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🌌 Tonight (Nov 23) in Vancouver: See 'Awedessey', our VR experience HR MacMillan Space Centre's planetarium, presented in full dome! Our iSpace Lab team will share how we designed it to support well-being of astronauts in a 8-month simulated spaceflight. events.sfu.ca/event/37966-co…

At a Kids Brain Health Network panel we deconstructed the idea of 'the table' aka bringing people to the table in family engaged research. A little scary to have creative writing + thought in print, but I hope it sparks dialogue and advocacy. jhrehab.org/2023/11/21/a-s…

This is very well-stated; furthermore, for marginalized and/or vulnerable individuals, advocacy & engagement entail a degree of time & energy that they don't have to spare. This is compounded when there is a power imbalance with decision makers.

Great event (free!) via SFU Faculty of Graduate Studies and pippsbc of importance to the general public, advocates, caregivers, and people with lived experience in the Vancouver area. I reckon health care providers and allied professionals will find it really insightful, too.

We are looking for young Canadians between 12-25 to join our Youth Advisory Council! Share your voice with Scientific Director Dr. Christine Chambers to help advise the CIHR Institute of Human Development, Child and Youth Health. Apply by May 21: cihr-irsc.gc.ca/e/51876.html

🙌 this week's Canadian mental health theme is 'healing through compassion'. This Canadian survey demonstrates that nearly all Canadians have tremendous abilities for compassion but lack knowledge on how to act upon it. Awareness for the win. 🫶

📢Proud of this research co-produced with members of Clinical Trials ON's College of Lived Experience "Patient and Public Perceptions in 🇨🇦 About Decentralized and Hybrid #ClinicalTrials: “It’s About Time we Bring Trials to People” - rdcu.be/dLyM4 #PatientEngagement #PPI

Interested in learning more about what goes in to a #PatientLed conference like PxP? We've written a peer-reviewed article on just that with the 2023 Steering Committee members. Hot off the press today: doi.org/10.1186/s40900… #PatientAuthors #PatientEngagement #PPI /end

Research shows that the compassion a patient receives best determines their perception of the quality of care. Read more: calgaryherald.com/news/local-new…

Starting Tuesday, September 10! 👏

Patients partners leading research (and all the other words referring to "patient" as discussed) ... So much wisdom from this session. I am glad it's being recorded so that we don't lose all the gold. Is there a patient-led journal? Feels like there is a great need. Theodora Bloom

Attn students & educators in B.C interested in immersive reality/virtual reality as a transformative & disruptive technology across sectors: #Signals2024 by DigiBC Vancouver International Film Festival is now - Oct 6th. Please PM me for ticket options that alleviate financial burdens for students/educators.

CIHR-IG will support up to four rare-disease patients from Canada to attend the in-person EURORDIS Summer Schools in June 2025 in Barcelona, Spain! tinyurl.com/5e4mppt3

I shared this photo of the Andromeda galaxy the other day- but what I didn't say was I was only partway through shooting it. Look at the next photo in the thread to see how much was revealed by shooting it for a few more days.

Are you a health researcher, staff from a Canadian health research funding organization, or an admin/finance staff member at a university? A research team wants to hear about your experiences compensating patient partners! For more info: bit.ly/patient-partne…

We are currently looking for individuals to participate in a research study that aims to identify compensation-related barriers to patient engagement in Canadian health research, and how this affects inclusion. For more information: lnkd.in/gAuEiTYf

Amazing resource for anyone wanting to understand how research involvement with people with lived experience can become more accessible and equitable! #POR

Calling all Canadian trainees/early career researchers who utilize/interested in patient oriented research (POR) or clinical community-based research, please consider completing this survey that will help set training & capacity building priorities over the next several years!

.CIHR-ICRH | L'ISCR des IRSC wants your input! Share your ideas to help shape its 2025-2030 Research Priority Plan and the future of circulatory and respiratory research in Canada. Take the survey today: forms.office.com/Pages/Response…

Are you a parent / caregiver of a young person w/physical or mental health conditions or disabilities who's currently transitioning or has transitioned to adult care in the last 6 years? If so, we want to speak to you! Get in touch here: [email protected]