Thank you to The National Lottery Community Fund Cymru for #NationalLottery funding to help our community by Supporting families living with Sickle Cell & Thalassemia😊❤️🙏🤩

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This is heartbreaking 💔 #BlackLivesMatter

Thank you Jane Hutt for your support 🙏

Thank you The National Lottery Community Fund Cymru for all the funding and support🥰 We couldn’t thank you enough 🤩. BBC Children in Need inyourarea.co.uk/news/p/6061c79…

Being a young carer can be emotionally tough, whether it’s worrying about schoolwork or a loved one. Ore looks after her sister and was a carer for her mother, who sadly passed away 2 years ago. Thanks to you, @CymruSickleCell could be there to provide crucial support 💛

Today is Stephen Lawrence day. A child killed by racists 29 years ago 😢. Today we remember his life, acknowledge his legacy and pledge to do even more to challenge racism today and in the future ✊🏾❤️#StephenLawrenceDay

Thank you to BBC Children in Need,The National Lottery Community Fund Cymru, Comic Relief for giving us the funding that makes trips like this possible. This weekend we were able to take the kids and they family’s to CAN Family Party for a fun day🎉😃

Having a fun meet up with our friends from 2SC😆😊 Thank you BBC Children in Need, The National Lottery Community Fund Cymru & Community Foundation Wales

Thank you to our partners EYST- Ethnic Minorities & Youth Support Team Wales for organising an amazing Family Fun Day 😊✨BBC Children in Need The National Lottery Community Fund Cymru

This weekend there is an exciting event where you will have a chance to see virtual footage - of what happens inside the body during a sickle crisis. Please join us on Saturday 30th March At: Butetown Community Centre. Time: 2pm - 4pm Further information please contact us

Let’s start a conversation about Sickle Cell and Thalassemia This Saturday at Butetown Community Centre Everyone is welcome 🤗 We can’t wait to see you all soon 😊💕 Cardiff and Vale University Health Board The National Lottery Community Fund Cymru BBC Children in Need Sickle Cell Society Croydon Sickle Cell & Thalassemia Support Group @noahsarkcharity

✨lets talk about anaemia! ✨ This happened on the 30th of march where we learnt about information on nutrition, growth, iron and lifestyles. As keeping healthy can prevent problems for those with sickle cell and thalassemia. We thank everyone that came to our great event.

theguardian.com/society/articl… UK Thalassaemia Society Homerton Sickle Cell & Thalassaemia Services #thalassaemia TIF Ravinder Dudeja ⭐️Foundation Against Thalassaemia Ravinder Dudeja ⭐️Foundation Against Thalassaemia Globally Integrated Foundation for Thalassaemia Thalassaemia and Sickle Cell Australia THALASSEMIA N ME Sickle Cell & Thalassaemia Support Project Friends of Cymru Sickle Cell and Thalassaemia Thalassaemia & Sickle Cell Society of NSW Inc. thalassaemiaTPC

We enjoyed joining Friends of Cymru Sickle Cell and Thalassaemia on Saturday to attend their event and meet some of the participants themselves. Many thanks for the invitation - we're pleased to be funding the project through the Cardiff Youth Led Grant Cardiff Youth Led Grant Panel. Good luck with the rest of the project!

📣Register now for this free event at Butetown Community Centre & online, Saturday 16th November: an education event about Sickle Cell & Thalassaemia, with opportunities to learn and network. ticketsource.co.uk/wales-gene-par… UK Thalassaemia Society Adelphi Genetics Forum Diverse Cymru ButetownPavilionHub Friends of Cymru Sickle Cell and Thalassaemia

🧬🩸🏴󠁧󠁢󠁷󠁬󠁳󠁿 Happening on Saturday 16th November 10:00 to 15:00/3:00pm GMT Sickle Cell Society Adelphi Genetics Forum Butetown Community Centre EYST- Ethnic Minorities & Youth Support Team Wales UK Thalassaemia Society Friends of Cymru Sickle Cell and Thalassaemia TicketSource Public Health Wales Wales Gene Park

Wales Gene Park’s Education & Engagement Team are here this morning at Butetown Community Centre and on Zoom, kicking off our Gene Therapy & Gene Editing in Thalassaemia and Sickle Cell event 🧬 Friends of Cymru Sickle Cell and Thalassaemia Adelphi Genetics Forum Advanced Therapies Wales

NEW TREATMENT APPROVED FOR SICKLE CELL! We are delighted that NICE has today approved the groundbreaking gene therapy, Exa-cel, or Casgevy, for use through the NHS in people living with sickle cell disorder. Our CEO John James OBE comments here.