🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Nurses play a pivotal role in delivering and improving health care for people with #bleedingdisorders, and ensuring better patient outcomes. On International Nurses Day, Dr Kate Khair PhD highlights the importance of nurse-led research. Read more here: loom.ly/UXOCa0E #IND2025

Terence O'Rourke remembers a time before effective treatment for #haemophilia. Catch up with our conversation with him in the first two episodes of our #Haemcast mini-series, Reflections on a Life with Severe Haemophilia: loom.ly/hT_gfBI Episode 3 launches on Thursday!

If you live with #haemophilia, how do you treat a bleed? Terence O'Rourke recalls treatment in the 1950s and 1960s being painful and requiring a hospital stay. But he also questioned this approach at a time when most accepted that "doctor knows best". Tune in to part 3 of our

#EAHADVacancy 📣 Are you a nurse active in the field of #haemophilia and bleeding disorders?🩸The EAHAD Nurses Committee is looking for a new member to join! 📅 Term starts: September 2025 🔗 Apply today: eahad.org/call-for-appli…

When it comes to really understanding what it's like to live with a bleeding disorder, individual stories are powerful. Our lived experience research supports better treatment and care for all people with #bleedingdisorders. Get in touch to find out how your story can help:

Two cases of ultra-rare #BernardSoulier syndrome diagnosed in the same care centre. It affects fewer than 1 in a million. Its rarity and similarity with other platelet disorders means it can be difficult to diagnose. Well done to the team, whose diligence will enable appropriate

The latest episode of #Haemcast is out today! Looking for a new #podcast? Why not catch up with the latest in our special mini-series. Terence O'Rourke talks courage, determination, and a life well lived into his 80s with severe #haemophilia A. Tune in here:

Individual stories really do matter when it comes to understanding bleeding disorders. What's yours? Get in touch to find out more about how your story can help our research: loom.ly/vkd8zoE #bleedingdisorders #haemophilia #vonWillebrandDisease #GlanzmannThrombasthenia

Understanding what it's like to live with a #bleedingdisorder also means understanding what it's like for #parents and caregivers. In our next parent-focused blog, Alex and Jo share their story of raising a family of daughters affected by #Type2A #vonWillebrandDisease. Read it

Have you caught up with the latest episode of #Haemcast? Terence O'Rourke continues his story of living a long life with severe #haemophilia A — episode 5 launches tomorrow: loom.ly/hT_gfBI #podcast #bleedingdisorders

Part 5 of Terence O'Rourke's reflections on eight decades of living with severe #haemophilia A is now available on #Haemcast. Turn on sound to hear why haemnet's Dr Dr Kate Khair PhD thinks stories like Terence's are important. Stream, download, listen! loom.ly/hT_gfBI

Jo and Alex have four children — three of them have Type 2A von Willebrand disease, and they describe family life as "a roller coaster of extremes". Find out more about their story on the Haemnet blog: loom.ly/WAmii0Q #vonWillebrandDisease #VWD #bleedingdisorders

🌍 Learn about the latest treatment innovations, how they’re changing clinical practice, and what it means for access around the world. 📅 Join the conversation on equitable care at #GPAS2025: bit.ly/4kG3TYd

Are you going to #ISTH2025? Look out for our posters presenting results and insights from the #Haemnet VWD360 study, which explored the daily impact of #vonWillebrandDisease with over 600 participants #ISTH #bleedingdisorders #research #livedexperience

If you're at #ISTH2025, check out our poster reporting final results from VWD360, a natural history study with over 600 participants, exploring the real-life experience of adults living with von Willebrand disease #vonWillebrandDisease #VWD #research #livedexperience #Haemnet

Attending #ISTH2025? Our VWD360 study explored the real-life experience of adults with #vonWillebrandDisease. One of two posters on display reports on bleed diaries completed by more than 50 participants over 30 days. The results challenge assumptions on bleed frequency in less

Final report from the haemnet team #VWD360 study. 611 participants from 15 countries, even split in gender.ean bleed of 1.33 per week but with range 0-10. A reflection of the true burden of VWD on physical, emotional & social wellbeing #ISTH2025

Jo & Alex's message to #families who have children with #vonWillebrandDisease: "It isn't something to be frightened of. It's something you need to learn and understand and be prepared for." Part 2 of their story, 'Raising girls with Type 2 #VWD', is now on the #Haemnet blog:

Catch up with five episodes of our #Haemcast miniseries, in conversation with Terence O'Rourke about living with severe #haemophilia over eight decades. Part 6 is due out soon! Stream, download and listen here: loom.ly/A4UWu6M #livedexperience #podcast #bleedingdisorders

Part 6 of our #Haemcast series in conversation with Terence O'Rourke about living with #haemophilia A comes right up to date with talk of #genetherapy, #self-advocacy and #treatment decisions. Stream, download and listen here: loom.ly/A4UWu6M #podcast