CureARS (@cure4ars) 's Twitter Profile
CureARS

@cure4ars

Our mission is to spread awareness, connect and provide support to affected families and fund research for the ultra-rare mtARS genes.

ID: 1420084253015121925

linkhttps://www.curears.org calendar_today27-07-2021 18:10:55

67 Tweet

178 Followers

548 Following

CureARS (@cure4ars) 's Twitter Profile Photo

Thank you to all our donors for #GivingTuesday! Special message from Daphne, the daughter of our co-founder, Desiree Magee! #mitochondrialdisease #ears2 #ltbl #everylifematters #raredisease #brave #hero #spreadkindness #awareness #bethechange #thankyou

CureARS (@cure4ars) 's Twitter Profile Photo

12 Days of IMPACT! 👊 How it works: 💚Text "FLASH" to 90412 to sign up or visit hundredx.com/flash 💚Choose CureARS and give your opinion (up to $2 for a quality opinion) 💚Create up to $150 of impact (75 opinions max)

12 Days of IMPACT! 👊

How it works:
💚Text "FLASH" to 90412 to sign up or visit hundredx.com/flash
💚Choose CureARS and give your opinion (up to $2 for a quality opinion)
💚Create up to $150 of impact (75 opinions max)
CureARS (@cure4ars) 's Twitter Profile Photo

✅ Register here: curears.org/2023-symposium #mitochondrialdisease #mito #raredisease #arsgenes #knowledgeispower #mitoresearch #research #choc #AARS2 #CARS2 #DARS2 #EARS2 #FARS2 #GARS #HARS2 #IARS2 #KARS #LARS2 #MARS2 #NARS2 #PARS2 #RARS2 #SARS2 #TARS2 #VARS2 #WARS2 #YARS2

✅ Register here: curears.org/2023-symposium

#mitochondrialdisease #mito #raredisease #arsgenes #knowledgeispower #mitoresearch #research #choc #AARS2 #CARS2 #DARS2 #EARS2 #FARS2 #GARS #HARS2 #IARS2 #KARS #LARS2 #MARS2 #NARS2 #PARS2 #RARS2 #SARS2 #TARS2 #VARS2 #WARS2 #YARS2
CureARS (@cure4ars) 's Twitter Profile Photo

⭐️New Speaker⭐️ Meet Dr. Jennifer Yang, a Child Neurologist at Rady Children’s Hospital / University of San Diego (UCSD). Rady Children's Hospital-San Diego #ars2science2023 #mitochondrialdisease #research To view our full agenda and register ➡️ curears.org/2023-symposium

⭐️New Speaker⭐️

Meet Dr. Jennifer Yang, a Child Neurologist at Rady Children’s Hospital / University of San Diego (UCSD). <a href="/radychildrens/">Rady Children's Hospital-San Diego</a> 

#ars2science2023 #mitochondrialdisease #research 

To view our full agenda and register ➡️ curears.org/2023-symposium
CureARS (@cure4ars) 's Twitter Profile Photo

We are very excited to have the support of CHOC and National Organization for Rare Disorders (NORD) for this wonderful Scientific Symposium highlighting the 19 Rare Mitochondrial ARS2 genes! #ars2science2023 #mitochondrialdisease #Curears #research #researchingrarefundingacure #arsgenes

CureARS (@cure4ars) 's Twitter Profile Photo

Special thank you to Dr. Jose Abdenur and CHOC for sponsoring our annual symposium! Dr. Abdenur will be speaking about his ongoing #research into the #DARS2 gene. Join us on February 10th, 2023 ➡️ curears.org/2023-symposium. #ars2science2023 #mitochondrialdisease

Special thank you to Dr. Jose Abdenur and <a href="/chocchildrens/">CHOC</a> for sponsoring our annual symposium! 

Dr. Abdenur will be speaking about his ongoing #research into the #DARS2 gene. Join us on February 10th, 2023 ➡️ curears.org/2023-symposium. 

#ars2science2023 #mitochondrialdisease
CureARS (@cure4ars) 's Twitter Profile Photo

⭐️Panel Highlight⭐️ Natural history studies in rare disease follow a group of patients over time to better understand and characterize the disease. To register: curears.org/2023-symposium #ars2science2023 #mitochondrialdisease

⭐️Panel Highlight⭐️

Natural history studies in rare disease follow a group of patients over time to better understand and characterize the disease.

To register: curears.org/2023-symposium

#ars2science2023 #mitochondrialdisease
CureARS (@cure4ars) 's Twitter Profile Photo

Join us for an update on our ongoing research project❗️ Register here: curears.org/2023-symposium For more information on this project visit: curears.org/chop-drug-repu… #ars2science2023 #mitochondrialdisease

Join us for an update on our ongoing research project❗️

Register here: curears.org/2023-symposium

For more information on this project visit: curears.org/chop-drug-repu…

#ars2science2023 #mitochondrialdisease
CureARS (@cure4ars) 's Twitter Profile Photo

Panel Highlight: Mito Cocktail as a Therapeutic Please join us for this panel discussion on Friday, Feb 10, 2023 at 2:15pm EST. To register: curears.org/2023-symposium #ars2science2023 #mitochondrialdisease

Panel Highlight: Mito Cocktail as a Therapeutic 

Please join us for this panel discussion on Friday, Feb 10, 2023 at 2:15pm EST. 

To register: curears.org/2023-symposium

#ars2science2023 #mitochondrialdisease
CureARS (@cure4ars) 's Twitter Profile Photo

Have you ever wondered how common are the ARS genes ⁉️ Dr. Renkui Bai from GeneDx will be discussing this topic during the CureARS Symposium on February 10, 2023 at 11:55am EST. To register: lnkd.in/eBAKSMRw #mitochondrialdisease #ars2science2023 #raredisease

Have you ever wondered how common are the ARS genes ⁉️

Dr. Renkui Bai from GeneDx will be discussing this topic during the CureARS Symposium on February 10, 2023 at 11:55am EST.

To register: lnkd.in/eBAKSMRw

#mitochondrialdisease #ars2science2023 #raredisease
CureARS (@cure4ars) 's Twitter Profile Photo

We are selling the below bracelets in honor of rare disease day (Feb 28). 100% of proceeds go to fund research! Please complete the below order form and payment can be made to Venmo handle Mater forms.gle/X4shhgBNYkDZ5g… #raredisease #showyourstripes #mitochondrialdisease

We are selling the below bracelets in honor of rare disease day (Feb 28). 100% of proceeds go to fund research! Please complete the below order form and payment can be made to Venmo handle <a href="/curears/">Mater</a> 

forms.gle/X4shhgBNYkDZ5g…

#raredisease #showyourstripes #mitochondrialdisease
CureARS (@cure4ars) 's Twitter Profile Photo

🏃Registration Open!🏃‍♀️ Run4Rare Mother’s Day 5k/1k May 13, 2023 at 9am Duke Island Park Bridgewater, NJ Register here ➡️ curears.org/run4rare-2023 Sign up now with our early bird pricing before rates jump on April 1, 2023! #run4rare2023 #curears #mitochondrialdisease #research

🏃Registration Open!🏃‍♀️

Run4Rare Mother’s Day 5k/1k
May 13, 2023 at 9am
Duke Island Park
Bridgewater, NJ

Register here ➡️ curears.org/run4rare-2023

Sign up now with our early bird pricing before rates jump on April 1, 2023! 

#run4rare2023 #curears #mitochondrialdisease #research
National Organization for Rare Disorders (NORD) (@rarediseases) 's Twitter Profile Photo

We are pleased to announce four patient advocacy orgs have been awarded the chance to join our IAMRARE Program and implement a natural history study to be included in the #RDCADAP! They are CureARS, FamilieSCN2A, National CMV & RRPFORG. Learn more: bit.ly/3FZh6su

We are pleased to announce four patient advocacy orgs have been awarded the chance to join our IAMRARE Program and implement a natural history study to be included in the #RDCADAP! They are <a href="/cure4ars/">CureARS</a>, <a href="/FamilieSCN2A/">FamilieSCN2A</a>, <a href="/NationalCMV/">National CMV</a> 
&amp; <a href="/RRPFORG1/">RRPFORG</a>.

Learn more: bit.ly/3FZh6su
CureARS (@cure4ars) 's Twitter Profile Photo

Run4Rare is funding research for a group of ultra rare types of Mitochondrial Disease known as the ARS genes 💚💪🏼 Join us for Run4Rare Mother’s Day 5k/1k ➡️ curears.org/run4rare-2023 #runlikeamother #mitochondrialdisease #raredisease

CureARS (@cure4ars) 's Twitter Profile Photo

CureARS was in the news today! Race to Find A Cure: Mom Continues Fight for 4-Year-Old in Somerset County Read More ➡️ patch.com/new-jersey/bri… #mitochondrialdisease #run4rare2023

CureARS (@cure4ars) 's Twitter Profile Photo

GivingTuesday Shirt Fundraiser 👚 Taking pre-orders until November 17th! Shirts will start shipping on Nov. 28 #GivingTuesday ! Google Form: docs.google.com/forms/d/e/1FAI… #mitochondrialdisease #research #givingtuesday #shirt #fundraiser #justcureit

GivingTuesday Shirt Fundraiser 👚 

Taking pre-orders until November 17th! Shirts will start shipping on Nov. 28 #GivingTuesday !

Google Form: 
docs.google.com/forms/d/e/1FAI… 

#mitochondrialdisease #research #givingtuesday #shirt #fundraiser #justcureit
CureARS (@cure4ars) 's Twitter Profile Photo

CureARS and CHOC will be hosting the Mitochondrial ARS Genes Scientific Symposium February 7th virtual! Register here: chocchildrens.zoom.us/webinar/regist…

<a href="/cure4ars/">CureARS</a> and <a href="/chocchildrens/">CHOC</a> will be hosting the Mitochondrial ARS Genes Scientific Symposium February 7th virtual!

Register here:

chocchildrens.zoom.us/webinar/regist…