
FH Europe Foundation
@fhpatienteurope
The European Network of Patient Organizations for inherited lipid conditions #FindFH #FindHoFH #FindLpa #FindFCS
ID: 722347362937647105
http://www.fheurope.org 19-04-2016 08:53:26
3,3K Tweet
1,1K Followers
969 Following


Croí, as a member of FH Europe Foundation, is proud to support #HoFHAwarenessDay to help raise awareness of Homozygous FH (HoFH), a rare & severe form of Familial Hypercholesterolemia (FH). #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou


Today is #HoFHAwarenessDay! #DYK? #HoFH carries significant challenges for patients and their families, necessitating early diagnosis and immediate intervention for optimal management. Learn more from FH Europe Foundation's video: bit.ly/42BboZR



The NLA is dedicated to advancing #HoFH research and supporting those affected. Explore our latest HoFH articles in @lipidjournal: 🔗ow.ly/1Yeh50VMgii 🔗ow.ly/eXQE50VMgij FH Europe Foundation #Unite4HoFH #UseHeart #FindHoFH #KnowHoFH



Nos unimos a International Atherosclerosis Society (IAS) y FH Europe Foundation para celebrar el Día de la #HF #Homocigota recordando la importancia de esta enfermedad rara, que podéis conocer mejor en nuestro webinar sobre Hipercolesterolemia Familiar Homocigota 2024 colesterolfamiliar.org/webinar-format… #Unite4HoFH


May the 4th is HoFH Awareness Day! 🌌 Join us in sharing stories about living with HoFH. 📲 Read more: fhef.org/news/uniting-g… #Unite4HoFH #HoFHAwareness #GalaxyForcesUnited #MayThe4thBeWithYou #KnowHoFH #RareDisease #StarsOfTheGalaxy FH Europe Foundation


Familial hypercholesterolaemia affects family members. Inheritance chances: 25% no genes, 50% one gene, 25% two genes. Don't let it dictate destiny! Visit: fhef.org/hofh-awareness…. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation


🌟 Meet Marius Sheepers, a HoFH Ambassador turning challenges into hope! Read his story: fhef.org/news/my-hofh-j… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #StarsOfTheGalaxy #HoFHAwarenessDay FH Europe Foundation


HoFH is diagnosed via blood tests, exams, and family history. Learn how Chyrel was diagnosed youtube.com/watch?v=SMoaXU… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation


HoFH can feel isolating, but you're not alone. Together, we can break the silence and raise awareness. Download the toolkit! 👉 fhef.org/hofh-awareness… #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation


Xanthomas and xanthelasmas are signs of excess cholesterol, often seen in childhood. These fatty deposits can cause discomfort and concern. Know the symptoms! #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation


High LDL-cholesterol in Homozygous FH leads to early health issues. Early detection is crucial! Effective treatments exist. #Unite4HoFH #KnowHoFH #RareDisease #Maythe4thbewithyou #HoFHAwarenessDay FH Europe Foundation


Before the day ends, meet HoFH Ambassadors and hear their powerful stories. Discover HoFH's impact on individuals and families: youtube.com/watch?v=-5wiuh… Thanks to RARE Revolution Magazine for the #Unite4HoFH opportunity! FH Europe Foundation


Don’t miss! European Atherosclerosis Society New Consensus Statement! “Clinical Staging to Guide Actionable Management of Systemic Metabolic Disorders and Their Sequelae”Will be presented for the first time by Stefano Romeo 11:45 today – it! #EASCongress2025 #eas2025 #EASCongress2025



The Brussels International Declaration on Lp(a), endorsed by IAS, delivers an ambitious, five-year global strategy to make Lp(a) testing routine and ensure equitable management across populations. Read more in FH Europe Foundation's paper: bit.ly/4dLB4GW

