We are excited to announce two new members to our Scientific Advisory Board. Russell Gotschell has 25+ years of drug discovery/development experience. Similarly, Gavin Malenfant has 30+ years in rare disease drug development. We welcome Russell and Gavin to our team fighting CLN3

It is time again for an unforgettable golf experience! This unique event will begin on 9/20/24 at the Kahn's backyard course. Fun continues Tobacco Road on 10/1/24. Experience 36 unique holes of team competition, unexpected challenges, feel-good fun and a chance at $1M.

Announcing Zebronkysen: Amelia & Makenzie receive personalized ASO drug. This milestone would not be possible without the incredible support of the ForeBatten community and the passionate development team. More information on this exciting news is on forebatten.org

Karen and David were happy to sit down with Mary Parker, Senior Science Writer for Charles River Labs and Sound of Science Podcast host. The Kahns and Dr. Michelle Hastings, Michelle Hastings, discussed the development of Zebronkysen and ForeBatten's mission. criver.com/eureka/e84-fam…

Less than two weeks until the 'best silent auction in golf'. Register now and start following your favorite items! ForeBatten2025.givesmart.com

Take A Swing ForeBatten VII bidding begins in just one week! Have you registered and created your watch list yet? We have over 175 fantastic golf courses, trips and memorabilia you won't want to miss! ForeBatten2025.givesmart.com

A heartfelt thank you to Derek Duncan and Golf Digest for sharing our story with such depth and care. Their unwavering support and dedication to spreading the word have played a vital role in the success of Take A Swing Fore Batten. golfdigest.com/story/fore-bat…

Rare opportunity! Two days of golf and lodging at Sand Hills Golf Club. Nebraska Golf Fans #topgolfcourse e.givesmart.com/events/EbM/i/_…

Tomorrow is the day! Bidding starts 10am EST on Wednesday, 2/19/25. Create your watch list today so you are ready to bid tomorrow! ForeBatten2025.givesmart.com

Spend the day with Gil Hanse at one of the Top Courses in the country! #golfauction #golfforgood #golfarcitecture #golfcoursedesign e.givesmart.com/events/EbM/i/_…

Golf Simulator Enthusiasts Tobacco Road is an SGT tour event benefiting ForeBatten. And it is #free! simulatorgolftour.com

Hey Cleveland Guardians fans, check out this amazing experience! #clevelandguardians #visitcleveland #mlb e.givesmart.com/events/EbM/i/_…

Another great time for Cleveland Guardians fans #Guardians #clevelandguardians #memorabilia #mlbmemorabilia Bid here: e.givesmart.com/events/EbM/i/_…

Today is #RareDiseaseDay. We have been spreading awareness all week. Karen, David, & Project Butterfly team members presented at UNC Neurology Grand Rounds. Karen & Dr. Jill Wiemer spoke @skpharmteco rare disease event. To honor this day, consider donating $28 on our website.

The ‘Best Silent Auction in Golf’ ends TONIGHT 10pm Eastern! Get your auto bids in now - it gets fast and furious at the end. ForeBatten2025.givesmart.com

7 years ago, we had our 1st fundraiser. Many of you were there that night. And many have joined us since. This amazing community came together again to raise…drum roll… $1.6M from our 7th Take A Swing Fore Batten online auction, our live and simulator tournaments!

Exciting news in ASO treatment for the CLN3 common mutation. We are proud that our years of research support have culminated in this development. Read the full announcements from ForeBatten and VCRDF forebatten.org/news-events

David joins Joe Lagowski on his home course at 8:30 Eastern! youtube.com/live/tei12p-v9…