Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids (@fibroidsupport) 's Twitter Profile
Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids

@fibroidsupport

#Fibroid Network MultiRacial Patient Led Advocacy News, Research, Events #Exposome 20yrs campaign4betterEvidence, Outcomes, #Endometriosis . Not Pharma Funded

ID: 3386313705

calendar_today21-07-2015 21:01:47

73,73K Tweet

3,3K Followers

4,4K Following

Nomcebo Mkhaliphi (@nomcebo_mkhali) 's Twitter Profile Photo

Someone angrily said I must stop talking about PERIODS openly. Truth is PERIODS are normal. PERIODS are nothing to be ashamed of. PERIODS don't make us dirty. PERIODS a natural experience we have monthly and a reality for so many of us. STOP THE STIGMA

Zayd (@jaydbint) 's Twitter Profile Photo

As a Gynae SHO I had a referral from A+E about a girl with recurrent vaginal bleeding associated with abdo pain which happened monthly and self resolved. The doc thought it was weird because she didn't have a coil or any contraception. It was her period. She was on her period.

Zayd (@jaydbint) 's Twitter Profile Photo

I feel like as doctors we're so used to exam culture and looking for tricks in questions or complicated explanations because "it can't be that simple can it?" Whereas in reality, it's usually the simple explanation which is the correct one.

ITV News Meridian (@itvmeridian) 's Twitter Profile Photo

Mothers speak of harrowing ordeal at Oxford maternity unit as hundreds of families call for inquiry itv.com/news/meridian/โ€ฆ

Rebecca Matthews (@rmatthewspsych) 's Twitter Profile Photo

It took such a lot of strength & bravery for us all to speak out. The Families Failed by #OxfordUniversityHospitals Maternity Services group now has 534 harmed families sharing experiences of medical negligence, inadequate care, & trauma. This is systemic harm.#MaternitySafety

Rebecca Matthews (@rmatthewspsych) 's Twitter Profile Photo

For any #Oxfordshire families who have experienced pain, neglect, or trauma due to OUH, youโ€™re not alone. This is about ensuring safety for families now, & in the future. Contact us at familiesfailedbyOUH.co.uk #MaternitySafety #BirthTrauma #MakeOxfordshireMaternitySafe

Rebecca Matthews (@rmatthewspsych) 's Twitter Profile Photo

Partha S Kar ๐Ÿ‡ฎ๐Ÿ‡ณ๐Ÿ‡ฌ๐Ÿ‡ง๐Ÿ๐ŸŽฅ Thank you โค๏ธ. Sadly, since I started the Oxford maternity campaign in June 2024 itโ€™s been a steep education in institutional betrayal, reputation management, silencing & PR. The onus should be on the healthcare providers to investigate and take action- not harmed families!

DrVK (@drvalters) 's Twitter Profile Photo

1/ NHS uses the broad label โ€œclinician.โ€ But letโ€™s ask an uncomfortable question: ๐Ÿ‘‡ When someone is working as a 'GP clinician', an 'EM clinician,' or in anaesthetics etc...-how do we know if they are in fact a Dr? The answer is: we donโ€™t. And that ambiguity has consequences.

1/
NHS uses the broad label โ€œclinician.โ€ But letโ€™s ask an uncomfortable question: ๐Ÿ‘‡

When someone is working as a 'GP clinician', an 'EM clinician,' or in anaesthetics etc...-how do we know if they are in fact a Dr? The answer is: we donโ€™t. And that ambiguity has consequences.
Rebecca Matthews (@rmatthewspsych) 's Twitter Profile Photo

James Titcombe When I was discharged from OUH maternity in Nov โ€˜21 I was handed a QR code for feedback. Scanned it. Broken link. Sums it up. #MakeOxfordshireMaternitySafe #MaternitySafety

Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids (@fibroidsupport) 's Twitter Profile Photo

#Endometriosis Patient Pathways: โ€œI was (put)in a Medical Menopause for 11 years because medics didn't know how to treat my painful conditionโ€ 9 surgeries, 13 different types of contraceptive pill, the coil,& a hysterectomy + Guideline still not Audited!! walesonline.co.uk/news/wales-newโ€ฆ

Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids (@fibroidsupport) 's Twitter Profile Photo

Surgical Menopause in Young Women: The Medical Epidemic No One Is Talking About โ€œAttaching the word โ€œmenopauseโ€ to a young woman still in her prime.. I am 30 yrs old & Iโ€™m in surgical menopause. This shouldnโ€™t be happening to meโ€ Surmeno Connection #obgyn thesurmenoconnection.com/single-post/20โ€ฆ

Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids (@fibroidsupport) 's Twitter Profile Photo

Surgical Menopause in Young Women: The Medical Epidemic No One Is Talking About โ€œAttaching the word โ€œmenopauseโ€ to a young woman still in her prime.. I am 30 yrs old & Iโ€™m in surgical menopause. This shouldnโ€™t be happening to meโ€ Surmeno Connection #obgyn thesurmenoconnection.com/single-post/20โ€ฆ

Fibroid New Research (@fibroidnetwork) 's Twitter Profile Photo

Women often get hysterectomy for #Fibroids, after, Dr ๐Ÿ’Š& Surgery Treatment failures(iatrogenic),after using low quality treatments, with serious side effects eg: Parasitic fibroids(after open morcellation) Drugs Fail Botched Endometrial ablation Embedded IUDs National Audit now

Fibroid Network UK ๐Ÿ’™๐Ÿ’œ๐Ÿ‡ฌ๐Ÿ‡ง #Fibroids (@fibroidsupport) 's Twitter Profile Photo

Sonata Study with 3 yr Median follow up of women having intrauterine ultrasound guided Radiofrequency Ablation of fibroids, found 45% had Further Surgery which was often Hysteroscopic fibroid reOps.13% had hysterectomy. โฌ†๏ธReadmissionsโฌ‡๏ธCost Effectiveness? pmc.ncbi.nlm.nih.gov/articles/PMC97โ€ฆ

Fibroid New Research (@fibroidnetwork) 's Twitter Profile Photo

A 45% ReOp rate for Fibroids, after Sonata Ablation, is considered acceptable for Fibroid Patients. Itโ€™s the current UK standard of care. =โฌ†๏ธMore returns to Outpatient Waiting Lists. =โฌ†๏ธMore Unaudited Hysteroscopies, with or without adequate Op Pain Relief pmc.ncbi.nlm.nih.gov/articles/PMC97โ€ฆ

Fibroid New Research (@fibroidnetwork) 's Twitter Profile Photo

Keeping Hysteroscopies unAudited , hypothetically, hides, the Complication Rates & Failures of Previous surgeries &๐Ÿ’Š,& Prevents Accurate calculation of Cost effectiveness using National Audit statistics APPG for First Do No Harm @hqip NCEPOD Hysteroscopy Action Sling the Mesh x.com/fibroidnetworkโ€ฆ

Matt Discombe (@mattdiscombe) 's Twitter Profile Photo

NEW: Major trust warned over A&E and maternity failings CQC says above-average UEC performer's data is 'unreliable' due to delays in logging patients. Story: hsj.co.uk/trust-warned-oโ€ฆ

NEW: Major trust warned over A&E and maternity failings

CQC says above-average UEC performer's data is 'unreliable' due to delays in logging patients. 

Story: hsj.co.uk/trust-warned-oโ€ฆ