this link to attend: bit.ly/PaintedTurtleC…
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Here are some images from CAF in the 90s (1991 - 1995 to be exact) We have the Thalassemia Action Group's Patient Parent Conference from 95, CAF board meeting in 1991, and a TAG dinner dance from 1993! Comment anyone that you recognize. #CAFThrowback

Here are some images from CAF in the 90s (1991 - 1995 to be exact) 

We have the Thalassemia Action Group's Patient Parent Conference from 95, CAF board meeting in 1991, and a TAG dinner dance from 1993! 

Comment anyone that you recognize. #CAFThrowback
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Our Thal Pal Daniela will be entering her first dance competition where she will be having her IV on stage while she does her routine with hopes of a universal cure for all. This is such an excellent way to raise awareness for thalassemia!! Go Daniela!!

Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Today is #RareDiseaseDay and we put together this video that explains exactly what Thalassemia is. Whether you donate money or donate blood, a small gesture can make a BIG difference in someone’s life. Help our organization help the lives of many thalassemia warriors 🩸⁠

Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Care Walk is the Cooley's Anemia Foundation's annual fundraising event and opportunity to bring together the Thalassemia community and its supporters around the country. The official date of Care Walk this year is May 4 Register here: bit.ly/CAFCareWalk25

Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

The Thalassemia International Federation & CAF are delighted to announce the 1st TIF Pan American Conference on Thalassemia & Other Hemoglobin Disorders and the 2nd RAIN Summit, taking place from July 11 - 13 at the Hyatt Regency Crystal City in Washington, D.C

The Thalassemia International Federation & CAF are delighted to announce the 1st TIF Pan American Conference on Thalassemia & Other Hemoglobin Disorders and the 2nd RAIN Summit, taking place from July 11 - 13 at the Hyatt Regency Crystal City in Washington, D.C
Cooley's Anemia Foundation (@cooleysanemia) 's Twitter Profile Photo

Here's why Care Walk matters- IN NUMBERS! For 14 years, Care Walk has been CAF's biggest fundraiser for thalassemia patient programs to ensure that they live long, fuller lives! ⁠ ⁠

Here's why Care Walk matters- IN NUMBERS! For 14 years, Care Walk has been CAF's biggest fundraiser for thalassemia patient programs to ensure that they live long, fuller lives! ⁠
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