Epilepsy Action (@epilepsyaction) 's Twitter Profile
Epilepsy Action

@epilepsyaction

Epilepsy says stop. We say go.

ID: 17411532

linkhttp://www.epilepsy.org.uk calendar_today15-11-2008 19:16:43

34,34K Tweet

30,30K Followers

2,2K Following

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

We Want to Hear From You – Train Travel & Epilepsy! Have epilepsy? Share your experiences with trains and how seizures impact your journey. Drop your thoughts below or DM us – your feedback makes a difference! 💬 #Epilepsy #TrainTravel

We Want to Hear From You – Train Travel & Epilepsy!

Have epilepsy? Share your experiences with trains and how seizures impact your journey. 

Drop your thoughts below or DM us – your feedback makes a difference! 💬 #Epilepsy #TrainTravel
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Have epilepsy? Share your insurance experiences! Were you quoted high prices? Your feedback helps us push for fairer treatment with insurance companies. Tell us your story in the comments or DM us! 💬 #Epilepsy #Insurance

Have epilepsy? Share your insurance experiences! Were you quoted high prices? Your feedback helps us push for fairer treatment with insurance companies.

Tell us your story in the comments or DM us! 💬 

#Epilepsy #Insurance
Jess Austin (@jessaustin111) 's Twitter Profile Photo

On this day last year, the world lost the beautiful Sarah Whiteley to SUDEP - sudden unexpected death in epilepsy In honour of our beloved colleague, Metro are running an epilepsy focus, fundraising for SUDEP Action and Epilepsy Action metro.co.uk/2025/03/10/hel…

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Katie Spencer shares her personal journey with temporal lobe focal epilepsy in a powerful article via the Metro. Diagnosed at 19, Katie describes the sensations and challenges of living with daily seizures, often mistaken for daydreaming. Read more: metro.co.uk/2025/03/11/eve…

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Thank you to Barry Ahearn who has completed 27 half-marathons for Epilepsy Action, in memory of his sister Abbie. Abbie passed away in September 2023, after having a seizure so severe it sent her into cardiac arrest. He has raised nearly £22,000. epilepsy.org.uk/news/epsom-man…

Thank you to Barry Ahearn who has completed 27 half-marathons for <a href="/epilepsyaction/">Epilepsy Action</a>, in memory of his sister Abbie. 

Abbie passed away in September 2023, after having a seizure so severe it sent her into cardiac arrest. He has raised nearly £22,000. epilepsy.org.uk/news/epsom-man…
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Sir Kier Starmer has called the benefits system "unsustainable" ahead of the upcoming Spring Budget. Changes are expected to the welfare system which is being criticised for pushing disabled people, including those with epilepsy, into poverty. Read more: epilepsy.org.uk/news/starmer-c…

Sir Kier Starmer has called the benefits system "unsustainable" ahead of the upcoming Spring Budget.

Changes are expected to the welfare system which is being criticised for pushing disabled people, including those with epilepsy, into poverty.

Read more:
epilepsy.org.uk/news/starmer-c…
Craig Law 🏳️‍🌈🏴󠁧󠁢󠁷󠁬󠁳󠁿 (@djcraiglaw) 's Twitter Profile Photo

My lovely nephew is running the Oysho Cardiff Half 🏴󠁧󠁢󠁷󠁬󠁳󠁿 this year raising money for Epilepsy Action in memory of my gorgeous niece Chloe. It's a great cause and they supported us so well during Chloe's all too short life. Please give if you can ❤️ justgiving.com/page/cameron-l…

All On The Board (@allontheboard) 's Twitter Profile Photo

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition. #InternationalEpilepsyDay #Epilepsy #EpilepsyDay #allontheboard

Today is International Epilepsy Day. Sending love and support to everybody in the world with this condition.

#InternationalEpilepsyDay #Epilepsy #EpilepsyDay #allontheboard
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Happy #PurpleDay! Today is a day for spreading awareness and raising vital funds for those affected by epilepsy. We want to see what you're up to this Purple Day. Please share your photos with us. Visit our website for live Purple Day updates: epilepsy.org.uk

Happy #PurpleDay! 

Today is a day for spreading awareness and raising vital funds for those affected by epilepsy.

We want to see what you're up to this Purple Day. Please share your photos with us.

Visit our website for live Purple Day updates: epilepsy.org.uk
BCB 106.6fm (@bcbradio) 's Twitter Profile Photo

On #Bradford & Beyond from 4pm with Peg Alexander: Chancellor’s Spring Statement Reaction Bradford Buddies join us for their regular update Epilepsy Action chat Purple Day, the epilepsy awareness day which is today We find out more about Bradford Living Library

On #Bradford &amp; Beyond from 4pm with <a href="/TVRadioPeg/">Peg Alexander</a>: 

Chancellor’s Spring Statement Reaction

Bradford Buddies join us for their regular update

<a href="/epilepsyaction/">Epilepsy Action</a> chat Purple Day, the epilepsy awareness day which is today 

We find out more about Bradford Living Library
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

We spoke to Rima this morning about all things purple day and epilepsy awareness. Tune in from 1 hour 48 mins 20 seconds to find out more! bbc.co.uk/sounds/play/p0…

That's TV Solent (@ttvsolent) 's Twitter Profile Photo

'Individuals with epilepsy need to feel seen.' Today is #InternationalPurpleDay. Epilepsy Action said while awareness has improved, continued education is key to breaking stigma and ensuring better support.

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Overcoming the Impossible 🌟 Jess Warner-Judd’s journey from health challenges to a strong comeback is truly inspiring! We’re cheering her on as she steps into this new chapter. Wishing you all the best, Jess! 💪✨ theguardian.com/sport/2025/mar… #Inspiration

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

So… the King’s carrot recorder moment? Quirky, sure. But the nonstop flashing? BBC, why does this not have a trigger warning? It’s potentially dangerous for people with photosensitive epilepsy. Kinda avoidable - and definitely should come with a heads-up bbc.co.uk/news/videos/cn…

Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

Epilepsy Action and researchers from the University of Bath would like to speak to people with epilepsy and their carers about new developments in neurostimulation. If you'd like to find out more, or take part in an online focus group, please visit: mcrbkba1yzj.typeform.com/to/zPl825Rr

Epilepsy Action and researchers from the University of Bath would like to speak to people with epilepsy and their carers about new developments in neurostimulation. If you'd like to find out more, or take part in an online focus group, please visit:

mcrbkba1yzj.typeform.com/to/zPl825Rr
ARC North West Coast (@arc_nwc) 's Twitter Profile Photo

Have your say on epilepsy care in Cheshire & Merseyside 💬 Do you live with epilepsy, or support someone who does? Researchers at the University of Liverpool want to hear about your experiences with services at The Walton Centre. ➡️Full details below

Have your say on epilepsy care in Cheshire &amp; Merseyside 💬

Do you live with epilepsy, or support someone who does? Researchers at the University of Liverpool want to hear about your experiences with services at The Walton Centre.

➡️Full details below
ILAE BRITISH BRANCH (@ilaebritish) 's Twitter Profile Photo

🚨REGISTER NOW 🚨 ILAE British Branch 2025 Annual Scientific Conference 📍BICC in Bournemouth 📅15th -17th September Register here: ilaebritishconference.org.uk Approved by the Federation of the Royal Colleges of Physicians of the United Kingdom for 11 category 1 CPD credits⭐️

🚨REGISTER NOW 🚨

ILAE British Branch 2025 Annual Scientific Conference 

📍BICC in Bournemouth

📅15th -17th September

Register here: ilaebritishconference.org.uk 

Approved by the Federation of the Royal Colleges of Physicians of the United Kingdom for 11 category 1 CPD credits⭐️
Epilepsy Action (@epilepsyaction) 's Twitter Profile Photo

We were saddened to hear about Hannah. She was an inspirational mum to Alfie and made such a difference through her campaigning work and gave so many families a voice and advocate for change. Our thoughts are with Hannah's family at this very sad time. bbc.co.uk/news/articles/…