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Very excited to be a part of this important work!

Quality of life researchers enjoying quality of life at the recent ASID 2019 conference in Adelaide #ASID2019

New Raine Study Research: The contributions of fetal growth restriction and gestational age to developmental outcomes at 12 months of age: A cohort study authors.elsevier.com/a/1aOcQ1M28BMZ… telethonkids

We have just shown that children with severe disability who are given a gastrostomy then have fewer hospitalisations for all causes except chest illnesses, helping them to have stronger lives. authors.elsevier.com/c/1aRmA55CrwISd #intellectualdisability #gastrostomy #qualityoflife

The pose at the beginning - w/ arms+web spread out like umbrella while drifting passively - is probably a feeding posture. When arms are spread, the long finger-like cirri ( 1 pair for each sucker along length of all arms inside its web) can be visible (Best glimpse in vid ~:28)

Well done Jack, great to be working with you and the others these last few years! Jenny

We have mobilized our global therapy experts to put together practical enrichment therapy ideas to use at home. Check out all these ideas and let us know what’s working for you. rettsyndrome.org/home-participa…

So pleased to work with therapist across the globe and with Rettsyndrome.org to support children with complex needs in home participation during social isolation - rettsyndrome.org/home-participa…

Please watch, so gorgeous, so uplifting, so inspiring! Such a joyful ode to what we want back and a reminder to think and act to reform other things that we might to improve - post COVID-19!

Proud!!

Very proud to work with the International Foundation for CDKL5 Research who ran their family education and awareness conference online this year! Very honoured to start their conference talking about quality of life and living well at home! CDKL5USA - IFCR youtube.com/channel/UCim6I…

ICCRN has received a NIH U01 grant to clinically validate #biomarkers & #clinical outcome assessment measures appropriate for use in upcoming #clinicaltrials. This is a major milestone for the #CDKL5 community. Thank you to everyone that made this possible cdkl5.com/news-list/nih-…

Telethon Kids researchers are calling for a greater focus on creating opportunities for children with disability to participate in the community, after finding a clear link between participation and better quality of life. telethonkids.org.au/news--events/n…

Beautiful Charlotte and family, we need answers!

Well done for this report, untangling pathways for readier access to evidence in treatments!

Our SR of early #motorfunction as a transdiagnostic marker of atypical #neurodevelopment is now out in Pediatrics. Delighted to lead this with superstar Dr Lim! Early Motor Function of Children With Autism Spectrum Disorder: A Systematic Review pediatrics.aappublications.org/content/early/…