FH Europe Foundation (@fhpatienteurope) 's Twitter Profile
FH Europe Foundation

@fhpatienteurope

The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS

ID: 722347362937647105

linkhttp://www.fheurope.org calendar_today19-04-2016 08:53:26

3,3K Tweet

1,1K Followers

969 Following

Global Heart Hub (@globalhearthub) 's Twitter Profile Photo

May 4th is #HoFHAwarenessDay HoFH (Homozygous Familial Hypercholesterolaemia) affects individuals from birth and significantly increases the risk of heart disease from early in life. Despite its severity and the urgency to act, HoFH remains largely underdiagnosed and

May 4th is #HoFHAwarenessDay

HoFH (Homozygous Familial Hypercholesterolaemia) affects individuals from birth and significantly increases the risk of heart disease from early in life.
Despite its severity and the urgency to act, HoFH remains largely underdiagnosed and
Croí Heart & Stroke (@croiheartstroke) 's Twitter Profile Photo

Croí, as a member of FH Europe Foundation, is proud to support #HoFHAwarenessDay to help raise awareness of Homozygous FH (HoFH), a rare & severe form of Familial Hypercholesterolemia (FH). #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou

Croí, as a member of <a href="/fhpatienteurope/">FH Europe Foundation</a>, is proud to support #HoFHAwarenessDay to help raise awareness of Homozygous FH (HoFH), a rare &amp; severe form of Familial Hypercholesterolemia (FH).

#Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou
International Atherosclerosis Society (IAS) (@atherosociety) 's Twitter Profile Photo

Today is #HoFHAwarenessDay! #DYK? #HoFH carries significant challenges for patients and their families, necessitating early diagnosis and immediate intervention for optimal management. Learn more from FH Europe Foundation's video: bit.ly/42BboZR

Today is #HoFHAwarenessDay! #DYK? #HoFH carries significant challenges for patients and their families, necessitating early diagnosis and immediate intervention for optimal management.

Learn more from <a href="/fhpatienteurope/">FH Europe Foundation</a>'s video: bit.ly/42BboZR
International Atherosclerosis Society (IAS) (@atherosociety) 's Twitter Profile Photo

It's #HoFHAwarenessDay! IAS'guidance provides clinical recommendations for the detection and management of patients with #FH, its rare form #HoFH, as well as implementation strategies to optimize the deployment in models of care. Read more this #HoFHAwarenessDay:

It's #HoFHAwarenessDay! IAS'guidance provides clinical recommendations for the detection and management of patients with #FH, its rare form #HoFH, as well as implementation strategies to optimize the deployment in models of care.

Read more this #HoFHAwarenessDay:
National Lipid Association (@nationallipid) 's Twitter Profile Photo

The NLA is dedicated to advancing #HoFH research and supporting those affected. Explore our latest HoFH articles in @lipidjournal: 🔗ow.ly/1Yeh50VMgii 🔗ow.ly/eXQE50VMgij FH Europe Foundation #Unite4HoFH #UseHeart #FindHoFH #KnowHoFH

The NLA is dedicated to advancing #HoFH research and supporting those affected. Explore our latest HoFH articles in @lipidjournal:

🔗ow.ly/1Yeh50VMgii
🔗ow.ly/eXQE50VMgij

<a href="/fhpatienteurope/">FH Europe Foundation</a> #Unite4HoFH #UseHeart #FindHoFH #KnowHoFH
ParSirdi.lv (@parsirdi) 's Twitter Profile Photo

Šodien tiek atzīmēta diena, kas veltīta ļoti retai, iedzimtai sirds un asinsvadu slimībai – Homozigotai ģimenes hiperholesterinēmijai. Tā skar 1 no 200 000–300 000 cilvēkiem, un neārstēta var novest pie infarkta vai nāves jau bērnībā. Vairāk: parholesterinu.lv #HoĢH #HoFH

Šodien tiek atzīmēta diena, kas veltīta ļoti retai, iedzimtai sirds un asinsvadu slimībai – Homozigotai ģimenes hiperholesterinēmijai.
Tā skar 1 no 200 000–300 000 cilvēkiem, un neārstēta var novest pie infarkta vai nāves jau bērnībā.
Vairāk: parholesterinu.lv
#HoĢH #HoFH
Fundación HF (@fhfamiliar) 's Twitter Profile Photo

Nos unimos a International Atherosclerosis Society (IAS) y FH Europe Foundation para celebrar el Día de la #HF #Homocigota recordando la importancia de esta enfermedad rara, que podéis conocer mejor en nuestro webinar sobre Hipercolesterolemia Familiar Homocigota 2024 colesterolfamiliar.org/webinar-format… #Unite4HoFH

Nos unimos a <a href="/atherosociety/">International Atherosclerosis Society (IAS)</a> y <a href="/fhpatienteurope/">FH Europe Foundation</a> para celebrar el Día de la #HF #Homocigota recordando la importancia de esta enfermedad rara, que podéis conocer mejor en nuestro webinar sobre Hipercolesterolemia Familiar Homocigota 2024

colesterolfamiliar.org/webinar-format…

#Unite4HoFH
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

May the 4th is HoFH Awareness Day! 🌌 Join us in sharing stories about living with HoFH. 📲 Read more: fhef.org/news/uniting-g… #Unite4HoFH #HoFHAwareness #GalaxyForcesUnited #MayThe4thBeWithYou #KnowHoFH #RareDisease #StarsOfTheGalaxy FH Europe Foundation

May the 4th is HoFH Awareness Day! 🌌 Join us in sharing stories about living with HoFH. 📲 Read more: fhef.org/news/uniting-g… #Unite4HoFH #HoFHAwareness #GalaxyForcesUnited #MayThe4thBeWithYou #KnowHoFH #RareDisease #StarsOfTheGalaxy <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

Familial hypercholesterolaemia affects family members. Inheritance chances: 25% no genes, 50% one gene, 25% two genes. Don't let it dictate destiny! Visit: fhef.org/hofh-awareness…. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation

Familial hypercholesterolaemia affects family members. Inheritance chances: 25% no genes, 50% one gene, 25% two genes. Don't let it dictate destiny! Visit: fhef.org/hofh-awareness…. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

🌟 Meet Marius Sheepers, a HoFH Ambassador turning challenges into hope! Read his story: fhef.org/news/my-hofh-j… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #StarsOfTheGalaxy #HoFHAwarenessDay FH Europe Foundation

🌟 Meet Marius Sheepers, a HoFH Ambassador turning challenges into hope! Read his story: fhef.org/news/my-hofh-j… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #StarsOfTheGalaxy #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

HoFH is diagnosed via blood tests, exams, and family history. Learn how Chyrel was diagnosed youtube.com/watch?v=SMoaXU… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation

HoFH is diagnosed via blood tests, exams, and family history. Learn how Chyrel was diagnosed youtube.com/watch?v=SMoaXU… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

HoFH can feel isolating, but you're not alone. Together, we can break the silence and raise awareness. Download the toolkit! 👉 fhef.org/hofh-awareness… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation

HoFH can feel isolating, but you're not alone. Together, we can break the silence and raise awareness. Download the toolkit! 👉 fhef.org/hofh-awareness… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

Xanthomas and xanthelasmas are signs of excess cholesterol, often seen in childhood. These fatty deposits can cause discomfort and concern. Know the symptoms! #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation

Xanthomas and xanthelasmas are signs of excess cholesterol, often seen in childhood. These fatty deposits can cause discomfort and concern. Know the symptoms! #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

High LDL-cholesterol in Homozygous FH leads to early health issues. Early detection is crucial! Effective treatments exist. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation

High LDL-cholesterol in Homozygous FH leads to early health issues. Early detection is crucial! Effective treatments exist. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay <a href="/fhpatienteurope/">FH Europe Foundation</a>
RARE Revolution Magazine (@rarerevolutionm) 's Twitter Profile Photo

Before the day ends, meet HoFH Ambassadors and hear their powerful stories. Discover HoFH's impact on individuals and families: youtube.com/watch?v=-5wiuh… Thanks to RARE Revolution Magazine for the #Unite4HoFH opportunity! FH Europe Foundation

Before the day ends, meet HoFH Ambassadors and hear their powerful stories. Discover HoFH's impact on individuals and families: youtube.com/watch?v=-5wiuh… Thanks to RARE Revolution Magazine for the #Unite4HoFH opportunity! <a href="/fhpatienteurope/">FH Europe Foundation</a>
Dr Meral Kayikcioglu (@meralkayikcoglu) 's Twitter Profile Photo

Don’t miss! European Atherosclerosis Society New Consensus Statement! “Clinical Staging to Guide Actionable Management of Systemic Metabolic Disorders and Their Sequelae”Will be presented for the first time by Stefano Romeo 11:45 today – it! #EASCongress2025 #eas2025 #EASCongress2025

Don’t miss! <a href="/society_eas/">European Atherosclerosis Society</a> New Consensus Statement!
“Clinical Staging to Guide Actionable Management of Systemic Metabolic Disorders and Their Sequelae”Will be 
presented for the first time by Stefano Romeo 
11:45 today – it!
#EASCongress2025

 #eas2025 #EASCongress2025
Amelia Carro — Instituto Corvilud (@icorvilud) 's Twitter Profile Photo

BRUSSELS INTERNATIONAL DECLARATION ON Lp(a) TESTING & MANAGEMENT ✍️Integrate Lp(a) into Global Health Plans ✍️Ensure investment based on the demonstrated cost-saving to health systems ✍️Advocate systematic Lp(a) testing at least once in lifetime ✍️⬆️Lp(a) awareness and its impact

BRUSSELS INTERNATIONAL DECLARATION ON Lp(a) TESTING &amp; MANAGEMENT
✍️Integrate Lp(a) into Global Health Plans
✍️Ensure investment based on the demonstrated cost-saving to health systems
✍️Advocate systematic Lp(a) testing at least once in lifetime
✍️⬆️Lp(a) awareness and its impact
Borge G Nordestgaard (@bnordestgaard) 's Twitter Profile Photo

Florian Kronenberg, Magda Daccord, et al made this important & influential document fly: "The Brussels International Declaration on Lipoprotein(a) Testing and Management". Patients, politicians, clinicians & sceintists: MEASURE Lp(A) IN ALL! atherosclerosis-journal.com/article/S0021-… Open access

Florian Kronenberg, Magda Daccord, et al made this important &amp; influential document fly: "The Brussels International Declaration on Lipoprotein(a) Testing  and Management". Patients, politicians, clinicians &amp; sceintists: MEASURE Lp(A) IN ALL!
atherosclerosis-journal.com/article/S0021-…
Open access
International Atherosclerosis Society (IAS) (@atherosociety) 's Twitter Profile Photo

The Brussels International Declaration on Lp(a), endorsed by IAS, delivers an ambitious, five-year global strategy to make Lp(a) testing routine and ensure equitable management across populations. Read more in FH Europe Foundation's paper: bit.ly/4dLB4GW

The Brussels International Declaration on Lp(a), endorsed by IAS, delivers an ambitious, five-year global strategy to make Lp(a) testing routine and ensure equitable management across populations.

Read more in <a href="/fhpatienteurope/">FH Europe Foundation</a>'s paper: bit.ly/4dLB4GW
Finnish Atherosclerosis Society (SATY ry) (@ry_saty) 's Twitter Profile Photo

It’s a wrap! Big thanks to all the speakers and attendees for sharing great science and vibrant networking at the Finnish Society of Atherosclerosis meeting during the last two days. See you next year in Turku, June 11–12, 2026! 🇫🇮🫀 #Atherosclerosis

It’s a wrap!
Big thanks to all the speakers and attendees for sharing great science and vibrant networking at the Finnish Society of Atherosclerosis meeting during the last two days.

See you next year in Turku, June 11–12, 2026! 🇫🇮🫀 #Atherosclerosis