Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile
Haemophilia Journal

@haemophilia_jnl

The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve

ID: 1522808139929862144

linkhttps://onlinelibrary.wiley.com/journal/13652516 calendar_today07-05-2022 05:19:38

616 Tweet

1,1K Followers

301 Following

WFH (@wfhemophilia) 's Twitter Profile Photo

A study from Civil Service Hospital in #Nepal, reveals remarkable benefits of emicizumab for severe #hemophilia A patients. The study was made possible by capacity building programs like the WFH Twinning and Humanitarian Aid Programs. Full article: bit.ly/3BhLP58

A study from Civil Service Hospital in #Nepal, reveals remarkable benefits of emicizumab for severe #hemophilia A patients. The study was made possible by capacity building programs like the WFH Twinning and Humanitarian Aid Programs. Full article: bit.ly/3BhLP58
EHC_Haemophilia (@ehc_haemophilia) 's Twitter Profile Photo

📑 The article “A core outcome set for prophylaxis and perioperative treatment of #vonWillebranddisease : The coreVWD initiative” co-authored by the EHC expert Manon Degenaar-Dujardin is now available in the Haemophilia Journal 👉 ow.ly/Ltgk50UmeRB

WFH (@wfhemophilia) 's Twitter Profile Photo

The WFH supports the findings of 49 global experts that examined the ISTH Guidelines & published a critical appraisal in Haemophilia Journal. The appraisal highlights issues in the ISTH publication that could impact health outcomes for people with hemophilia: bit.ly/4g1zP70

The WFH supports the findings of 49 global experts that examined the ISTH Guidelines &amp; published a critical appraisal in <a href="/haemophilia_jnl/">Haemophilia Journal</a>. The appraisal highlights issues in the ISTH publication that could impact health outcomes for people with hemophilia: bit.ly/4g1zP70
EAHAD (@eahadnews) 's Twitter Profile Photo

Founding editor of Haemophilia Journal Prof. Christine Lee just published an editorial on the thirty years of our official Journal. Haemophilia is THE publication to consult for the most comprehensive information on haemophilia and allied disorders care: onlinelibrary.wiley.com/doi/full/10.11…

Founding editor of <a href="/haemophilia_jnl/">Haemophilia Journal</a> Prof. Christine Lee just published an editorial on the thirty years of our official Journal. Haemophilia is THE publication to consult for the most comprehensive information on haemophilia and allied disorders care: onlinelibrary.wiley.com/doi/full/10.11…
Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile Photo

Do you love butterflies 🦋 more than Xs? Then make sure to give us a follow on Bluesky to stay updated with the latest #Haemophilia #Journal updates. We’re now crossposting (t)here to keep you in the loop! 👩🏼‍💻🦋 buff.ly/3PeXcOA

Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile Photo

Numerous international #haemophilia experts recently reviewed the #ISTH Clinical Practice #Guideline for Treatment of Congenital #Haemophilia, and found missed opportunities for improving access to #innovation. Check out this thought-provoking article 👉buff.ly/3DDPJGs

Numerous international #haemophilia experts recently reviewed the #ISTH Clinical Practice #Guideline for Treatment of Congenital #Haemophilia, and found missed opportunities for improving access to #innovation. Check out this thought-provoking article 👉buff.ly/3DDPJGs
Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile Photo

To improve accessibility of heavy #menstrual #bleeding diagnosis, Howie et al. adapted the adolescent menstrual bleeding questionnaire (aMBQ) for French-speaking Canadian teens. A rigorous 5-step process confirmed the French aMBQ’s validity 👉buff.ly/40en97l #OpenAccess🟢

To improve accessibility of heavy #menstrual #bleeding diagnosis, Howie et al. adapted the adolescent menstrual bleeding questionnaire (aMBQ) for French-speaking Canadian teens. A rigorous 5-step process confirmed the French aMBQ’s validity 👉buff.ly/40en97l #OpenAccess🟢
EAHAD (@eahadnews) 's Twitter Profile Photo

We are excited to share a new resource developed by EAHAD WG+BD Working Group designed for girls who are starting or will soon start their periods, providing valuable information about menstrual health in the context of bleeding disorders. A valuable resource for girls, their

WFH (@wfhemophilia) 's Twitter Profile Photo

📰A new core outcome set (COS) identifies key outcomes for #VWD clinical trials, ensuring better data for patients, clinicians, and stakeholders. Special focus on women and menstruating individuals! Read the full article: bit.ly/4fVQw2R #BleedingDisorders

📰A new core outcome set (COS) identifies key outcomes for #VWD clinical trials, ensuring better data for patients, clinicians, and stakeholders. Special focus on women and menstruating individuals! Read the full article: bit.ly/4fVQw2R #BleedingDisorders
Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile Photo

How could #rehabilitation practice be improved for patients hospitalized with #acquired #haemophilia A? An original article in Haemophilia Journal discusses current treatment strategies in Japan 🇯🇵 👉 buff.ly/41T0O0k #OpenAccess 🟢

How could #rehabilitation practice be improved for patients hospitalized with #acquired #haemophilia A? An original article in <a href="/haemophilia_jnl/">Haemophilia Journal</a> discusses current treatment strategies in Japan 🇯🇵 👉 buff.ly/41T0O0k #OpenAccess 🟢
EAHAD (@eahadnews) 's Twitter Profile Photo

The wait is nearly over ⏰Only 24 hours to go! Don’t forget to collect your Congress bags on arrival - if you have not registered for #EAHAD2025 yet, there is still time to secure your spot: eahadcongress.com/register-here/

Haemophilia Journal (@haemophilia_jnl) 's Twitter Profile Photo

Access to #dental care 🦷 remains a significant challenge for persons with #haemophilia, as highlighted by Sipos et al. in their recent study. Dental care refusal by providers is a frequent barrier. Read the full #OpenAccess 🟢 article here 👉 buff.ly/4gz5vRt

Access to #dental care 🦷 remains a significant challenge for persons with #haemophilia, as highlighted by Sipos et al. in their recent study. Dental care refusal by providers is a frequent barrier. Read the full #OpenAccess 🟢 article here 👉 buff.ly/4gz5vRt
WFH (@wfhemophilia) 's Twitter Profile Photo

Tatiana shares her journey of raising a daughter with severe factor VII deficiency—facing challenges, finding strength, and advocating for better care. Let’s give girls with #Bleedingdisorders the care they deserve: bit.ly/3up6exA 💪 #WHD2025 #WeBleedToo

EAHAD (@eahadnews) 's Twitter Profile Photo

Visit the EAHAD community booth in the North Hall to become a member of our dynamic network of #haemophila and #bleedingdisorder healthcare professionals. Benefit from reduced registration fees for the next EAHAD Congress, access resources at the EAHAD Academy, and much more!

Visit the EAHAD community booth in the North Hall to become a member of our dynamic network of #haemophila and #bleedingdisorder healthcare professionals. Benefit from reduced registration fees for the next EAHAD Congress, access resources at the EAHAD Academy, and much more!
WFH (@wfhemophilia) 's Twitter Profile Photo

📢 A post-hoc analysis phase 3 study shows low rebleeding rates and effective control of mild/moderate bleeding episodes with eptacog beta in people with #hemophilia with inhibitors. Read the study: bit.ly/3QFZK8Z

📢 A post-hoc analysis phase 3 study shows low rebleeding rates and effective control of mild/moderate bleeding episodes with eptacog beta in people with #hemophilia with inhibitors. Read the study: bit.ly/3QFZK8Z
WFH (@wfhemophilia) 's Twitter Profile Photo

🧬 Clear communication is key to enhance understanding of complex treatments, such as gene editing! A lexicon was developed with easy-to-understand terms and infographics for all stakeholders in the #hemophilia community. Learn more: bit.ly/3QUmaDN

🧬 Clear communication is key to enhance understanding of complex treatments, such as gene editing! A lexicon was developed with easy-to-understand terms and infographics for all stakeholders in the #hemophilia community. Learn more: bit.ly/3QUmaDN
EAHAD (@eahadnews) 's Twitter Profile Photo

📰 Check out the latest article from EUHASS on the evolving treatment landscape for severe #haemophilia and its impact on inhibitor assessment on the Haemophilia Journal 🔗 onlinelibrary.wiley.com/doi/full/10.11…

Michael Makris (@profmakris) 's Twitter Profile Photo

Our paper on inhibitor trends is now published in the journal Haemophilia Journal. The number of inhibitors in previously untreated patients has markedly reduced but it is possible that this is due to delayed exposure to FVIII. tinyurl.com/2mr3t5e3

Our paper on inhibitor trends is now published in the journal <a href="/haemophilia_jnl/">Haemophilia Journal</a>. The number of inhibitors in previously untreated patients has markedly reduced but it is possible that this is due to delayed exposure to FVIII. tinyurl.com/2mr3t5e3
Michael Makris (@profmakris) 's Twitter Profile Photo

Professor Christine Lee reflects on some of the conclusions of the UK Infected Blood Inquiry. The manuscript has just been published by the journal Haemophilia. Haemophilia Journal #hemophilia. The PDF of the manuscript is freely available at: tinyurl.com/mvh2mk22

Professor Christine Lee reflects on some of the conclusions of the UK Infected Blood Inquiry. The manuscript has just been published by the journal Haemophilia. <a href="/haemophilia_jnl/">Haemophilia Journal</a> #hemophilia. The PDF of the manuscript is freely available at: tinyurl.com/mvh2mk22