We are attending a major international medical conference on #OA/#TOF in Cincinnati this week. TOFS’ representatives have joined forces with our colleagues from EAT and are looking forward to taking part and engaging with medics from across the world #QUAD2022 #ea #tef

Dr. Corné de Vos, Pediatric Surgeon at Tygerberg Children‘s Hospital, Cape Town, explains at the #QUAD2022 conference what the most important value of patient support groups is for her. #esophagealatresia

The #QUAD2022 conference was a great success! We, as experts by experience, are glad to share our knowledge and challenge the medical experts to move together from Good Practice to Best to Next Practice when treating #esophagealatresia. See you at the next conference in 2025!

Congratulations to TOFS' Trustee, Graham Slater on being awarded the Esophageal Atresia World Award from EAT. This is Graham's 2nd award this year. #ea #oa #tof #tef tofs.org.uk/2022/10/graham…

Did you get your #LondonMarathon #ballot place? If you did, we’d love you to join our team♥️! Not successful? Apply for a TOFS #charity place & support people born unable to swallow🏃‍♀️ tofs.org.uk/event/london-m…

Graham Slater receives the Esophageal Atresia World Award at the Quad 2022 Conference. youtu.be/zyVhoDiBoCA via YouTube

we-are-eat.org/innovative-car…

Eberhard Schmiedeke, paediatric surgeon in Klinikum Bremen-Mitte, Germany, and Dalia Aminoff, head of AIMAR, the Italian patient organization for ARM, about the Advantages of centralization of care: youtu.be/9XRpeXTpbx8

we-are-eat.org/resources/curr… Prospective cohort of adolescents born with esophageal atresia in order to assess the long-term health outcome #TransEAsome #esophagealatresia #cracmo #afao

We are delighted to be at the #ESPGHAN23 patient forum. Together with @TOFS, our chairwomen awg KEKS represents the interest of patients with #esophagealatresia amongst medical professionals.

Forging new connections: Only 0.5 % of babies are born with a congenital disease, but 40 % of babies with #esophagealatresia are premature. Yesterday we were meeting up with Silke Mader, founder of EFCNI network, at #ESPHGAN to raise awareness for our cause.

We are very proud to announce that Graham Slater, former chair of EAT, was elected a member of the board of EURORDIS-Rare Diseases Europe, the alliance of over 1,000 rare disease patients organisations in Europe! Congratulations, Graham! #ESPHGAN23 #esophagealatresia #raredisease

we-are-eat.org/news/the-inter… A consensus guidelines on the transition of patients with oesophageal atresia–tracheoesophageal fistula #guidelines #INoEA

From Volunteer Awardee 👉 Board Member! Read our interview with Graham Slater where we discuss his journey into advocacy and the importance of volunteers in the rare disease community! 💜eurordis.org/interview-with… Nominations now open for🌟#EurordisAwards2024 EAT

Surgical Treatment of Esophageal Anastomotic Stricture after Repair of... sciencedirect.com/science/articl… BCH Department of Surgery #SoMe4PedSurg StayCurrentMD EAT jpedsurg

EAT at the #ERSCongress: We are proud to speak about the topic of #esophagealatresia as a lung disease on #PatOrgDay2023. European Lung Foundation

You may find the presentation now here on YouTube: youtu.be/NzcqqCeWTtc?si… #esophagealatresia

The joint meeting of the International Network of Esophageal Atresia (INoEA), the Pediatric, Adolescent and Adult Foregut Interdisciplinary Society (PAAFIS), and Aerodigestive Society will be held in Istanbul, Türkiye between April 30 and May 3, 2025. More: we-are-eat.org/news/inoea-paa…

Bronchiectasis Patient Conference 2024: Saturday 23 March 2024 from 10:00 to 16.00 CET. European Lung Foundation and @EMBARCnetworkonline present the annual bronchiectasis patient conference. Register here: europeanlung.org/en/get-involve…

Annual meeting of ERNICA: over 50 reps from healthcare providers from 25 EU countries & 10 patient reps from NL, UK, and DE gathered at University Hospital Wroclaw. Discussions ranged from nutrition in pediatric #esophagealatresia to transitioning care for adults.