Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile
Global MPN Scientific Foundation

@gmpnsf

Global MPNSF is a non-profit foundation, which empowers MPN patients worldwide by raising awareness, advocating for their needs and supporting research. #MPNsm

ID: 1528732616807047174

linkhttps://hopp.to/gmpnsf calendar_today23-05-2022 13:40:56

346 Tweet

196 Followers

94 Following

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πŸ“£ Recommend this roundtable to your PV patients 🩸 A global space to connect, share and feel supported πŸ“… Sept 22 at 6 PM CEST πŸ—£οΈ Spanish with English interpretation 🌐 Live on Zoom πŸ”— Register: gmpnsf.org/post/roundtabl… #MPNsm

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The 5th MPN Spring Symposium program is now live πŸ—“οΈ Nov 7 to 9, 2025 πŸ“ Hybrid from Barcelona πŸ’» Online access via Zoom Top faculty: Prof. Haifa Al-Ali Dr. Natalia Curto Dr. Serge Verstovsek πŸ”— Program + registration: gmpnsf.org/post/program-m… #5thMPNS #MPNsm

The 5th MPN Spring Symposium program is now live
πŸ—“οΈ Nov 7 to 9, 2025
πŸ“ Hybrid from Barcelona
πŸ’» Online access via Zoom

Top faculty:
Prof. Haifa Al-Ali
Dr. Natalia Curto
Dr. Serge Verstovsek

πŸ”— Program + registration: gmpnsf.org/post/program-m…

#5thMPNS #MPNsm
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πŸ“£ For all healthcare professionals, advocates & MPN communities: The Wellbeing Project offers access to: 🌿 Therapeutic online classes (Yoga, Chi Kung, breathwork) πŸ†“ 7-day free trial πŸŽ₯ Share it: gmpnsf.org/post/feeling-e… #MPNWellbeingProject #MPNsm

πŸ“£ For all healthcare professionals, advocates & MPN communities:

The Wellbeing Project offers access to:
🌿 Therapeutic online classes (Yoga, Chi Kung, breathwork)
πŸ†“ 7-day free trial

πŸŽ₯ Share it: gmpnsf.org/post/feeling-e…

#MPNWellbeingProject #MPNsm
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πŸ“’ Meet Geron, a company committed to innovation in the MPN field. 🌍 Join our free webinar Oct 1 | 3 PM CET 🎀 Speaker: Christian Dimaano (VP, Medical Affairs) πŸ—£ English + Spanish translation πŸ”— Register here: gmpnsf.org/post/webinar-d… #MPNsm

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πŸ“Ί New video available with Silence TherapeuticsΒ & Prof. Susanne Isfort (Susanne Isfort) is now live. πŸ’¬ Alberto Martinez explains divesiran, a therapy in development for PV that could reduce phlebotomies & improve quality of life. πŸ‘‰ Watch here: gmpnsf.org/post/videos-we… #MPNsm

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🌟 Wellbeing Project I Free Trial Classes 🧘 Restorative Yoga & Yoga Nidra – Marga Linares ✍️ Creative Writing – Puy Barral 🌿 Chi Kung & Conscious Breathing – Jorgina Pequera For patients and caregivers living with MPN. πŸ‘‰ Register today: gmpnsf.org/wellbeing #MPNsm

🌟 Wellbeing Project I Free Trial Classes

🧘 Restorative Yoga & Yoga Nidra – Marga Linares
✍️ Creative Writing – Puy Barral
🌿 Chi Kung & Conscious Breathing – Jorgina Pequera

For patients and caregivers living with MPN.

πŸ‘‰ Register today: gmpnsf.org/wellbeing

#MPNsm
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πŸ“Έ Flashback to last year’s Symposium. The 5th MPN Spring Symposium is set for November 7–9, 2025 in Barcelona (hybrid). πŸ‘€ Full program now available. πŸ”— Register today: gmpnsf.org/post/program-m… #5thMPNS #MPNsm

πŸ“Έ Flashback to last year’s Symposium.

The 5th MPN Spring Symposium is set for November 7–9, 2025 in Barcelona (hybrid).
πŸ‘€ Full program now available.

πŸ”— Register today: gmpnsf.org/post/program-m…

#5thMPNS #MPNsm
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πŸ‘‰πŸ» Peter’s Journey: Hope After a Stem Cell Transplant β€œA transplant changes your life. It is like having a second birthday.” πŸ’¬ Watch his story πŸ‘‰ gmpnsf.org/post/peter-s-j… #MPNsm

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πŸ“Ί New episode out Life after transplant with Montse 🏠 Home care πŸ₯— Healthy routines πŸ’ͺ Strength in progress πŸŽ₯ Watch now: gmpnsf.org/post/life-afte… #MPNsm

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πŸ‘‰πŸ» Fatigue is one of the most difficult symptoms for MPN patients. Paloma (ET) & Leonor (MF) say QiGong sessions helped them reconnect with their body & regain energy. 🩸 πŸ“² Know more about the #WellbeingMPN Project β†’ gmpnsf.org/wellbeing #MPNsm

πŸ‘‰πŸ» Fatigue is one of the most difficult symptoms for MPN patients.

Paloma (ET) & Leonor (MF) say QiGong sessions helped them reconnect with their body & regain energy. 🩸

πŸ“² Know more about the #WellbeingMPN Project β†’ gmpnsf.org/wellbeing

#MPNsm
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Main topic at the 5th MPN Spring Symposium: 🧠 Living with MPN symptoms. Fatigue, pain, brain fog, insomnia… Also: πŸ”¬ New therapies πŸ’¬ Quality of life πŸ’‘ What’s next πŸ“² Program and registration details: gmpnsf.org/post/program-m… #5thMPNS #MPNsm

Main topic at the 5th MPN Spring Symposium:
🧠 Living with MPN symptoms.
Fatigue, pain, brain fog, insomnia…

Also:
πŸ”¬ New therapies
πŸ’¬ Quality of life
πŸ’‘ What’s next

πŸ“² Program and registration details: gmpnsf.org/post/program-m…

#5thMPNS #MPNsm
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Peter LΓΆffelhardt (Peter Loffelhardt), CEO of Global MPN Scientific Foundation, will attend #ESMO2025 in Berlin (Oct 17–21). Join us to amplify the voice of MPN patients and strengthen the 3P’s: Patients, Physicians and Pharma. πŸ“© Contact: gmpnsf.org/post/meet-pete… ESMO - Eur. Oncology #MPNsm

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⏳ Only 23 days left for the 5th MPN Spring Symposium. 🩺 Join Prof. Serge Verstovsek and global experts to discuss the future of MPN care. πŸ—“οΈ November 7 to 9, 2025 | Barcelona & Online πŸ”— gmpnsf.org/post/program-m… #5thMPNS #MPNsm

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🧬 Webinar: What is imetelstat? Join Dr. Faye Feller (Geron) on October 23rd at 15:00 CET for an open session about this investigational drug for Myelofibrosis. πŸ’» Online | Free access | With Spanish interpretation πŸ”— Register: gmpnsf.org/post/webinar-w… #MPNsm

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πŸ–‹οΈ We present a new Wellbeing Workshop with Puy Barral, creative writing facilitator and MPN patient. Part of the Wellbeing Project. Try it with the session on Oct 23 at 19:00h CET. πŸ—“οΈ πŸ”— gmpnsf.org/post/new-works… #WellbeingMPN #MPNsm

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🩸 On Oct 27 at 18:00 (CEST), join the Roundtable for Patients and Families with Essential Thrombocythemia (ET) by Global MPN Scientific Foundation. 🌐 With live EN/ES interpretation. We encourage professionals to share with colleagues & patients. πŸ«‚ πŸ‘‰ Register: gmpnsf.org/post/roundtabl… #MPNsm

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πŸ“½οΈ The Global MPN Scientific Foundation (GMPNSF) shares β€œIntroduction to Geron”, featuring Christian Dimaano on the company’s research and scientific focus in MPNs πŸ”¬ Tomorrow, Oct 23rd: webinar on imetelstat (CT) with Geron πŸŽ₯Video + register: gmpnsf.org/post/video-web… #MPNsm

Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

⏳ 15 days left for the 5th MPN Spring Symposium! πŸ“ Nov 7–9 🌍 Focus on symptoms, quality of life & global collaboration between patients, physicians & pharma. πŸ“² Register: gmpnsf.org/post/save-the-… #5thMPNS #MPNsm

⏳ 15 days left for the 5th MPN Spring Symposium!
πŸ“ Nov 7–9

🌍 Focus on symptoms, quality of life & global collaboration between patients, physicians & pharma.

πŸ“² Register: gmpnsf.org/post/save-the-…

#5thMPNS #MPNsm
Global MPN Scientific Foundation (@gmpnsf) 's Twitter Profile Photo

Yesterday, we hosted β€œWhat is imetelstat?” featuring Dr. Faye Feller (Geron)🩸 πŸ‘‰πŸ» The webinar explored the investigational therapy imetelstat (CT) for Myelofibrosis, its potential mechanism, and ongoing studies πŸŽ₯ Video coming soon. πŸ“© Subscribe: gmpnsf.org/#text17 #MPNsm

Yesterday, we hosted β€œWhat is imetelstat?” featuring Dr. Faye Feller (Geron)🩸

πŸ‘‰πŸ» The webinar explored the investigational therapy imetelstat (CT) for Myelofibrosis, its potential mechanism, and ongoing studies

πŸŽ₯ Video coming soon.
πŸ“© Subscribe: gmpnsf.org/#text17

#MPNsm