🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

"...maybe one day we will go on a bike trip together – each on his own 2 wheels." Anna, mother of Szymon As parents and family members of people with #SYNGAP1, we hope for the day when we can see our loved ones express themselves accurately and live independently. To

How many people have 𝘚𝘠𝘕𝘎𝘈𝘗𝟣? 2Q25 #SYNGAP1Census = 1,636 including first patients in Bulgaria, Pakistan, Paraguay, and Uruguay! Details👉 cureSYNGAP1.org/Census 🇺🇸 462 🇩🇪 133 🇬🇧 128 🇫🇷 123 🇨🇳 115 🇪🇸 59 🇳🇱🇮🇹 55 🇦🇺 47 🇵🇱 46 🇨🇦 42 🇷🇺 35 🇧🇷 34 🇰🇷 23 🇦🇷 21 🇨🇭 15 🇨🇴 14 🇳🇴🇸🇪

#SYNGAP1Stories NEW EPISODE! “Being part of SRF has been a lifeline for me, it’s given me a community of parents who truly understand our journey. I’ve made meaningful friendships and have a network of experienced parents I can turn to for advice on common Syngap challenges. I

"We appreciate the opportunity to share our story and remain available to connect with the international networks that warmly support us on this journey." #WarriorWednesday 🧬 Introducing Martina, 4 years old from Uruguay! Diagnosed just one month ago - read Martina's full

🚨 It’s Time to Take Action to Save Medicaid 🚨 The Senate has passed H.R. 1—and if it becomes law, millions of Americans, including families in the rare disease and SYNGAP1 communities, risk losing access to essential healthcare services. For many SYNGAP1 families, Medicaid is

“This is a completely different approach than any we have funded before. We are lucky to have biophysicists interested in SRD and #SYNGAP1!" Thank you to our families, donors, and sponsors for helping SRF fund #Research! We will #CureSYNGAP1! cureSYNGAP1.org/PR40 #SRD

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/2hbGtVLC7uk #SYNGAP1

We're celebrating 2 years of the CHOP ENDD Clinic!! 🎉 There have been 110 participants overall in the ProMMiS Natural History Study conducted by ENDD at CHOP, and multiple repeat participants!🧬🔬 We are grateful to all of the families who have participated in this journey so

Every child deserves the best possible chance of a healthy future. We encourage genetic testing to help find resources, treatments, studies, trials, community, and answers! Read cureSYNGAP1.org/StartGenetic to find out how you can help spread awareness! #StartGenetic #SYNGAP1

"ASO therapy gives us a chance and hope for a normal future. This is the issue that worries us parents the most. If anything can help her, I will experiment." - Evelina, mother of Ola Read more of Evelina's story at cureSYNGAP1.org/Voices #SYNGAP1 #CureSYNGAP1 #ASO #Studies

"Find community, find people that support you and support your kids. Advocate for them and your family in whatever way makes your voice heard." Listen to all episodes at cureSYNGAP1.org/Stories or wherever you listen to podcasts. #CureSYNGAP1 #SYNGAP1 #Epilepsy💜 #Autism💙

Hay un nuevo episodio de Café Syngap1 Podcast! Esta disponible en Youtube, Spotify, Apple Podcasts, Amazon Music, y más! 🎙️ ☕ Encuéntrenlo aquí 👉 cureSYNGAP1.org/Cafe #SYNGAP1 #CureSYNGAP1

Too many families face years of uncertainty about their child’s development and medical issues. That’s why we’ve partnered with many other organizations to promote early genetic testing as a first step through Genetic Testing Action Day on July 25. 🧬 Visit

Volunteers Needed ‼️ This month's search: Webinar Support 🧑‍💻 We’re looking for a volunteer to support our educational webinar series. This remote role includes -coordinating speakers, -preparing Zoom webinars, -creating promotional graphics, -sharing updates with our

Listen to the latest #SYNGAP10 episode with @jmgraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at youtu.be/C3L9psuaMOg #SYNGAP1

Every day without a cure is another day of suffering. Read how you can make every day matter at cureSYNGAP1.org/NL46! Together, we will Cure #SYNGAP1! #cureSYNGAP1 #Connection #Community #Impact #SRFConf #CureSYNGAP1Conf #SplashForSyngap

It's always a good time to come together and spark hope for the future. Join us at the Gala for SYNGAP1 to let those sparks of hope ignite you! 💜✨ for more details and registration go to cureSYNGAP1.org/Gala5 #CureSYNGAP1 #GalaforSYNGAP1

We’re proud to support the #StartGenetic campaign to raise awareness about early genetic testing! 🧬 Mark your calendar for Genetic Testing Action Day on July 25 and download the free Parent Toolkit at StartGenetic.org! 🔬 #SYNGAP1 #CureSYNGAP1 #GeneticTesting

1 Month to Go! ⏳✨ The 5th Annual Gala for SYNGAP1 is just around the corner! We’re counting down the days to an unforgettable evening filled with hope, inspiration, and the fight for a cure. 📅 Friday, August 22, 2025 📍 Eagle Oaks Golf & Country Club, Farmingdale, NJ You can

Un nuevo episodio de Café Syngap1 está disponible! ☕🎙️ Encuéntralo aqui: cureSYNGAP1.org/Cafe #SYNGAP1 #CureSYNGAP1