CureSHANK (@cureshank) 's Twitter Profile
CureSHANK

@cureshank

CureSHANK's mission is to accelerate the development of treatments and cures for Phelan-McDermid Syndrome and other SHANK-related disorders.

ID: 1144450224133246983

linkhttp://www.cureshank.org calendar_today28-06-2019 03:39:31

170 Tweet

311 Followers

672 Following

CureSHANK (@cureshank) 's Twitter Profile Photo

GIVEAWAY: tickets for @seaverautism's #advancesinautism Conference in NYC! This year’s topic: Precision Therapeutics in Profound Autism. For free tickets, please comment #advancesinautis  by 8 p.m. EST on Thurs 4/24. We’ll DM the first 8 respondents with tickets & details.

GIVEAWAY: tickets for @seaverautism's #advancesinautism Conference in NYC! This year’s topic: Precision Therapeutics in Profound Autism. For free tickets, please comment #advancesinautis  by 8 p.m. EST on Thurs 4/24. We’ll DM the first 8 respondents with tickets & details.
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You're invited! Join us in Barcelona June 26-27 for the Phelan-McDermid Syndrome Drug Development Symposium. Learn the latest biomarkers, outcome measures & clinical trials developments, followed by Asociación Síndrome de Phelan McDermid España Scientific Conference June 28-29.

You're invited! Join us in Barcelona June 26-27 for the Phelan-McDermid Syndrome Drug Development Symposium. Learn the latest biomarkers, outcome measures &amp; clinical trials developments, followed by <a href="/PhelanMcDermid/">Asociación Síndrome de Phelan McDermid España</a> Scientific Conference June 28-29.
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‼️ @NHLBI - Sleep Research & Education National Center on Sleep Disorders Research is hosting a FREE Neurodevelopmental Disorders & Sleep Workshop from Thurs., 5/15 & Fri., 5/16. Registration required: bit.ly/4jOhOdY.

Aymon Solutions (@aymonsolutions) 's Twitter Profile Photo

¡Congreso 2025 sobre el Síndrome de Asociación Síndrome de Phelan McDermid España! 📍Barcelona 📆 26-27 de junio II Simposio CureSHANK 📆 28-29 de junio III Conferencia científica de la Asociación Síndrome Phelan-McDermid ➕ Info: bit.ly/3GUCWkk

¡Congreso 2025 sobre el Síndrome de <a href="/PhelanMcDermid/">Asociación Síndrome de Phelan McDermid España</a>!
📍Barcelona

📆 26-27 de junio
II Simposio <a href="/CureSHANK/">CureSHANK</a> 

📆 28-29 de junio
III Conferencia científica de la Asociación Síndrome Phelan-McDermid

➕ Info: bit.ly/3GUCWkk
CureSHANK (@cureshank) 's Twitter Profile Photo

@COMBINEDBrain’s 2nd Annual Biorepository Roadshow is searching for study participants! See details and upcoming dates here: static1.squarespace.com/static/6435c33….

@COMBINEDBrain’s 2nd Annual Biorepository Roadshow is searching for study participants! See details and upcoming dates here: static1.squarespace.com/static/6435c33….
CureSHANK (@cureshank) 's Twitter Profile Photo

As more people of all ages are living with serious, chronic illnesses, families & others become caregivers. June 5-6, join NASEM Health for a free workshop on interventions & strategies for the common challenges caregivers face Register here: lnkd.in/e9UQ4Psr

As more people of all ages are living with serious, chronic illnesses, families &amp; others become caregivers.

June 5-6, join <a href="/NASEM_Health/">NASEM Health</a>  for a free workshop on interventions &amp; strategies for the common challenges  caregivers face

Register here: lnkd.in/e9UQ4Psr
CureSHANK (@cureshank) 's Twitter Profile Photo

No better time to kick off our Race for Research than #globalrunningday! It’s time to lace up, team up, and show up for #phelanmcdermidsyndrome. Join or create a team here: cureshank.org/raceforresearc…. Share your race by tagging us and using #cureshankr4r. Let’s gooooooooo!

CureSHANK (@cureshank) 's Twitter Profile Photo

Jaguar Gene Therapy & Boston Children's Hospital are seeking children 2-9 years old with molecular confirmation of a loss of function mutation in SHANK3 or a small 22q13.3 deletion affecting SHANK3 for a research study.

Jaguar Gene Therapy &amp; Boston Children's Hospital are seeking children 2-9 years old with molecular confirmation of a loss of function mutation in SHANK3 or a small 22q13.3 deletion affecting SHANK3 for a research study.
CureSHANK (@cureshank) 's Twitter Profile Photo

🏃 Wishing Tom Giles a happy, healthy run to kick off 9 marathons in 9 days to raise funds for Raise for Research! 🔥 Find out more about Tom, Jenson & Raise for Research: cureshank.org/raceforresearc… #cureshankr4r #raredisease #donate #fundraiser

CureSHANK (@cureshank) 's Twitter Profile Photo

We're pleased to recognize the extraordinary work that has advanced research & quality of life for people with PMS: Company of the Year: PYC Therapeutics Lab of the Year: Tobias Boeckers Investigator of the Year: Dr. Liz Berry-Kravis, Rush University

We're pleased to recognize the extraordinary work that has advanced research &amp; quality of life for people with PMS:
Company of the Year: <a href="/PycTherapeutics/">PYC Therapeutics</a> 
Lab of the Year: Tobias Boeckers
Investigator of the Year: Dr. Liz Berry-Kravis, <a href="/RushUniversity/">Rush University</a>
Joserra (@jramonfernandez) 's Twitter Profile Photo

También se han perdido todos los temas de investigación puntera en terapia dirigida a la haploinsuficiencia de SHANK3 como la terapia génica o los ASOs, entre muchos otros temas extremadamente interesantes. Gracias CureSHANK y Asociación Síndrome de Phelan McDermid España por hacerlo posible.

También se han perdido todos los temas de investigación puntera en terapia dirigida a la haploinsuficiencia de SHANK3 como la terapia génica o los ASOs, entre muchos otros temas extremadamente interesantes. Gracias <a href="/CureSHANK/">CureSHANK</a> y <a href="/PhelanMcDermid/">Asociación Síndrome de Phelan McDermid España</a> por hacerlo posible.
CureSHANK (@cureshank) 's Twitter Profile Photo

✅   3 of 9 marathons complete 💙💛  19,000£ raised for CureSHANK research 👏  Thank you Tom Giles! 🚀  You can support #cureshankr4r or start your own challenge! 🌐 cureshank.org/raceforresearc… #phelanmcdermidsyndrome #raredisease #donate #fundraiser

✅   3 of 9 marathons complete

💙💛  19,000£ raised for CureSHANK research

👏  Thank you Tom Giles!

🚀  You can support #cureshankr4r or start your own challenge!

🌐  cureshank.org/raceforresearc…

#phelanmcdermidsyndrome #raredisease #donate #fundraiser