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International friends, we have had some national coverage on #MECVS and #GET #CBT. In a written response to the publication, the Dutch Paediatric Society (NVK) said that the NICE committee ‘uncritically adopted one-sided patient perspectives.’ Quite a wild thing to say 😅

Taelin standard medical assessments have a low ceiling if you're merely «strong» at math, it's the equivalent of «better than 20/20 vision» for a medical professional, stop wasting time with your whining, we have 10 patients with glaucoma waiting likewise for most other functions

The ME research team at Haukeland University Hospital in Norway (Drs Fluge, Mella, Rekeland, etc) has opened for recruitment of 66 participants for a placebo controlled clinical trial on Daratumumab as a potential treatment for ME/CFS. #mecfs #PwME 1/

In our #rapamycin pilot, we developed 2 biomarkers to measure autophagy function & showed that they correlate to positive response in #MECFS. Our bold goal is to generate a biomarker test to predict likely responders to rapamycin. We’re on our way to a 1st for #ME: test-to-treat!

Great

A new study from New Zealand found that over one-third of university students experienced measurable cognitive deficits—especially in executive function—up to 17 months after COVID-19 infection. Even in a young, healthy population, the impacts on brain function were objectively

1/ Be one of the first Long Covid patients to participate in a Rapamycin clinical trial! A pilot clinical trial at CoRE at Mount Sinai will determine if low-dose rapamycin can improve symptoms in patients with long COVID.

Super excited to check out DeSci.Berlin this week!  🎉 Our team members Rohan Dixit and Austin Walker 🛴 are meeting with pioneers in the DAO and Web3 space to explore how new models of funding can speed up the pace of scientific research. 🙏 Can’t wait to see you all there!

Just published Reframing beliefs about their illness does not lead to recovery of tube-fed patients with very severe ME/CFS. Analysis of the BMJ article by Miller et al. papers.ssrn.com/sol3/papers.cf… Or: researchgate.net/publication/39… #MEcfs #MyalgicEncephalomyelitis #VerySevereME

So there was a lot of talk recently about a paper discussing COVID-19 micro-clotting. I thought I’d break it down in simple language. The paper looked at why tiny blood vessels get blocked in severe COVID-19. They discovered, it is not the usual clots we hear about. 🧵👇🏻

French Covid vaccination campaign extended until June 30th: ameli.fr/assure/actuali…

You can play tricks with excess death statistics, but money talks

PSA: there IS a vaccine for my meningitis It is called Shingrix. If you ever had chickenpox, it can decrease by 90% your odds of waking up with a brain virus. Sadly, seems like it is only recommended for >50yo, but younger adults could benefit. Talk to your dr.

“non-invasive near-infrared regional spectroscopy was used to measure local oxygenation while kneading a stress ball and during recovery…the subgroup with PEM showed impaired deoxygenation…these data support the hypothesis of ischemia as a pathogenetic factor in PEM”

ondertussen op LinkedIn. Blijf het een van de weirdste reacties vinden: ‘het gaat op kwetsbare kinderen!!’ De NVK gebruikte hem ook. Waarom is dit een reden om niet in te gaan op signalen van iatrogene schade? Juist als het om kwetsbare kinderen gaat neem je dat toch serieus.

THERE ARE 36 ANIMALS (15 CATS & 21 DOGS) AT RISK FOR SATURDAY 06/14/25 DEADLINE IS NOON. PLEASE SHARE, FOSTER, ADOPT, TAG FRIENDS, POST TO SOCIAL MEDIA SITES, PLEDGE TO HELP SAVE THEIR LIVES. NEW PHOTOS. newhope.shelterbuddy.com/animal/list

Prenatal SARS-COV-2 infection in pregnant women is linked to developmental delays in toddlers: "At 6 months, 33.3% of infants exhibited cognitive delays, 20% communication delays, and 40% motor delays, increasing to 35.71%, 64.29%, and 57.14% at 24 months, respectively."

Just tried my clip on phone microscope 🔬 to check my nail food capillaries and it’s worked incredibly well. This is amazing. Gemma Banham Rene Sugar Isabel Ramirez-Burnett | Renegade Research Prof Doug Kell CBE #FBPE #FBPA🔶🇪🇺 Putrino Lab Céline

It's always instructive to remind ourselves: we might all be saying "PEM" and meaning quite different things. Heck, it's already obvious we do that with the severity scale. And this is even more subtle a concept.

A new phase II #PostCOVID / #LongCOVID RCT in the US with Sipavibart, a SARS-CoV-2 specific monoclonal antibody, by Nova Southeastern University in Miami. According to ClinicalTrials, recruitment has not yet started. 100 patients will be enrolled. clinicaltrials.gov/study/NCT07021…