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🧠 Pleased to announce that next week, at the Annual Cell and Gene Therapy Conference, our Chief Executive Rebecca Middleton will be talking patient involvement with rare disease and genomics industry leaders. Economist Impact #HereditaryBrainAneurysms #BrainAneurysmAwareness

Take a look and share/take part if you can ⬇️⬇️⬇️ @SameYouOrg Big Issue #brainaneurysms

✍️ Together with 35 members we've written to Keir Starmer Rishi Sunak and Ed Davey 📢 We're calling on them to improve services and support for people affected by neurological conditions and deliver a Neuro Taskforce in the next Parliament #BackThe1in6 #GeneralElection

Ready for the week ahead! Time out to build knowledge and skills EURORDIS-Rare Diseases Europe HBA Support

🚨 We're Hiring! Research Associate (Fixed Term) to join a project investigating traumatic vascular injury (TVI) funded by a Brain Research UK grant with Dr Virginia Newcombe Virginia Newcombe 🔗jobs.cam.ac.uk/job/47982/ Closes: 11 September #neuro | #researchjobs | Cambridge University | Cambridge University Hospitals NHS |

September is #BrainAneurysmAwarenessMonth! We're here to spread the word and support people and families affected by hereditary brain aneurysms. We estimate there are up to 320,000 in the UK who may need our support. 🔗 hbasupport.org #BrainAneurysmAwareness

Thank you BBC Woman's Hour for sharing my story, raising awareness of familial brain aneurysms and HBA Support Women are more likely to have a brain aneurysm and the risks increases when you’re post menopausal. Excited about the ROAR Study led by Diederik Bulters to unpick why 🧬

Thanks to BBC Woman's Hour for allowing Rebecca to share her story about aneurysms and the impact on her family. Thanks to Nuala McGovern for her sensitivity today. bbc.co.uk/sounds/play/m0… We're here for anyone affected by brain aneurysms with hereditary links. hbasupport.org

.HBA Support has announced the upcoming launch of multiple projects intended to improve care and support for patients with familial #BrainAneurysms #BrainAneurysmAwarenessMonth Rebecca Middleton Samir Matloob @DSalmon82 neuronewsinternational.com/hba-support-ne…

Thank you so much for helping us shine a light on this underrepresented condition during brain aneurysm month ⬇️⬇️

We have responded to Lord Darzi’s Independent Investigation of the NHS in England. Read the full statement from our Chief Executive Georgina Carr on our website neural.org.uk/news/the-neuro… #NHS #BackThe1in6

Thanks to RARE Revolution Magazine for sharing our story - great article!

Have you or your family been impacted by a brain aneurysm? We're running research projects that need to hear about your patient experience to help improve care and support. A friendly chat is all we need. Find out more here: hbasupport.org/get-involved#r… #brainaneurysms

We're posting less on X so to stay updated you can follow us on facebook.com/HBASupport or linkedin.com/company/hbasup…

FREE Guide - Understanding Familial Brain Aneurysms Most brain aneurysms occur sporadically, meaning randomly with no pattern, and are not hereditary. However, sometimes patterns can occur in families. Find out more in our free downloadable guide here: hbasupport.org/support#guides

Last chance to take part in research to help us learn more about the experiences of families with hereditary brain aneurysms. If you or your partner is at-risk of hereditary brain aneurysms we need to hear from you before Jan 31st! Find out more here hbasupport.org/post/what-are-…

Thanks to Clemency Burton-Hill, MBE for sharing her story on BBC News (UK) & BBC Two to raise awareness of brain injury and recovery. Our brain aneurysm rupture survivors understand the shock of a sudden rupture, huge recovery challenges and the devastating impact brain injury has. #aftertherupture

Great to see our founder's podcast episode being shared - have a listen if you want to hear how Hereditary Brain Aneurysm Support began.

Calling all neurovascular or medical professionals supporting people with brain aneurysms with possible hereditary links - please fill our survey to help us create a guide to help newly diagnosed patients surveymonkey.com/r/KXKBJBY

We need action from government, not just words. In My Neuro Survey, people most reported being unable to access specialist mental health support despite needing this. Sign our open letter to now. bit.ly/ActForThe1in6 Thank you.