Greg Ryan OAM (@gregmryan) 's Twitter Profile
Greg Ryan OAM

@gregmryan

Advocate for all born IA/ARM. Author of “A Secret Life - Surviving a Rare Congenital Condition” & “Rare and Resilient: ONE in 5000 Anthology” and NMFC Historian

ID: 1404487328

linkhttp://www.onein5000foundation.org calendar_today05-05-2013 08:31:38

502 Tweet

366 Followers

1,1K Following

ERN eUROGEN (@ern_eurogen) 's Twitter Profile Photo

🚨 ERN eUROGEN is delighted to announce the release of a new brochure summarising the Patient Journey for Anorectal Malformation (ARM). 💙 Read more here: eurogen-ern.eu/new-arm-brochu… #HealthUnion #EU4Health #RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg #AnorectalMalformation

🚨 <a href="/ERN_eUROGEN/">ERN eUROGEN</a> is delighted to announce the release of a new brochure summarising the Patient Journey for Anorectal Malformation (ARM). 💙
Read more here: eurogen-ern.eu/new-arm-brochu…
#HealthUnion #EU4Health #RareDisease #UroSoMe #Urology #PedUro #SoMe4PedSurg #AnorectalMalformation
DoctorsPenaBischoff (@drspenabischoff) 's Twitter Profile Photo

This meeting will be in English with live professional Spanish translation. Link to register: us02web.zoom.us/webinar/regist… #SoMe4PedSurg

Colorectal and pediatric surgery news (@saioasantiagomd) 's Twitter Profile Photo

Assessing the risk factors for surgical site infections after anal reconstruction surgery in patients with anorectal malformations: a retrospective analysis #pedscolorectal #some4pedsurg link.springer.com/article/10.100…

Felix Oyania (@felixoyania) 's Twitter Profile Photo

In this editorial, we recommend delayed diagnosis of ARM as a diagnosis made after discharge from the health facility after birth Newborn perineal examinations should be in postnatal charts to minimize delays ⁦Ministry of Health- Uganda⁩ ⁦Association of Surgeons of Uganda (ASOU)⁩ wjps.bmj.com/content/7/4/e0…

@ACPGBI (@acpgbi) 's Twitter Profile Photo

Anorectal prolapse after anorectal reconstruction: Incidence and risk factors according to the ARM‐Net Consortium - Stenström - 2025 - Colorectal Disease - Wiley Online Library onlinelibrary.wiley.com/doi/full/10.11…

Greg Ryan OAM (@gregmryan) 's Twitter Profile Photo

Please find below article by ⁦ABC News⁩ on the closure of the CPRS. Please share far and wide. We need this crucial service for the kids born with complex lifelong colorectal conditions. 🧡💙 #anorectalmalformation #hirschsprung #pedscolorectal abc.net.au/news/2025-02-1…

Pull-thru Network (@pullthrunetwork) 's Twitter Profile Photo

🌟 Join the PTN 5000 Likes Awareness Challenge! 🌟 February is Rare Disease Month, shining a light on rare diseases like Anorectal Malformations (ARM) & Hirschsprung Disease (HD), affecting 1 in 5,000 babies. Let's raise awareness, support families, & improve treatments. 💙

DoctorsPenaBischoff (@drspenabischoff) 's Twitter Profile Photo

This Tuesday, Feb 25, the International Center for Colorectal and Urogenital Care at Children’s Hospital Colorado in partnership with The Hendren Project will be hosting a FREE Bowel Management Course. #SoMe4PedSurg Register here: us02web.zoom.us/webinar/regist…

This Tuesday, Feb 25, the International Center for Colorectal and Urogenital Care at Children’s Hospital Colorado in partnership with <a href="/hendrenproject/">The Hendren Project</a> will be hosting a FREE Bowel Management Course. #SoMe4PedSurg

Register here: us02web.zoom.us/webinar/regist…
ERN eUROGEN (@ern_eurogen) 's Twitter Profile Photo

🧩 New resources for #AnorectalMalformations! This #RareDiseaseDay, we’re highlighting guidelines, patient information materials & a sexual support website—all to enhance care & outcomes for ARM patients. Learn more: bit.ly/3D862Lw 💙 #EUfunded #EU4Health #SoMe4PedSurg

DoctorsPenaBischoff (@drspenabischoff) 's Twitter Profile Photo

Rectal prolapse in Anorectal Malformation: - more common in patients with poor prognosis for bowel control - surgery should only be offered when interfering with the quality of life (excessive mucous production, bleeding, or discomfort) #SoMe4PedSurg #pedscolorectal

Rectal prolapse in Anorectal Malformation: 
- more common in patients with poor prognosis for bowel control
- surgery should only be offered when interfering with the quality of life (excessive mucous production, bleeding, or discomfort) 
#SoMe4PedSurg #pedscolorectal
Greg Ryan OAM (@gregmryan) 's Twitter Profile Photo

Families fight to Save Renowned Children’s Bowel Clinic from Closure at The Royal Children's Hospital, Melbourne Thanks to Marc Levitt for advocating and supporting the Colorectal & Pelvic Reconstruction Service in #Melbourne #Australia chng.it/VvzbNbpgDn via @ChangeAUS

Sergey Minaev (@sminaev2015) 's Twitter Profile Photo

Anorectal Malformations Associated with Hirschsprung Disease: Insights from a Large Cohort of 2341 ARM Patients in a Single-Center Retrospective Study #some4pedsurg #some4surgery #sminaev #ARM thieme-connect.com/products/ejour…

Michael McCormack (@m_mccormackmp) 's Twitter Profile Photo

Labor has cut funding for the Paediatric Colorectal and Pelvic Reconstruction Centre which was treating children born with debilitating conditions. Put simply, this is a heartless decision. Read my OpEd which appeared in today’s Herald Sun here👇 michaelmccormack.com.au/media-releases…

Labor has cut funding for the Paediatric Colorectal and Pelvic Reconstruction Centre which was treating children born with debilitating conditions.

Put simply, this is a heartless decision.

Read my OpEd which appeared in today’s <a href="/theheraldsun/">Herald Sun</a> here👇

michaelmccormack.com.au/media-releases…
European Journal of Pediatric Surgery & Reports (@ejps_reports) 's Twitter Profile Photo

🚨 New EU Guidelines for Anorectal Malformation (ARM)! ✅ Prenatal detection via US/MRI ✅ Newborn screening for spinal/urological anomalies ✅ Structured long-term follow-up 📌 Standardized diagnostics = earlier, better care! thieme-connect.com/products/ejour…