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🇨🇦Canadians: Please sign this House of Commons petition to support access to remote work. This will reduce in-person COVID exposures, provide access to financial security and workplace protection for disabled people & caregivers #pwLC #LongCovid petitions.ourcommons.ca/en/Petition/Si…

A study from #Brazil finds 1 in 4 adults who had mild #COVID19 demonstrated cognitive deficits. The average age of study participants was 38. See what happened when they were asked to copy a diagram. We are not prepared for this. #MedTwitter #LongCovid brainfacts.org/diseases-and-d…

Closing today! This is your last chance to nominate and apply to join our team. Do you want to help shape the future of #LongCOVID #Physiotherapy #GlobalPT

Thank you so much to our panelists, Hannah, Anisha, Melissa, Susie, Mark, Harriet, and AlyssaaErinn.bsky.social for sharing your experiences with the audience today!

New paper by Todd Davenport presenting a newly validated questionnaire for quantifying the impact of PEM/PESE on daily activities 👏🏻 Developing tools like this is my main area of expertise, hoping I’ll be able to read this properly one day soon 🤞🏻 content.iospress.com/articles/work/…

This is an excellent survey created by Patient-Led Research Collaborative designed to better understand how #COVID-19 infections and reinfections are impacting long-term health outcomes. I encourage anyone who can to participate!…in fact I just filled out the survey myself 😀: uclcovid19.fra1.qualtrics.com/jfe/form/SV_a2…

#TheAcidTest, I'm hoping for some community support! Naomi Harvey PhD #WearAMask has the GlucoRx order in the UK, nearly ready to mail to us to distribute to the 67 people around the US who will be contributing to the project I would cost $2700 to send the full order priority! 😬 ...

The updated #LongCovid posters are now up on BART 🚈 ! Thanks @kfrhoads for inviting Lisa McCorkell & I to work on this with you, UMOJA HEALTH & Patient-Led Research Collaborative Let’s get more of this everywhere.

We at Patient-Led Research Collaborative are hiring a part-time grant writer at 20 hours/week! Applicants with lived experience of chronic illness or disability are particularly welcome! Pay is $4000-$6250/month! Please RT & distribute widely! docs.google.com/document/d/1xp… #LongCovid #NEISvoid #pwME

We have a new paper out in Nature Mental Health on mental health & coping in #LongCovid! Mental health is historically complex to study in post-viral illnesses, & we were lucky to have this work led by @YochaiReemMD, a psychiatrist with lived experience of Long Covid himself! 1/

We’re excited to announce that the 1st issue of the Patient-Generated Hypotheses Journal is available as a pdf on our website! This issue includes 6 hypotheses + poll results created by patients w/ #LongCOVID or associated conditions (or caregivers). patientresearchcovid19.com/patient-genera…

This is how we inspire revolutionary change and make this ALL different. REIMAGINE what is possible ♥️ This world wasn’t built for us but we can rebuild one that centers patients and recognizes the humanity of healthcare professionals to enrich care. patientresearchcovid19.com/patient-genera…

A major piece of medical research came out this week: It is now *confirmed* that spinal cord injuries can suppress immune function. This explains why patients with spinal cord injury are prone to infections, & may lead to insight into #LongCovid. medpagetoday.com/neurology/gene… 1/

🛑I wrote about what “fatigue” really means for people with long COVID and ME/CFS, and why this profoundly debilitating symptom is so often misunderstood and trivialized. (This piece also covers PEM.) 1/ theatlantic.com/health/archive…

We're happy to release a new patient-led paper on returning to work & episodic disability in #LongCovid! Thank you to Beth Stelson for leading, and contributors Devanshi Dash, Lisa McCorkell, Cali Wilson, Gina Assaf, @YochaiReemMD, & Hannah! sciencedirect.com/science/articl… 1/

UPDATE! In addition to Lisa McCorkell & Hannah Davis, three other members of the PLRC leadership team will be coming to the Long COVID Hour on Monday 12/18: Aimee Weiss, Hannah, and @TheMegascope! 👩‍🔬👩‍🔬👩‍🔬👩‍🔬👩‍🔬🤩 x.com/i/spaces/1eaKb…

One of the biggest advocacy opportunities of the year has launched - FDA/CURE-ID's #LongCovid treatment survey! There are many treatment surveys, but this one is special - the data will be used as evidence to help inform which drugs to study in clinical trials! Please RT! 1/