Cure JM Foundation (@curejm) 's Twitter Profile
Cure JM Foundation

@curejm

Cure JM Foundation is a 501c(3) non-profit funding research for a cure for Juvenile Myositis. JM affects approximately 2-4 of every million children.

ID: 80915736

linkhttp://curejm.org/crypto calendar_today08-10-2009 18:55:18

7,7K Tweet

7,7K Followers

6,6K Following

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Meet Khloe, an 8-year-old Rare Disease Warrior! She battled JDM’s rash, weakness & pain until IVIG helped her reach medicated remission. Now, she’s off steroids & methotrexate—back to dancing & playing! Read her story: curejm.org/rarediseasemon… #RareDiseaseWarrior

Meet Khloe, an 8-year-old Rare Disease Warrior! She battled JDM’s rash, weakness & pain until IVIG helped her reach medicated remission. Now, she’s off steroids & methotrexate—back to dancing & playing! Read her story: curejm.org/rarediseasemon… #RareDiseaseWarrior
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Meet Zamya, a JM Warrior turning her journey with juvenile myositis into advocacy! Diagnosed at 8, she faced misdiagnosis, mobility loss & intensive treatments—but never gave up. Now 21, she’s set to graduate & become a Child Life Specialist! Read more: curejm.org/rarediseasemon…

Meet Zamya, a JM Warrior turning her journey with juvenile myositis into advocacy! Diagnosed at 8, she faced misdiagnosis, mobility loss & intensive treatments—but never gave up. Now 21, she’s set to graduate & become a Child Life Specialist!  Read more: curejm.org/rarediseasemon…
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Join us in two days, as we hear from Dr. Turnier and Dr. Sabbagh. They will be presenting tips for families about detecting and navigating JDM flares. Join us to learn how to help your JM warrior. You can find out more and register at curejm.org/townhalls

Join us in two days, as we hear from Dr. Turnier and Dr. Sabbagh. They will be presenting tips for families about detecting and navigating JDM flares. Join us to learn how to help your JM warrior. You can find out more and register at curejm.org/townhalls
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We're calling on families, patients & supporters to protect critical JM & rare disease research. Proposed NIH cuts threaten life-saving breakthroughs. Cure JM urges Robert F. Kennedy Jr to safeguard research funding. Sign & share by #RareDiseaseDay (2/28/25). curejm.org/rare-disease-l…

We're calling on families, patients &amp; supporters to protect critical JM &amp; rare disease research. Proposed NIH cuts threaten life-saving breakthroughs. Cure JM urges <a href="/RobertKennedyJr/">Robert F. Kennedy Jr</a> to safeguard research funding. Sign &amp; share by #RareDiseaseDay (2/28/25). 
curejm.org/rare-disease-l…
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Walk Strong SoCal is THIS weekend! Join us as we walk for a brighter future for JM patients & kick off Rare Disease Week! đź“… Sat, Feb 22 ⏰ 9 AM Reg | 9:30 AM Walk 📍 Irvine Regional Park – Coyote Corner đź“§ RSVP: [email protected] All families welcome—see you there!

Walk Strong SoCal is THIS weekend!
Join us as we walk for a brighter future for JM patients &amp; kick off Rare Disease Week!
đź“… Sat, Feb 22
⏰ 9 AM Reg | 9:30 AM Walk
📍 Irvine Regional Park – Coyote Corner
đź“§ RSVP: betsy.leon@curejm.org
All families welcome—see you there!
Cure JM Foundation (@curejm) 's Twitter Profile Photo

Today is Rare Disease Day — a time to unite and amplify our voices for JM patients and families. JM mom & advocate Kelly Culver Kelly Brennan shares her story, urging support for rare disease research. Help us reach 3K signatures! Sign here: curejm.org/rare-disease-l…

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Don’t miss a critical update from our Executive Director on March 12 at 8 PM ET! Hear about Cure JM’s mission, momentum & how YOU can make an impact. Get fundraising tips, meet inspiring community members & join a live Q&A. 🔗 Register: curejm.org/townhalls #CureJM

Don’t miss a critical update from our Executive Director on March 12 at 8 PM ET! Hear about Cure JM’s mission, momentum &amp; how YOU can make an impact.
 Get fundraising tips, meet inspiring community members &amp; join a live Q&amp;A.

đź”— Register: curejm.org/townhalls #CureJM
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Walk Strong to Cure JM's next stop is in Tampa, Florida on Saturday, April 5th. We are asking the local and surrounding communities to join our efforts as we take crucial steps toward a cure and spreading awareness. For full details visit: curejm.org/walkstrong

Walk Strong to Cure JM's next stop is in Tampa, Florida on Saturday, April 5th.
We are asking the local and surrounding communities to join our efforts as we take crucial steps toward a cure and spreading awareness.
For full details visit: curejm.org/walkstrong
Cure JM Foundation (@curejm) 's Twitter Profile Photo

Exciting news! The Cure JM Advocate Scholarships are here! These scholarships honor pioneering JM researchers & will go to support collegiate JM patients, leading & inspiring through advocacy. Open to undergrad, grad & med students. Apply by May 10: curejm.org/advocateschola…

Exciting news! The Cure JM Advocate Scholarships are here! 

These scholarships honor pioneering JM researchers &amp; will go to support collegiate JM patients, leading &amp; inspiring through advocacy. Open to undergrad, grad &amp; med students.

Apply by May 10: curejm.org/advocateschola…
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Spring Walk Strong season is here! Every step brings us closer to better treatments, care, and a cure for JM. The Eisenreich family walks for every moment—the good, the tough, and everything in between. What motivates you to Walk Strong? Join us: curejm.org/walkstrong

Spring Walk Strong season is here!  Every step brings us closer to better treatments, care, and a cure for JM.

The Eisenreich family walks for every moment—the good, the tough, and everything in between.

What motivates you to Walk Strong? Join us: curejm.org/walkstrong
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Parenting a JM warrior is tough—you’re not alone. Join Suzanne Edison & parent coach Ronda Thorington for real tools, stress relief tips, & support at our next Town Hall. Online | Sign up: shorturl.at/mwn3H #JuvenileMyositis #ParentSupport #CureJM

Parenting a JM warrior is tough—you’re not alone.  Join Suzanne Edison &amp; parent coach Ronda Thorington for real tools, stress relief tips, &amp; support at our next Town Hall.
Online | Sign up: shorturl.at/mwn3H
#JuvenileMyositis #ParentSupport #CureJM
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For Volunteer Appreciation Month, we’re proud to spotlight Sammie Fish, Ohio Chapter Co-Chair. Diagnosed with JM at 14. Sammie now leads with hope—for a cure for all JM kids. Read her inspiring story: curejm.org/stepstowardacu… #VolunteerAppreciation #CureJM

For Volunteer Appreciation Month, we’re proud to spotlight Sammie Fish, Ohio Chapter Co-Chair. Diagnosed with JM at 14. Sammie now leads with hope—for a cure for all JM kids.

Read her inspiring story: curejm.org/stepstowardacu… #VolunteerAppreciation #CureJM
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Calling all Grandparents! Join our upcoming Grandparents Connect Call this coming Thursday at 7:00 PM EST. You can register at: us02web.zoom.us/meeting/regist…

Calling all Grandparents! Join our upcoming Grandparents Connect Call this coming Thursday at 7:00 PM EST. You can register at: us02web.zoom.us/meeting/regist…
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Join us May 15 at 2PM ET for a Cure JM Town Hall with Dr. Kaveh Ardalan of Duke Children’s. Learn how to safely taper meds like steroids, MTX & IVIG in JM care. Q&A included! Register or get the recording shorturl.at/qBbrM

Join us May 15 at 2PM ET for a Cure JM Town Hall with Dr. Kaveh Ardalan of Duke Children’s. Learn how to safely taper meds like steroids, MTX &amp; IVIG in JM care. Q&amp;A included! Register or get the recording shorturl.at/qBbrM
Cure JM Foundation (@curejm) 's Twitter Profile Photo

Cure JM Advocate Scholarships honor JM advocates making an impact through leadership & resilience. Open to undergrad, grad & med students. 3 will be awarded in 2025. Deadline: May 10. Apply now: curejm.org/advocateschola… #CureJM #JMAwareness

Cure JM Advocate Scholarships honor JM advocates making an impact through leadership &amp; resilience. Open to undergrad, grad &amp; med students. 3 will be awarded in 2025. Deadline: May 10. Apply now: curejm.org/advocateschola… #CureJM #JMAwareness
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Cure JM proudly funds Dr. Sara Sabbagh’s research at UW–Madison, exploring why inflammation spirals in JM. Her lab targets immune cells & key proteins to restore muscle repair. Hope for real healing starts here. 💪 Read more: curejm.org/curejmresearch…

Cure JM proudly funds Dr. Sara Sabbagh’s research at UW–Madison, exploring why inflammation spirals in JM. Her lab targets immune cells &amp; key proteins to restore muscle repair. Hope for real healing starts here. 💪 Read more: curejm.org/curejmresearch…
Cure JM Foundation (@curejm) 's Twitter Profile Photo

As May ends, we honor Mental Health & Myositis Awareness Month with big news! Cure JM’s Suzanne Edison helped shape new ACR guidance on mental health in JM. A vital step to support kids facing higher rates of anxiety & depression. Learn more: curejm.org/emotionalhealt…

As May ends, we honor Mental Health &amp; Myositis Awareness Month with big news! Cure JM’s Suzanne Edison helped shape new ACR guidance on mental health in JM. A vital step to support kids facing higher rates of anxiety &amp; depression. Learn more: curejm.org/emotionalhealt…
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Join us today, June 4 at 2:00 PM Eastern, for a Cure JM Town Hall with Dr. Stacey Tarvin! New to juvenile dermatomyositis? Learn treatment basics and find support. Register now shorturl.at/eq1TK

Join us today, June 4 at 2:00 PM Eastern, for a Cure JM Town Hall with Dr. Stacey Tarvin! New to juvenile dermatomyositis? Learn treatment basics and find support. Register now shorturl.at/eq1TK
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Your voice matters! 🗣️ Take 5 mins to share your JM journey—diagnosis, daily life, and hopes for the future. Your input shapes Cure JM’s research & advocacy. Survey closes June 17: surveymonkey.com/r/LD8DQD8 💙 #CureJM #JMawareness

Your voice matters! 🗣️ Take 5 mins to share your JM journey—diagnosis, daily life, and hopes for the future. Your input shapes Cure JM’s research &amp; advocacy. Survey closes June 17: surveymonkey.com/r/LD8DQD8 💙 #CureJM #JMawareness