🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🔬 Celebrating Women & Girls in Science - Day 3! Meet Julie Silvestri, Honorary Prof at Queen's University Belfast 🎓 & CBE Consultant Ophthalmologist at Belfast Trust. Click the link below to hear her journey and advice for women in STEM, based on 25+ years of experience! fightingblindness.ie/news/internati…

✨Celebrating Girls & Women in Science - Day 4: Today we highlight @AvrilWatson, Postdoc in Prof Sarah Doyle lab Trinity College Dublin, whose research develops 3D retinal models to study eye conditions. Hear her story & advice in our special audio feature- link below! fightingblindness.ie/news/internati…

👩‍🔬 Final Day of Our Women & Girls in Science week-long series! Today, meet Dr. Patrizia Colucci, Postdoc at Prof. Breandán Kennedy UCD lab, UCD Conway Institute, studying drug therapies for vision loss using zebrafish models. Hear her story & advice at the link below! fightingblindness.ie/news/internati…

Eye Surgeon Prof David Keegan Mater Hospital & his patient Stuart Haxell, who received #oculargenetherapy in Nov'24 coming up Today with Claire Byrne RTÉ Radio 1 to talk about the sight restoration outcome Fighting Blindness Vision Ireland #IRD

Wonderful to see Luxturna gene therapy (RPE65 gene) for sight loss being used in Ireland, and how it can be effective in adults. Great work by Mater Hospital hospital, Prof David Keegan, and wider support from the Fighting Blindness charity.

This is what innovation means - Ground-breaking new gene therapy for blindness on RTÉ Radio 1 - it takes a lot of effort to get this far - stay the course and keep the faith. Hope for all living with rare diseases! Jennifer Carroll MacNeill TD Chief Medical Officer Dr Colm Henry, CCO HSE Ireland rteradioapp.page.link/vabavbRM7shyTA…

☕️Following the success of January’s AMD Tea & Coffee Afternoon, we’re making 'AMD and Tea' a monthly event! Next meetup: Monday Feb 24, 11 AM, at 21 Hill Street, Dublin 1. 👉RSVP: email at [email protected] or ring at 01 6789 004. More info: fightingblindness.ie/news/age-relat…

📢Luxturna, the 1st gene therapy for IRDs, treated its 1st patient in Ireland! Stuart Haxell, a visually impaired tennis athlete diagnosed through our #Target5000 program, received his treatment at Mater Hospital Dublin. Featured on Virgin Media News below: shorturl.at/091R5

Well done to our former Vice-President of our Board of Directors, Breandan Ward, and everyone at Fighting Blindness for their part in this amazing achievement! Congrats all. #BlindTwitter

A historic milestone for the vision loss community, offering hope to individuals with LCA and RP🌟We are incredibly proud to have contributed in this through our Target 5000 genetic diagnosis program, our commitment to funding research and advocating for life-changing treatments.

Worldwide, there are 6,000 rare diseases and 300 Million people living with a rare disease - It is not rare to have a rare disease!

In 1983 our founders imagined treatments for rare, genetic eye conditions were possible. 🎉 Today, on Rare Disease Day, we can celebrate the first gene therapy delivered by the HSE for one of these conditions: rte.ie/news/ireland/2… Investment in research works! Rare Disease Day

Join our free online workshop on Science Communication & Advocacy! 🗓️Next Wednesday March 12, 10 AM - 12 PM. 🔬For early-stage researchers & clinicians in IRDs, AMD & rare diseases. 🔔Spaces are limited: Learn more & Register at the Eventbrite page below! …ommsandadvocacyworkshop.eventbrite.ie

This #IWD2025, we celebrate the incredible women leading the charge in #ChildhoodBlindness research University College Dublin UCD School of Veterinary Medicine Dr Alison Reynolds Alison Reynolds From #JuvenileBlindness to tackling #GeneticBlindness through #GeneticDisorders studies with #ZebrafishResearch, truly inspiring!

Two days to go📢 Don't miss our free online workshop on Science Communication & Advocacy this Wednesday 10 AM – 12 PM! Suitable for early-stage researchers and clinicians in IRDs, AMD & Rare Diseases. Limited spaces available! Learn more and register at the Eventbrite page below.

Donegal County Library Service and the Frances Browne Literary Festival are inviting blind and vision-impaired storytellers, resident in Ireland, to get involved! Learn more about the events at the post below. 👇👇

Wrapping up March with a look back at our Science Communications & Advocacy Workshop, designed for early-stage researchers & clinicians in IRDs, AMD, & Rare Diseases. Join Retina Network Ireland to stay up-to-date with our next activities! More info below: fightingblindness.ie/news/science-c…

This week our Research Officer, Shannon Lee, joined the ProgRET Marie-Curie meeting in Montpellier to co-lead a session on Public & Patient Involvement (PPI) with Nabin Paudel from Retina International. A huge thank you to the hosts & all involved for this inspiring event! #ProgRET

🌟Meet Finalist #5 @johnfehilly🌟 John is using zebrafish🐟to model human vision diseases—bringing tiny fish to the frontline of genetic eye research 👁️‍ See his talk in person or online at the ENGAGE Grand Final 5pm next Wed April 16➡️ bit.ly/3EUekHj

We were delighted to attend the Rare Disease Research Conference 2025 at University College Dublin yesterday, organised by Rare Disease Clinical Trial Network, Ireland. A great opportunity to connect with global experts, clinicians, researchers, patient advocates, and other rare disease stakeholders. #RareDisease #VisionLoss