🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Are you already following us on Instagram? We regularly post new videos and stories about ERN CRANIO there! Follow us via the link below! instagram.com/erncranio?igsh…

Don't miss out on the opportunity to register for the remarkable @EJPRareDiseases - ERN trainings! The best part? These trainings are absolutely free of charge, plus travel and accommodation fellowships are available. Register before the deadlines! ℹ️More: ejprarediseases.org/ejp-rd-events/

Great news! IRDiRC's DSC is looking for #RareDisease diagnosis researcher/clinician from Africa or Latin America, and a rare disease patient/patient advocate involved in RD diagnosis projects or initiatives worldwide. Apply by June 9th! ℹ️irdirc.org/join-irdirc-di…

📢 Share your opinion: the Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership is now open. 📝You can share your voice here: forms.office.com/e/FWjDSinxHW 🚨Deadline: 9 June 2023

📢Share your opinion: the Public Consultation on the Strategic Research & Innovation Agenda of the future European Rare Diseases Partnership is now open. 📝You can share your voice here: forms.office.com/e/FWjDSinxHW 🚨Deadline: 9 June 2023

📣 Calling all researchers, clinicians, and healthcare specialists! Registration now open for two upcoming ERN workshops: 1: ejprarediseases.org/event/ern-work… 🚨Deadline: 01 July 2023 2: ejprarediseases.org/event/ejp-rd-e… 🚨Deadline: 15 July 2023

Are you living with a rare disease or caring for someone who is? 👥 What could screening at birth mean for access to treatment, psychological wellbeing, and family dynamics? Don’t miss the chance to make your voice heard! 👂tiny.cc/survey_NBS_RD

🚀Enhance your skills and stay ahead in rare disease research! Join the free @EJPRareDiseases online training on Replicated N-of-1 RCTs for Rare Diseases. Learn from Patrick Onghena about this research strategy and statistical analysis techniques. More: ejprarediseases.org/event/ejp-rd-t…

📢 Your opinion is important to us! We would like to improve the feel of our website! The questionnaire consists of a total of 71 questions, providing answers will take 15 - 30 minutes. 📲 Please follow the link below to access the survey! lnkd.in/euj7ewwS

The latest ERN CRANIO newsletter has just been published! Subscribe to our newsletter to get automatic updates on the latest ERN CRANIO news. You can also read the newsletter via the link below: mailchi.mp/4c0c1cacefe8/e…

Join @EJPRareDiseases at the Variant Prioritization and Enrichment for Rare Diseases Workshop 📅20-22 September 2023 Don't miss this chance to dive into genomics for rare diseases! ℹ️More information and registration here before 9 September: ejprarediseases.org/event/ejp-rd-v…

The guideline on treatment and management of craniosynostosis: patient and family version has been published in the Journal of Craniofacial Surgery and is now also available in Slovenian! Click on the link below to read and feel free to share! ern-cranio.eu/media/12913/sm…

Join the FREE @EJPRareDiseasesonline training on "Item Response Models for Analyzing Assessments in Rare Diseases" 🧬🔍 🗓️ Date: September 29, 2023 💡 Advanced-Level 📝Registration deadline: September 28, 2023 More information: ejprarediseases.org/event/ejp-rd-o…

New IRDiRC Publication: IRDiRC's Chrysalis Task Force on Making Rare Disease Research Attractive to Companies 📝Check out the article at doi.org/10.1177/263300…

Follow us on Instagram! We share regular updates, videos, photos and more on our Instagram account. Interested? Follow us on Instagram via the link below! instagram.com/erncranio/

Applications for the 2024 EURORDIS-Rare Diseases Europe Open Academy Schools are OPEN! Apply before October 27th for an immersive week of learning, networking, and advancing patient advocacy in Medicines R&D and Scientific Innovation in Barcelona from June 3-7. ℹ️ejprarediseases.org/open-academy-s…

Starting today and running through December 2nd, mentors and educators specializing in the field will be accessible online to address your inquiries and provide guidance throughout your participation in the @EJPRareDiseases online course. Join the course! futurelearn.com/courses/introd…

🚨Don't miss out! Engage with industry experts in @EJPRareDiseases online courses "Diagnosis Rare Diseases: from clinic to research": until Dec 8th "From Lab to Clinic: Translational Research for Rare Diseases": until Dec 2nd Join us and learn from them! ejprarediseases.org/general-inform…

Exciting update for rare disease enthusiasts! 🌟Registration deadline for the Final EJP RD Conference extended to May 22nd, 2024! Join us on online May 27-28, 2024 for engaging sessions on RD research. Check out the agenda and secure your spot today! ℹ️ ejprarediseases.org/ejp-rd-final-c…

🌟 Join @ejprarediseases for the End-user Training Webinar on June 26, 2024! 🌍🔬 Learn to navigate the Virtual Platform for Rare Diseases. ℹ️ Registration and more information: ejprarediseases.org/event/end-user…