80% of people wouldn’t know what to do if someone was to have a seizure. Don’t be one of them. Remember CARE: Comfort, Action, Reassure, Emergency. If you have epilepsy download our free Seizure First Aid Guide for your phone lock screen. epilepsy.org.uk/news/festivals…

New data from the #MyNeuroSurvey by The Neurological Alliance reveals people with epilepsy continue to face serious challenges in getting the support they need. We need action, please sign the open letter now. epilepsy.org.uk/news/neuro-sur…

🚨 Urgent PIP Update! 🚨 Thanks to YOU, we’ve reached 40% of MPs with our #DontTakeThePIP form! 🙌 But the vote’s next week – we need one final push: ✅ Fill in the form if you haven’t ✅ Ask your MP to vote NO Let’s protect PIP – together epilepsy.org.uk/DontTakeThePIP

We stand with our ambassador Paula McGowan as she and Tom mark a major milestone in their campaign for safer, more personalised care. Find out more with our resource for people with epilepsy and learning disabilities: epilepsy.org.uk/professional/b… bbc.co.uk/news/articles/…

Epilepsy Action are very excited to launch our Northern Ireland Epilepsy Professionals Network, open to any health professional with an interest in epilepsy. Find out more here 👇 eventbrite.co.uk/e/epilepsy-act…?

The Waiting List Reimbursement Scheme is now live. For information please visit the dedicated webpage - Waiting List Reimbursement Scheme - DOH/HSCNI Strategic Planning and Performance Group (SPPG) For support, phone 028 9536 8303 from 10am-4pm, Monday-Friday #HSCNI

Parliament has passed the government’s welfare bill after another big U-turn on PIP, meaning no changes will be made to this benefit at this time. Read more on our website: epilepsy.org.uk/news/pip-u-tur…

Thanks to Susan and Anna from Belfast for raising awareness of the urgent need for redress for those affected by sodium valproate (Epilim). This medication has had devastating effects on so many families who deserve justice.

Only 1 in 5 people living with a neurological condition who responded to My Neuro survey 24 /25 felt supported by the health system in Northern Ireland: ninca.org.uk/news/neurologi…

5 years since the Cumberlege Report. No redress. No justice. Becci, Susan & Anna have a message for the government. Watch now: youtu.be/iPS5gxmPLbw Write to Wes Streeting and demand action.

See below link to a survey to support the next meeting of the Disabled People’s Parliament on 21st Nov at Stormont. It is an opportunity for disabled people to have a say on the issues that affect their lives. consult.nia-yourassembly.org.uk/engagement/dis… Closing date is Mon 4th Aug. Please share.

⭐️Reminder Department of Health are hosting public events as part of the consultation on the final report of the Regional Review of Neurology Services 17 July 7-9pm, Canal Court Hotel, Newry 23 July 7pm-9pm, Online (MS Teams) ➡️More information health-ni.gov.uk/news/consultat…

The Health Minister said planned investment in primary care will create hundreds of thousands of additional patient appointments in NI. Minister Nesbitt has published an implementation plan for the Multi-Disciplinary Team (MDT) Programme. ➡️Read more: health-ni.gov.uk/news/nesbitt-s…

This report is a great example of collaboration between NINCA’s 20 charity members and genuine co-production with over 270 people with lived experience. NINCA doesn’t receive any funding – we rely on the time, energy, and commitment of our members, all on top of their main roles.

. Danny Donnelly MLA welcomes Neurology Review and urges urgent action from Health Minister. Read more here: allianceparty.org/donnelly_welco…

🚨EARLY-BIRD RATE DEADLINE: 28TH OF AUGUST ILAE British Branch 2025 Clinical Epilepsy Course for doctors in training & others 📍Austin Court, Birmingham 📅22nd November Register here: ilaebritish.org.uk/events/2025-il… ⭐️6 CPD points awarded by the RCP UK

Is your Epilepsy Specialist Nurse a star? Nominate one of our fantastic nurses for a special Epilepsy STAR award: mcrbkba1yzj.typeform.com/ESNSTARAward

🚨 New Pivotal tracker report reviews recent progress by the Northern Ireland Executive on the Programme for Government and other priorities Read the report here pivotalpolicy.org/assets/files/p…

Exciting news! Epilepsy Action's first ever billboard campaign in Northern Ireland starts today. We have taken over the huge electronic billboard in Arthur Street, near Victoria Square. If you're in the area, please take a photo and share it with us 🤩

The Department of Health are currently developing a new policy to support people on waiting lists and would like to hear from patients currently on a waiting list, as well as families and carers of those patients about what could help them: consultations2.nidirect.gov.uk/doh-1/help-us-…