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Sherie Smith tells the NIHR Nottingham BRC Conference how we did our James Lind top 10 research refresh! ⁦Question CF⁩ ⁦Evidence Based Child Health⁩ ⁦Question CF⁩

Delighted to share the refreshed James Lind top 10 research priorities for cystic fibrosis (CF). Thanks to the >1400 people who made this happen. Let’s go to work! Question CF Evidence Based Child Health cf/Aware ThoraxBMJ Cystic Fibrosis Trust

A little later than planned due to looking after lovely patients, but I’m so #excited to share our refreshed top ten priorities for #cysticfibrosis #research Thank you to everyone who helped at all stages of the process #questionCF #respisbest

Hugely hugely important and only thanks to an amazing response from the cf community. And a lot of work by Alan Smyth Nicola Rowbotham Cystic Fibrosis Trust and others!

Congratulations to Alan Smyth

If you have cystic fibrosis (CF) and you want to take part in clinical research then check out: cysticfibrosis.org.uk/get-involved/c… Find research studies which are suitable for you. Type "tummy" into the search box and you will find CF Tummy Tracker! Question CF cf/Aware Evidence Based Child Health

To go straight to CF Tummy Tracker and join a simple study to help us understand the gut symptoms experienced by people with CF, click here: cftummytracker.org Question CF cf/Aware Evidence Based Child Health Alex Horsley

Great piece from the UK Cystic Fibrosis Trust talking about how we implement the refreshed James Lind research priorities! Evidence Based Child Health Question CF cf/Aware cysticfibrosis.org.uk/news/refreshin…

Thrilled to be a guest at the King’s garden party at Buckingham Palace today! Many thanks to ⁦Cystic Fibrosis Trust⁩ for the recommendation! ⁦Evidence Based Child Health⁩ ⁦Question CF⁩ ⁦cf/Aware⁩ ⁦Cochrane CFGD Group⁩ ⁦Gisli Jenkins⁩ ⁦Prof. Nicholas Hart⁩

Thanks to the CF Trust for this fantastic support for CF Tummy Tracker! We welcome anyone with CF & aged over 12 years who would like to take part in the CF Tummy Tracker study. Details here: cftummytracker.org Question CF cf/Aware Evidence Based Child Health

Ryan has helped us understand what gut bacteria do in CF and made a fantastic contribution to our research. Thank you! cf/Aware Evidence Based Child Health Question CF

Apologies if you have experienced IT glitches with CF Tummy Tracker in recent days. Our QR code died and a gremlin crept into the registration screens! It is now sorted. Please sign up now if you have tried and failed! Question CF cf/Aware Evidence Based Child Health

Very pleased to see our latest Question CF paper online just in time for #ECFS2023 Collaboration between James Lind Alliance Nottingham Research Cystic Fibrosis Trust & most importantly the #cysticfibrosis community A refresh of the top 10 research priorities in cystic fibrosis thorax.bmj.com/content/early/…

Published this week! Our refresh of the JLA top 10 research priorities in cystic fibrosis. Thanks to everyone who took part! ⁦Question CF⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩ ⁦ThoraxBMJ⁩ #ECFS2023 thorax.bmj.com/content/early/…

Thanks Alan Smyth for presenting the Question CF priority refresh poster & adding many links to the newly published poster! I’m so sad to be missing #ECFS2023 in #Vienna but enjoying reading everyone’s Twitter posts. Poster 089 if anyone wants to visit.

Great talk on multisystem MRI scanning by Alex Yule from the University of Nottingham at #ECFS2023 ⁦Question CF⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩

Kudos to Florence Lockwood, medical student at UoN, for a beautiful explanation of faster orocaecal transit time in cystic fibrosis during ETI treatment @ECFS2023 Part of the GIFT-CF 3 study. ⁦Evidence Based Child Health⁩ ⁦cf/Aware⁩ ⁦Question CF⁩

Not the meds? Dr Helen Love warms up her audience with a programme of stretches prior to her giving a great talk at #ECFS2023! ⁦Question CF⁩ @cfaware ⁦Evidence Based Child Health⁩

Great to see this systematic review of gut symptoms in cystic fibrosis published open access today. Flatulence, bloating and fatty stool are the major culprits! tandfonline.com/doi/full/10.10… Evidence Based Child Health Question CF cf/Aware

A big thank you to the CF Trust for supporting the GRAMPUS-CF Strategic Research Centre! ⁦cf/Aware⁩ ⁦Question CF⁩ ⁦Evidence Based Child Health⁩ ⁦Cystic Fibrosis Trust⁩ ⁦Cystic Fibrosis Foundation⁩ cysticfibrosis.org.uk/news/this-is-s…