🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

There are no words to describe my emotions and gratitude to Martyn Clarke right now. They will come. So many people to thank. Martyn’s vision for this epic MND777 Challenge, his colossal commitment, drive and dedication to the MND Community is off the scale 👏👏❤❤🥁🥁

Our Director of Engagement, Richard Evans, spoke with Sky News earlier about access to tofersen for those with the SOD1 variant of MND. He was joined by Seckin, who has #MND and has been told she can’t have tofersen due to NHS resource constraints. This is simply unacceptable.

If you knew someone with a life-shortening condition, but they couldn’t get access to a drug that could change their life, would you do anything you could to help? Today, we’re asking you to do something very simple 👇 act.mndassociation.org/2025-prescribe…

Last call for anyone interested in the Great North Run this year. £65 entry fee and £400 sponsorship to raise. Closing date is Friday !! The date of the race is Sunday 7th September. If interested, please get in touch via [email protected] or via our social channels

Nearly at 10,000 signatures! Thank you so much to everyone who has supported so far. If you haven't already, please sign our petition on access to tofersen here: act.mndassociation.org/2025-prescribe…

Many MotorNeuroneDisease Patients United2EndMND aren't aware of #CHC NHS Continuing Healthcare Funding. Those that do often find it a daunting process West Sussex North MNDANorwichWaveney Mid Kent Branch MNDA MNDA West London & Middlesex branch MNDA CARDIFF & VALE MNDA South London Branch MNDA North West Kent Pls tell your members about this referral system.

People with SOD1 #MND deserve access to life-changing treatment. As Chair of the APPG on Motor Neurone Disease I am supporting the call to make tofersen available now. ✍️ Sign the petition here: act.mndassociation.org/2025-prescribe… #PrescribeLife

🔬RESEARCH SNAPSHOT📢 A recent study has uncovered that a breakdown in communication between structures in nerve cells can disrupt their ability to produce energy. This could potentially lead to new treatment targets for #MND/#ALS 🔎Read more👇 ukmndri.org/2025/05/20/res…

"Every day I wait. More of my independence is lost." Watch Seckin McGuirk, who is living with SOD1 #MND, speak about the importance of accessing #tofersen. And if you haven't already, you can sign the #PrescribeLife petition here: act.mndassociation.org/2025-prescribe…

A productive Monday at our Scientific Advisory Meeting 🔬 These meetings bring together some of the UK's top MND researchers, as well as people living with MND, to share knowledge, enable critical assessment of the latest trends and help us keep pace with advances in research 🤝

Nearly at 14,000 signatures! Thank you so much for continuing to support our #PrescribeLife petition to help make #tofersen available to people living with SOD1 #MND. If you haven't already, you still have time to sign: act.mndassociation.org/2025-prescribe…

Please continue to sign and share our petition on access to #tofersen👇 act.mndassociation.org/2025-prescribe…

Want something to look forward to after Summer? Fancy this ⬇️? You can really help the MND community simply by joining us for this special Fundraising Dinner with a twist🤣🎤🎶. ⭐Which celebrities are behind the mask? All details ⬇️ tickettailor.com/events/concier…

🚨We’ve launched a new home for the MND Register! The MND Register is the first comprehensive source of information about people with #MND/#ALS. We hope that by counting every person with MND, we can learn more about the disease. Learn more below🔗 mndregister.ac.uk

We've reached over 15,000 signatures! Thank you to everyone who has supported our #PrescribeLife petition to help people with SOD1 #MND to access #tofersen. Let's keep it going! 👇 act.mndassociation.org/2025-prescribe…

We are pleased to announce that the UCL Queen Square Motor Neuron Disease Centre Sixth Hybrid #ALS/#MND International Symposium in Partnership will be held on Friday 5/9/25. The theme is Translating Targets to Therapies. To register, click below⬇️ eventbrite.co.uk/e/ucl-queen-sq…

Do you have questions about how the MND Register works? Why is it so important? And how can researchers use it? 🙋‍♂️ Andrea Bondi, project manager of the MND Register at the UK MND Research Institute (UK MND Research Institute), has the answers! ☑️ #MND

We are close to reaching 17,000 signatures! Please continue sharing our #PrescribeLife petition using the link below to help people with SOD1 MND access tofersen. act.mndassociation.org/2025-prescribe…

A new digital monitoring platform has been launched to open up access to research for people living with MND in the UK, and allow participants to take part in studies from the comfort of their own home. Read more 👇 💻#MND

Want to know more about NHS Continuing Healthcare Funding (CHC)? Pls join support group TOMORROW, 11AM where we share our experiences to help @MNDpatients & their carers apply for this non-means tested, but often difficult to get, funding. Details to join the call are on poster.