🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

#PatientFirstSummit: The Power of Patient Advocacy and Community Engagement Join us as we explore the critical role of patient advocacy organizations and online communities in shaping health literacy, driving policy changes, and fostering inclusive healthcare. 📅 December 13th

THE WAIT IS OVER! Tomorrow, the 3rd Patient First Summit & Awards 2024 takes center stage at Novotel Mumbai International Airport! From game-changing digital health solutions to trailblazing patient advocacy, this summit is where the future of healthcare begins. 🏆 We'll

Cure SMA Foundation of India 🇮🇳 . ALPANA SHARMA Prabhat Sinha Ministry of Health Public Health Foundation of India (PHFI) National Health Authority (NHA) National Health Portal Jagat Prakash Nadda PMO India Ministry of Finance MyGovIndia Department of Biotechnology ICMR It was an honor to have you. Thank you for sharing your inspiring journey!

HEALTHCARE FOR ALL! Let's celebrate our right to healthcare and request #UrgentTreatmentAccess4SMA in India! With collective action, we can create a brighter future Ministry of Health President of India #right2life #right2health #curesmaindia #battleagainstSMA #acchedinkabayenge

Many thanks vinod kumar menon Mid Day 4 supportin rare disease community we Cure SMA Foundation of India 🇮🇳 hv been writin to Nirmala Sitharaman Ministry of Finance 4 GST exemption on #Risdiplam lifesavin drug4 SMA in India Narendra Modi Jagat Prakash Nadda Ministry of Health PMO India #BattleAgainstSMA mid-day.com/mumbai/mumbai-…

Many thanks Sir Amitabha Bandyopadhy for understanding the patients n parents situation n highlighting it. 🙏. Cure SMA Foundation of India 🇮🇳 has demanded public apology from him n considering other options as well. Abhijit Majumder

For the first time, Spinal Muscular Atrophy treated in utero. nature.com/articles/d4158…

Cure SMA Foundation of India 🇮🇳

This research summit is being organised in collaboration with National Centre for Biological Sciences Cure SMA Foundation of India 🇮🇳 and IIT Kanpur. If you are someone who is working on Rare Diseases in general and #SMA in particular, do consider applying. Watch this space for more details!

🎉 Mark your calendars for March 21, 2025 ! We are thrilled to announce the SMA Research & Technology Summit (SMArT)! 💡 Join experts, patient orgs & researchers for a day of knowledge sharing to advance SMA diagnostics, treatment & care! 🌟 Register now: bit.ly/3EQKYd3

We are honoured to welcome Manasa Varanasi,Femina Miss India 2020,as the Brand Ambassador of #CureSMAIndia! She joins us in raising awareness for #SpinalMuscularAtrophy (SMA) and supporting thousands of families across India in our #BattleAgainstSMA Welcome to the family, Manasa!

Heartfelt thanks to Kerala Government | കേരള സർക്കാർ for pioneering SMA treatment in India! A pre-symptomatic baby received #Risdiplam medicine at just 2 weeks old, marking a historic milestone.Kudos to Dept. of Health & FW, Govt. of Kerala for their unwavering support to patients with SMA! #SMAawareness #KeralaHealthcare