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#WorldSickleCellDay it was good to join staff continuing the commitment to raise awareness & educate staff, patients & visitors. A good point to reflect on the improvements @NorthMidNHS has made & continues to make to listen, hear & progress changes to enhance experience & care.

It will be a fabulous celebration!!

I tweet quite a bit - but this one is different and perhaps the most important I’ve ever written I hope it gets shared as much as possible, so new parents don't make the same mistake I nearly made (even as a dad of five, having worked in A&E for 23 years and someone who teaches

Excellent article in The Lancet Haematology about "normal" ranges of ferritin. It is amazing that in 2024 we are still using these in young women when we know they are wrong. They fail to identify many iron deficient women. Why are mainstream journalists not picking up the story, when it

We're going to need something stronger than a tea after that. *Makes two teas* #EURO2024

*Supercell* is #1 globally! Our CEO John spoke with The Guardian about its impact on sickle cell awareness. "Sickle cell gets very little attention. This show portrays it differently." Thanks, @realrapman! Read more: buff.ly/3S8B0rk #SickleCell #Supercell #Netflix

The UK will become the first country in the world to roll out a national vaccination programme against Respiratory Syncytial Virus (RSV), protecting infants & older people from becoming seriously ill. RSV accounts for 39,000 hospitalisations each year. gov.uk/government/new…

Come and work with us! Part-time band 7 clinical/counselling/health psychology post in #sicklecell & #thalassaemia Creative and flexible work in a lovely team where psychology is really valued nhsjobs.com/job/UK/London/… Elizabeth Rhodes @StGeorgesTrust Sickle Cell Society UK Thalassaemia Society West London HCC Network

Best team ever!! #SCD #psychology #Thalassaemia @StGeorgesTrust

Thank you to the British Dietetic Association for sharing the EventBrite link to my upcoming inaugural Advancing Sickle Cell Nutrition Conference - I’m delighted to have Susan Price (she/her) as a speaker representing our profession. Don’t delay in booking - nearly 50% of the tickets have sold.

We are finally here! Today is our Red Cell Celebration day. We’ll be starting this afternoon at 3pm and we’re so excited to have this chance to get together. We can’t wait to see many of you there ❤️ See the poster below for details on where to meet Elizabeth Rhodes

Aisha is an O positive blood donor, donating for the first time at Shepherd's Bush. ❤️ We still urgently need people with 🅾 positive or 🅾 negative blood to book in, donate and help us fill appointments and boost stocks. ➡️ orlo.uk/33jZt

#SWL #SickleCell #Stgeorges #PeerMentoring

🧵 Following recent incidents across the UK, our Group Chief Executive Jacqueline Totterdell has written the following to all staff: Dear colleagues, Like me, I know you will be horrified by the abhorrent racial violence we are seeing in towns across the UK 1/4

We are thrilled to share some exciting news! The NHS will soon offer gene therapy to patients over 12 with transfusion-dependent #Thalassaemia, thanks to NICE's groundbreaking recommendation under the managed access agreement! 🌟

Life changing Gene therapy for #Thalassemia approved by NICE and hopefully soon for #Sicklecell patients SUBARNA CHOUDHURY thanks for your hard work for NHS England

The UK authorities have agreed to provide ex-vivo gene editing therapy as part of the National Health Service for Beta Thalassaemia. This is important because it demonstrates that good value innovative therapies will be funded, despite the cost. tinyurl.com/5cxydk7v #NHS

Our beautiful Kirthana ❤️ Kirthana will be featured on BBC later today!

Fantastic news for people living with transfusion dependent thalassaemia! We await further news of NICE's separate decision on sickle cell. For up to date information about the ongoing SCD appraisal, we have an FAQ sheet sicklecellsociety.org/exa-cel-update/

Red Cell Day 2024 ✨ Our SWL Lead Mentor Patrish and Program Manager Addassa had a blast at St George's Hospital on July 22nd! The day was packed with insightful talks, great food, and fun activities. Huge thanks to the St George’s Haematology team for hosting us! ❤️ #SickleCell