Esme's Umbrella (@esmesumbrella) 's Twitter Profile
Esme's Umbrella

@esmesumbrella

Esme's Umbrella Charity raising awareness of Charles Bonnet Syndrome (CBS), which causes visual hallucinations after sight loss

ID: 4027139308

linkhttp://www.charlesbonnetsyndrome.uk calendar_today23-10-2015 21:52:17

4,4K Tweet

1,1K Followers

756 Following

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Exciting News: Rebecca Lowe Joins Esme’s Umbrella as USA Ambassador! We’re thrilled to announce that Rebecca Lowe, renowned television presenter and host of NBC’s English Premier League coverage, has become the USA Ambassador for Esme’s Umbrella. #CBSAwareness #EsmesUmbrella

Exciting News: Rebecca Lowe Joins Esme’s Umbrella as USA Ambassador! 

We’re thrilled to announce that Rebecca Lowe, renowned television presenter and host of NBC’s English Premier League coverage, has become the USA Ambassador for Esme’s Umbrella. 
#CBSAwareness #EsmesUmbrella
Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Rebecca joins us just in time to amplify awareness across the Atlantic for Charles Bonnet Syndrome (CBS) Awareness Day on 16th November.

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Rebecca is Judith Potts' daughter. She is a television presenter and studio host for the US Broadcaster NBC's coverage of The English Premier League. She has been NBC's Daytime Host for 3 Summer and 3 Winter Olympic Games. She worked for the BBC, Setanta Sports UK and ESPN UK.

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Rebecca said: “I am truly honoured to take the role of USA Ambassador for Esme's Umbrella. My Mum's hard work over the last decade is staggering. She continues to help thousands of people improve their lives in the name of my wonderful Gran.

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

We’re excited to launch our new Children & Young People webpage, offering resources for those affected by Charles Bonnet Syndrome (CBS) and their supporters. 📲 Learn more here: charlesbonnetsyndrome.uk/children-young… #CharlesBonnetSyndrome #EsmesUmbrella #CBSAwarenessDay #CBS

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Also on our new webpage, watch a heartfelt video where Miles Northwood shares his experience of living with CBS as a child. It’s a powerful story that highlights the challenges young people face with this often-misunderstood condition.

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

CBS causes visual hallucinations in those with sight loss. In his video, Richard highlights the vital work Esme’s Umbrella does to support people living with this condition. 🎥 Watch the video here: facebook.com/reel/163157288… #CBSAwarenessDay #CharlesBonnetSyndrome

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

🎥Watch our animation on YouTube or our Children & Young People page: 🔗 youtu.be/kbJpn3dgfsc 🔗 charlesbonnetsyndrome.uk/children-young…

Miles Northwood (@cf_birmingham) 's Twitter Profile Photo

This is a short documentary film about #CharlesBonnetSyndrome #CBS that ⁦nina Chesworth⁩ and I were asked to help with bye ⁦Esme's Umbrella⁩ if you can spare 20 minutes, please watch it.⁦⁩ ⁦Emma JessonBlind Veterans UK⁩ youtu.be/s6CdM6XwX2I

Esme's Umbrella (@esmesumbrella) 's Twitter Profile Photo

Researchers at ARU are exploring how physical activity and sleep may affect visual phenomena in CBS. The survey is screen reader friendly, takes 10 minutes, and is open to UK residents with vision loss and CBS. 👉 Take part here: aruspsych.eu.qualtrics.com/jfe/form/SV_5v…

Lee Jones (@jones_lee1) 's Twitter Profile Photo

📢 New paper in ADC! We explored children's experiences of Charles Bonnet syndrome & worked with Esme's Umbrella to co-create child-friendly resources for patients and families Prof Mariya Moosajee Lara Ditzel-Finn ♡ Dr Leanne Thomas Pocklington Trust Learn more: adc.bmj.com/content/early/…

📢 New paper in <a href="/ADC_BMJ/">ADC</a>!
We explored children's experiences of Charles Bonnet syndrome &amp; worked with <a href="/esmesumbrella/">Esme's Umbrella</a> to co-create child-friendly resources for patients and families <a href="/MariyaMoosajee/">Prof Mariya Moosajee</a> <a href="/LaraDitzel_Finn/">Lara Ditzel-Finn</a> <a href="/L_Galrissian/">♡ Dr Leanne</a> <a href="/PocklingtonHub/">Thomas Pocklington Trust</a> 
Learn more:
adc.bmj.com/content/early/…
Sternberg Charitable Foundation (@ssternbergcf) 's Twitter Profile Photo

Judith Potts founded Esme’s Umbrella, the only charity dedicated to raising awareness of Charles Bonnet Syndrome. Judith continues her full-time, unpaid work. She speaks at conferences, runs events, contributes to Webinars, raises funds and writes extensively about the subject...

Judith Potts founded Esme’s Umbrella, the only charity dedicated to raising awareness of Charles Bonnet Syndrome. Judith continues her full-time, unpaid work. She speaks at conferences, runs events, contributes to Webinars, raises funds and writes extensively about the subject...