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Pat Smith was a mentor, a friend, and a fierce advocate. There was no one better to have at your side when the stakes were high. Her fearlessness was contagious, infectious, and a marvel to see. I will miss her dearly. LymeDisease.org @LymeDiseaseLDA

--this is a terrific boost for all of the patients who have been discounted and dismissed by the medical community for having persistent Lyme disease. Bravo to Rebman, Yang and Aucott! LymeDisease.org

“The California Board of Pharmacy (BOP) is trying to take dozens of natural compounds away from us. But they’ve messed with the wrong Lyme patient, and I’m fighting back.” Fighting to save our lifeline of glutathione, B12, and more lymedisease.org/crystal-frost-…

“However, a change in the SF-36 score is not inherently meaningful or important to patients,” Lorraine noted. “This is obvious on its face. If you ask any patient what they want in healthcare – none of them will say, ‘I want to improve my SF-36 score.'” lymedisease.org/nasem-takes-on…

The CA State Board of Pharmacy has proposed regulations that could limit access to glutathione, NAD+, & B12, which are essential treatments for many #LymeDisease and #chronicillness patients. Here's what you need to know and how you can help via LymeDisease.org lymedisease.org/crystal-frost-…

Testing and treatment grant applications are now open! 💚 Those in the U.S., Canada, the UK and Germany are eligible to apply. Applications will be open until Friday, November 1st. Apply here: lymetreatmentfoundation.org/application-in… . . . #lymedisease #lymediseasegrants #lymetreatmentforall

Does #LymeDisease Affect Your Teeth? Understanding The Oral Health Impact of #Lyme And How To Manage It tickbootcamp.com/does-lyme-dise…

Wonderful interview with Dr. Luchini - thank-you! The @cshlbanbury meeting on Perinatal Transmission of Lyme disease was such a fantastic opportunity to bring together world-class expertise to tackle such an important issue!

🕷️Tick-related resources for Department of Defense (DoD) beneficiaries are few, but one that is available is MilTICK, a free tick ID & testing service for DoD personnel & their dependents in the continental US. 🔗Read more: buff.ly/3Yvwl6E #MilTICK #Ticks #TicksSuck

We are so grateful for donors like Meghan! We could not do this project with out you and all the other people and families who have donated tissue. Thank you! Center for Lyme Action Bay Area Lyme Foundation LymeDisease.org

My "Top 5" list of books about chronic Lyme disease. shepherd.com/best-books/peo…

Mold can cause some surprising symptoms & presents unique challenges because it is airborne & hard to detect. Tune into our latest Ticktective podcast as host Dana Parish interviews Michael Rubino, founder of HomeCleanse, who shares his expertise in working w/ people who are

California's Board of Pharmacy (BOP) is trying to take away your access to certain alternative treatments. This could have ramifications for those outside of Calif as well. Sign the petition and read how you can give comments: lymedisease.org/defend-access-…

People with chronic symptoms of Lyme disease, often dismissed by mainstream medicine, now face an additional hurdle: ruling out long Covid. But, paradoxically, interest in long Covid is fueling needed research... My latest, w/ Alia Sajani, PhD: statnews.com/2024/09/09/lym…

California's Board of Pharmacy (BOP) is poised to restrict your access to IV glutathione, Vit. B12 shots, and other treatments relied on by chronically ill patients. You don't have to be in CA to sign the petition: change.org/stopthebop foxla.com/video/1514011

DON'T MISS OUT: Dr. David Putrino of Icahn School of Medicine at Mount Sinai is joining us for a #webinar tomorrow (9/12) to discuss how his research team is finding ways to help patients address complex chronic illnesses like #LongCovid & #MECFS & persistent #LymeDisease RSVP: projectlyme.org/event/recovery…

If you are actively involved or considering becoming an advocate, this Meet-Up is for you! September 17, at 8 pm Eastern/5 pm Pacific. Hosted by Generation Lyme and Center for Lyme Action lymedisease.org/event/advocacy… via Center for Lyme Action

Shocking facts about NIH #Lyme funding (2013-2023): ID'd in 1977, this infectious disease still has no effective vaccines, tests, or treatments yet: —$6.8M was spent trying to prove it’s an autoimmune syndrome. —$9.8M was spent studying “Lyme arthritis.” —$18.6M went to Allen

Important new study from MyLymeData. Most people with persistent Lyme are excluded from PLD trials. mdpi.com/2227-9032/13/1…

"Overly stringent criteria exclude the very patients we need to study."