Global ARCH (@globalarchorg) 's Twitter Profile
Global ARCH

@globalarchorg

The Global Alliance of Rheumatic and Congenital Hearts is an alliance of organizations that speak out for CHD and RHD patients

ID: 987412233951969280

linkhttp://global-arch.org calendar_today20-04-2018 19:26:36

998 Tweet

635 Followers

505 Following

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As a member of the PANHELLENIC HEART DISEASE ASSOCIATION, I can advocate for myself on a daily basis and at any possible level. I got to know myself, my needs, my expectations and how to deal with day-to-day life. #CHD #RHD #hearthealth World Heart Federation #WorldHeartDay #advocacy

As a member of the <a href="/PanSyngene21013/">PANHELLENIC HEART DISEASE ASSOCIATION</a>, I can advocate for myself on a daily basis and at any possible level. I got to know myself, my needs, my expectations and how to deal with day-to-day life.
#CHD #RHD #hearthealth <a href="/worldheartfed/">World Heart Federation</a> #WorldHeartDay #advocacy
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I have attended Somerville Heart Foundation events and made new friends. Meeting others with CHD was life changing. It made me realise I could live well with CHD. #CHD #RHD #hearthealth World Heart Federation #WorldHeartDay #advocacy

I have attended <a href="/HeartSomerville/">Somerville Heart Foundation</a> events and made new friends. Meeting others with CHD was life changing. It made me realise I could live well with CHD.
#CHD #RHD #hearthealth World Heart Federation #WorldHeartDay #advocacy
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Cara loved having her The Children's Heart Foundation Molly Dolly with her prior to surgery. It was great to talk with her about having a scar & taking care of it. We used Rosie Goes Red, Violet Goes Blue to help prepare her & siblings for the hospital. #CHD #RHD World Heart Federation #WorldHeartDay #advocacy

Cara loved having her <a href="/TheCHF/">The Children's Heart Foundation</a> Molly Dolly with her prior to surgery. It was great to talk with her about having a scar &amp; taking care of it. We used Rosie Goes Red, Violet Goes Blue to help prepare her &amp; siblings for the hospital.
#CHD #RHD <a href="/worldheartfed/">World Heart Federation</a> #WorldHeartDay #advocacy
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"Being a #CHD survivor has shaped my journey, & through Estrellita de Belen Foundation I’ve found purpose in helping others. Together with our community and partners, we raise awareness & offer hope that creates a ripple effect touching many lives." #CHD #RHD World Heart Federation #WorldHeartDay

"Being a #CHD survivor has shaped my journey, &amp; through <a href="/BelenFundacion/">Estrellita de Belen Foundation</a> I’ve found purpose in helping others. Together with our community and partners, we raise awareness &amp; offer hope that creates a ripple effect touching many lives."
#CHD #RHD <a href="/worldheartfed/">World Heart Federation</a> #WorldHeartDay
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🌍🎀 We’re thrilled to announce the speakers for the Global ARCH Virtual Summit! Join us 12-13 November to learn from top experts & advocates in #CHD & #RHD. πŸ”— Register: qrfy.io/r/cys4SEMA8V We can’t wait to see you there! ❀️ #HeartHealth #COHD #PatientAdvocacy

🌍🎀 We’re thrilled to announce the speakers for the Global ARCH Virtual Summit! Join us 12-13 November to learn from top experts &amp; advocates in #CHD &amp; #RHD. 

 πŸ”— Register: qrfy.io/r/cys4SEMA8V  

We can’t wait to see you there! ❀️   

#HeartHealth #COHD #PatientAdvocacy
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On World Mental Health Day, remember you’re not alone. Find support near you: qrfy.io/r/uTbRU02acG πŸ’š #WorldMentalHealthDay #MentalHealthMatters #GlobalARCH

On World Mental Health Day, remember you’re not alone. Find support near you: qrfy.io/r/uTbRU02acG πŸ’š #WorldMentalHealthDay #MentalHealthMatters #GlobalARCH
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Meet the Speakers for the mental health panel at the #GlobalARCHSummit to explore how social & mental health impact physical wellbeing! Join us 12 Nov at 12:30pm ET. Register qrfy.io/r/cys4SEMA8V 🌍 ❀️ #MentalHealthMatters #CHD #RHD #PatientCare #CollaborationForWellbeing

Meet the Speakers for the mental health panel at the #GlobalARCHSummit to explore how social &amp; mental health impact physical wellbeing! Join us 12 Nov at 12:30pm ET.

Register qrfy.io/r/cys4SEMA8V  🌍 ❀️ 

#MentalHealthMatters #CHD #RHD #PatientCare #CollaborationForWellbeing
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πŸ“’NCDs, including #CHD/#RHD, are the #1 cause of death & disability globally & most are in LMICs. Time is running out. In September 2025, leaders meet at the UN High-Level Meeting on NCDs. NOW is the time to lead. 🌐 actonncds.org Credit:#ActOnNCDs #LeadOnNCDs #UNGA

πŸ“’NCDs, including #CHD/#RHD, are the #1 cause of death &amp; disability globally &amp; most are in LMICs. Time is running out. In September 2025, leaders meet at the UN High-Level Meeting on NCDs. NOW is the time to lead.  
🌐 actonncds.org Credit:#ActOnNCDs #LeadOnNCDs #UNGA
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We are proud to announce our new membership of PMNCH, reinforcing our commitment to working in partnership to build a more equitable world and ensure the best possible future #ForEveryWomanChildAdolescent. We are #PartnersForChange! #CHD #RHD

We are proud to announce our new membership of PMNCH, reinforcing our commitment to working in partnership to build a more equitable world and ensure the best possible future #ForEveryWomanChildAdolescent. We are #PartnersForChange!
#CHD #RHD
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🌍 ❀️ Join us for an inspiring panel where global experts share their unique and transformational role in closing gaps in CHD & RHD care #GlobalARCHSummit #CHD #RHD #BridgingGaps #CollaborativeSolutions #GlobalARCH

🌍 ❀️  Join us for an inspiring panel where global experts share their unique and transformational role in closing gaps in CHD &amp; RHD care 

#GlobalARCHSummit #CHD #RHD #BridgingGaps #CollaborativeSolutions #GlobalARCH
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Global ARCH proudly advocates for global health at the UN General Assembly, focusing on congenital conditions. 🌍 Happy UN Day! #UNDay #GlobalHealth #HeartHealth

Global ARCH proudly advocates for global health at the UN General Assembly, focusing on congenital conditions. 🌍 Happy UN Day! #UNDay #GlobalHealth #HeartHealth
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🌍 ❀️ Join us as we kick off the Global ARCH Virtual Summit with two keynote presentations that will showcase the power of collaboration & critical role of patients & families in bridging gaps in #CHD & #RHD care #GlobalARCHSummit #BridgingGaps #CollaborativeSolutions #GlobalARCH

🌍 ❀️ Join us as we kick off the Global ARCH Virtual Summit with two keynote presentations that will showcase the power of collaboration &amp; critical role of patients &amp; families in bridging gaps in #CHD &amp; #RHD care
#GlobalARCHSummit #BridgingGaps #CollaborativeSolutions #GlobalARCH
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🌍 Join us for Advocacy Matters: Engaging Governments to Address Gaps, where we’ll explore successes, lessons learned & discuss the power of collaboration to accelerate policy change, creating a better future #GlobalARCHSummit #CHD #RHD #BridgingGaps #GlobalARCH #AdvocacyMatters

🌍 Join us for Advocacy Matters: Engaging Governments to Address Gaps, where we’ll explore successes, lessons learned &amp; discuss the power of collaboration to accelerate policy change, creating a better future #GlobalARCHSummit #CHD #RHD #BridgingGaps #GlobalARCH #AdvocacyMatters
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Congratulations to our friends in Recife, Brazil! They are celebrating thirty years of experience, learnings, and commitment to spreading best practices in fetal and pediatric cardiology. More information can be found on their website.

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🌍 ❀️ Meet the speakers for our session "Data Collection and Sharing: Creating Access Not Barriers" on 13 Nov at 8am ET! Don’t miss the opportunity to see data as a tool for transforming care and collaboration globally. #GlobalARCHSummit #CHD #RHD

🌍 ❀️ Meet the speakers for our session "Data Collection and Sharing: Creating Access Not Barriers" on 13 Nov at 8am ET! Don’t miss the opportunity to see data as a tool for transforming care and collaboration globally.

#GlobalARCHSummit #CHD #RHD
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Childhood-onset heart disease affects millions worldwide, yet their stories remain invisible. We’re on a mission to change thatβ€”to make invisible hearts visible & create a world where every person impacted can thrive. #InvisibleHeartsVisibleChange #GlobalARCH #COHD #CHD #RHD

Childhood-onset heart disease affects millions worldwide, yet their stories remain invisible. We’re on a mission to change thatβ€”to make invisible hearts visible &amp; create a world where every person impacted can thrive. #InvisibleHeartsVisibleChange #GlobalARCH #COHD #CHD #RHD
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Our Advocacy Toolkit supports those working to improve the lives of people with #CHD & #RHD. Together, we can drive the change needed for better health outcomes, brighter futures, & a world where no heart goes unseen πŸ’™ #GlobalARCH #Advocacy

Our Advocacy Toolkit supports those working to improve the lives of people with #CHD &amp; #RHD. Together, we can drive the change needed for better health outcomes, brighter futures, &amp; a world where no heart goes unseen πŸ’™ #GlobalARCH #Advocacy
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We are excited for the inaugural Global ARCH Virtual Summit next week, and we’d love for YOU to be part of it! πŸ“… : November 12-13, 2024 πŸ’» : qrfy.io/r/cys4SEMA8V #GlobalARCHSummit #ChildhoodOnsetHeartDisease #CHD #RHD #GlobalARCH

We are excited for the inaugural Global ARCH Virtual Summit next week, and we’d love for YOU to be part of it! 

πŸ“… : November 12-13, 2024
πŸ’» : qrfy.io/r/cys4SEMA8V

#GlobalARCHSummit  #ChildhoodOnsetHeartDisease #CHD #RHD #GlobalARCH
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Do you want to learn more about the unique cardiac and non-cardiac challenges encountered by older adults with #CHD? If so, we hope you will attend our final webinar of this year this Wednesday. Learn more and register at bit.ly/48fUfGo. #ACHD #CHDAwareness #CHDCare4Life

Do you want to learn more about the unique cardiac and non-cardiac challenges encountered by older adults with #CHD? If so, we hope you will attend our final webinar of this year this Wednesday. Learn more and register at bit.ly/48fUfGo. #ACHD #CHDAwareness #CHDCare4Life
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An interesting look at the first adult @CHD program, started in Toronto 65 years ago. From humble beginnings at SickKids Labatt Family Heart Centre to a world-class multidisciplinary team at University Health Network & Peter Munk Cardiac Centre. doi.org/10.1016/j.ijcc…