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Huge thanks to all at Goodrich Consulting for their wonderful fundraising and especially Olivia Smith for completing a half marathon in aid of the campaign!

As many of you will know, 12th November is International CJD Awareness Day. This a day when we all come together with our friends across the world to raise awareness of CJD. We will continue to raise the profile of this horrific illness and will not stop until a cure is found.

The MRC Prion Unit at UCL Open Day will be held on Tuesday 13th February 2024 at UCL Institute of Prion Diseases in London. If you are interested please can you email [email protected] who will send over further details.

The new campaign website is now live - hope you like it! Please do look out for further updates as they come on stream. Thank you to everybody who has contributed. If you have any video content you wish to share with our community please do get in touch. curecjd.org

Thank you to Connor Bradnam who will be running the Kew Gardens Half Marathon, on Easter Sunday. "This charity is close to my heart. In 2010 my Grandad sadly passed away from CJD. he was a huge part of my life and helped me with anything I needed" tinyurl.com/38c6t3h9

Today, we stand in Unity to support all rare diseases. We will continue to raise funds to find a cure for CJD and support the wonderful work of the Prion Unit at UCLH. 📷 RAREDISEASEDAY.ORG

David Buckland sadly died in August of 2023, from Familial CJD. His son, Tom will be taking the Three Peaks Challenge which has to be finished within 24hrs. Good luck! Unfortunately his Auntie who was lost to the illness. Thank you for fundraising. tinyurl.com/pv6583bw 📷

Very well done to Sam who ran the London Marathon in 3hours 14 minutes 24 seconds! Amazing! He is raising funds in memory of his Auntie Jill who rapidly succumbed to CJD over a period of a few months. Thank you Sam for all your efforts - it really is appreciated.

A huge "thank you" to Deborah Treadgold, her family and friends for the very generous donation of £1241.70, in memory of her late husband Robert who sadly passed in 2020 from CJD. Deborah arranged a fundraising event at Roberts favourite local brewery with a live band and raffle!

A huge "thank you" to the Magrock team for their brilliant fundraising efforts - a truly remarkable amount and will make a huge difference! John Collinge and Simon Mead, Professors from UK National Prion Clinic hosted Richard Brewer,Ed Grundon and Becca Creighton from Magrock.

Alice Groux is running “The Big Half” from London Bridge to the Cutty Sark in Greenwich on Sunday 1st September raising funds for the CureCJD Campaign. For Alice, this is personal – her family have Gerstmann-Straussler-Scheinker (the genetic strand of CJD) justgiving.com/page/alice-cur…

Massive thank you to Leah Harwood who is running The Great South Run in memory of her partner's father, John, who tragically passed away from CJD She witnessed CJD's swift and heart-breaking impact which has driven her to raise funds and awareness. ajbellgreatsouthrun2024.enthuse.com/.../lfh...

The Campaign reached £1,000,000 in donations since conception in 2016. The campaign funds researchers at MRC, contribute to PRN100 and raise the profile of CJD. I would like to thank every single person who has contributed - it is really appreciated. Nicola Carnie - Chair.

A huge "shout out" to Fraser, Charlie, Rowan, Stasia, Morganna and Serena Hill who are taking part in the Venice half and full Marathon. Running and raising funds in memory of Andy Hill, a wonderful father who sadly passed from 3 years ago from CJD. justgiving.com/.../venicemara…...

We recently sent out our first newsletter - hopefully you liked it! You would have been sent it if you are signed up to receive communications from CureCJD.campaign. If not,please do visit curecjd.org scroll to the bottom of the page and complete the subscribe form.

Please do read this article from the BBC - all publicity really is helpful in our objective to raise awareness of CJD and also strive to find a cure. tinyurl.com/3cs8u8k5

Today is Rare Disease Day 2025 and the CureCJD Campaign will continue to promote this wonderful initiative. It’s a reminder that rare diseases touch lives and require action than people realise. CJD is a rare disease. We will fundraise until a cure is found. #RareDiseaseDay2025

If you would like to attend the MRC Prion Unit Open Day at UCL on Tuesday 8th April 2025, please contact Rowena Baker, National Prion Clinic, tel. 0207 679 5036 or email [email protected]

If you are in the London area today do pop along and join Tom Buckland who is hosting a fundraising event at the Eel Pie pub in Twickenham 7.30pm. There will be live music from Nathan Baverstock, a buffet of hot bar snacks plus a raffle. justgiving.com/page/buckland1