Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile
Hemophilia Federation of America (HFA)

@hemophiliafed

Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed

ID: 61610186

linkhttp://www.hemophiliafed.org calendar_today30-07-2009 21:54:38

10,10K Tweet

5,5K Followers

1,1K Following

Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Longtime bleeding disorders advocate Kathy Seward MacKay shares a letter to the community. From: A Bad Blood era advocate. To: A new generation of advocates. Read it here:hubs.li/Q03wg2bs0

Longtime bleeding disorders advocate Kathy Seward MacKay shares a letter to the community. 

From: A Bad Blood era advocate. To: A new generation of advocates. 

Read it here:hubs.li/Q03wg2bs0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

🛑 July 9 is International Emergency Kit Day! Are you prepared if disaster strikes? An emergency kit—also called a go bag—can make all the difference when you need to act fast. 📘 Preparedness Guide: 🔗 English: hubs.li/Q03w256B0 🔗 Spanish: hubs.li/Q03w23Vz0

🛑 July 9 is International Emergency Kit Day!

Are you prepared if disaster strikes? An emergency kit—also called a go bag—can make all the difference when you need to act fast.

📘 Preparedness Guide:
🔗 English: hubs.li/Q03w256B0
🔗 Spanish: hubs.li/Q03w23Vz0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Through honesty, vulnerability, and powerful conversations, we created space for voices to be heard and stories to be shared, shedding light on the unique challenges faced by Black individuals and families living with bleeding disorders.

Through honesty, vulnerability, and powerful conversations, we created space for voices to be heard and stories to be shared, shedding light on the unique challenges faced by Black individuals and families living with bleeding disorders.
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Today, we’re sending a heartfelt THANK YOU to our generous donors. Your support fuels our mission advocate for families with bleeding disorders—fighting for safe treatments, affordable care, and a better quality of life for all. 💸 Donate Today: hubs.li/Q03x67Ms0

Today, we’re sending a heartfelt THANK YOU to our generous donors. Your support fuels our mission advocate for families with bleeding disorders—fighting for safe treatments, affordable care, and a better quality of life for all.

💸 Donate Today: hubs.li/Q03x67Ms0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

At HFA, we know life with a bleeding disorder brings unique challenges at every stage—and planning for the future is one of the most empowering steps you can take. We partnered with FreeWill to help you create your will for free in just 20 minutes. hubs.li/Q03x9G4S0

At HFA, we know life with a bleeding disorder brings unique challenges at every stage—and planning for the future is one of the most empowering steps you can take. We partnered with FreeWill to help you create your will for free in just 20 minutes.
hubs.li/Q03x9G4S0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

The first Black Voices Summit was a powerful space for community and connection. Many left with “homework” for themselves—proof of the impact this weekend made. We’re excited to see this community grow as advocates and leaders, bringing change back to their local communities.

The first Black Voices Summit was a powerful space for community and connection. 

Many left with “homework” for themselves—proof of the impact this weekend made. We’re excited to see this community grow as advocates and leaders, bringing change back to their local communities.
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

📰 The latest issue of HFA’s Dateline Magazine is here—and it’s digital-only! From powerful stories to important policy updates, this edition is packed with content you won’t want to miss. 📲 Visit our Dateline page and dive into all the articles now: 🔗 hubs.li/Q03xj-rQ0

📰 The latest issue of HFA’s Dateline Magazine is here—and it’s digital-only!

From powerful stories to important policy updates, this edition is packed with content you won’t want to miss.

📲 Visit our Dateline page and dive into all the articles now:
🔗 hubs.li/Q03xj-rQ0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Hablando Contigo del Mes de Julio ☀️ 📆Esta Noche 8:00pm ET Enlace:hubs.li/Q03x6sPv0 Gracias a nuestros patrocinadores educativos por ayudarnos a hacer posible este chat. Takeda, Sanofi, and CSL Behring

Hablando Contigo del Mes de Julio ☀️

📆Esta Noche 8:00pm ET

Enlace:hubs.li/Q03x6sPv0

Gracias a nuestros patrocinadores educativos por ayudarnos a hacer posible este chat. Takeda, Sanofi, and CSL Behring
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

📣 In our latest Dateline Magazine, we’re shining a spotlight on the Hemophilia Foundation of Michigan! 📰 Read more about this amazing member organization in our Digital Dateline: 👉 hubs.li/Q03xQClH0

📣 In our latest Dateline Magazine, we’re shining a spotlight on the Hemophilia Foundation of Michigan!

📰 Read more about this amazing member organization in our Digital Dateline:
👉 hubs.li/Q03xQClH0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

🩸 Did you know? von Willebrand Disease (vWD) is the most common inherited bleeding disorder, yet many people remain undiagnosed or misdiagnosed. Getting a proper diagnosis is essential to managing symptoms and accessing the right care. 🔗 hubs.li/Q03xTgk70

🩸 Did you know? von Willebrand Disease (vWD) is the most common inherited bleeding disorder, yet many people remain undiagnosed or misdiagnosed.

Getting a proper diagnosis is essential to managing symptoms and accessing the right care.

🔗 hubs.li/Q03xTgk70
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

✨ Slow start to your Monday? Let the memories of Symposium 2025 give you the boost you need! 💙 Swipe through our Dateline recap and relive the warmth, connection, and community shared with our bleeding disorders family. hubs.li/Q03y41yd0

✨ Slow start to your Monday?
Let the memories of Symposium 2025 give you the boost you need! 💙

Swipe through our Dateline recap and relive the warmth, connection, and community shared with our bleeding disorders family.

hubs.li/Q03y41yd0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

🎤 Voices from the first-ever Black Voices Summit for the bleeding disorders community. These powerful advocates returned home with purpose—putting in the work locally to uplift their communities and bring even more back to share at the next summit.

Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Living with Hemophilia B: From Challenges to Hopeful Futures 🩸 Join us for an information-filled virtual event on July 29 at 7 PM EST, in partnership with Novo Nordisk! 👉 Register now: hubs.li/Q03yk6380

Living with Hemophilia B: From Challenges to Hopeful Futures 🩸

Join us for an information-filled virtual event on July 29 at 7 PM EST, in partnership with Novo Nordisk!
👉 Register now: hubs.li/Q03yk6380
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Congress has Passed H.R. 1, the One Big Beautiful Bill for America—Now What? Let’s talk about how this bill impacts your healthcare. Bleeding Disorders National Community Organizing Call Wednesday, August 6, 2025 6:00–7:00 PM ET Meeting Link:hubs.li/Q03yhp0y0

Congress has Passed H.R. 1, the One Big Beautiful Bill for America—Now What? 

Let’s talk about how this bill impacts your healthcare. 

Bleeding Disorders National Community Organizing Call 
Wednesday, August 6, 2025 
6:00–7:00 PM ET 
Meeting Link:hubs.li/Q03yhp0y0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

This Disability Pride Month, we recognize that for many, living with a bleeding disorder means navigating challenges so significant that their condition is considered a disability. We celebrate their strength and continue to fight for better care and access for everyone. 💪🩸

This Disability Pride Month, we recognize that for many, living with a bleeding disorder means navigating challenges so significant that their condition is considered a disability. We celebrate their strength and continue to fight for better care and access for everyone. 💪🩸
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Today we honor the anniversary of the signing of the Americans with Disabilities Act (ADA) in 1990 — a landmark moment in the fight for equity, access, and dignity. We celebrate your resilience, raise your voices, and continue to advocate for a more inclusive future. 💪🩸

Today we honor the anniversary of the signing of the Americans with Disabilities Act (ADA) in 1990 — a landmark moment in the fight for equity, access, and dignity.

We celebrate your resilience, raise your voices, and continue to advocate for a more inclusive future. 💪🩸
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

⏰ Time is running out to register! Join us tomorrow, July 29 ,at 7pm ET for Living with Hemophilia B: From Challenges to Hopeful Futures, an interactive virtual event presented in partnership with Novo Nordisk. 👉 Register now: hubs.li/Q03z41fY0

⏰ Time is running out to register!

Join us tomorrow, July 29 ,at 7pm ET for Living with Hemophilia B: From Challenges to Hopeful Futures, an interactive virtual event presented in partnership with Novo Nordisk.

👉 Register now: hubs.li/Q03z41fY0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

💬 Join us TOMORROW for Living with Hemophilia B: From Challenges to Hopeful Futures, an interactive virtual event where you can get your questions answered and explore what's ahead in treatment and care. 🗓️ July 29 | 7 PM EST 🔗 Register now: hubs.li/Q03z6QYY0

💬 Join us TOMORROW for Living with Hemophilia B: From Challenges to Hopeful Futures, an interactive virtual event where you can get your questions answered and explore what's ahead in treatment and care.

🗓️ July 29 | 7 PM EST
🔗 Register now: hubs.li/Q03z6QYY0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

Tonight, Dr. Robert Sidonio will talk about the challenges you may be facing living with hemophilia B. We’ll cover what roadblocks you may experience, and we want to hear what you hope for in the future when it comes to hemophilia B management. hubs.li/Q03z4Bkr0

Tonight, Dr. Robert Sidonio will talk about the challenges you may be facing living with hemophilia B. We’ll cover what roadblocks you may experience, and we want to hear what you hope for in the future when it comes to hemophilia B management.
hubs.li/Q03z4Bkr0
Hemophilia Federation of America (HFA) (@hemophiliafed) 's Twitter Profile Photo

🩸 Have von Willebrand Disease? We want to hear from YOU! 📋 Take the 25-minute survey and get a $10 Amazon gift card as a thank you! 👉 Open to adults with vWD or caregivers of kids with vWD in the U.S. hubs.li/Q03zwJ1W0

🩸 Have von Willebrand Disease? We want to hear from YOU!

📋 Take the 25-minute survey and get a $10 Amazon gift card as a thank you!

👉 Open to adults with vWD or caregivers of kids with vWD in the U.S.
hubs.li/Q03zwJ1W0