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Thank you ME Research UK - making connections that matter & great opportunity for the talent we have in N.I. to make it onto the #ME biomedical research map soon 🤞Dr Connor Bamford Dr Lindsay Broadbent HSCRandD Ulster University NICRF NI Clinical Research Network 👇

Recognise-Diagnose-Support #ME #Hope 🎥 Stormont event videos are now live! Opening address by host Robbie Butler MLA with NI Health Minister Mike Nesbitt: “We are not doing enough… I will do what I can.” Let’s turn words into action #MEAwareness 📺 youtu.be/eIvy0CSxymo?si…

Recognise – Diagnose – Support #ME 🎥 We’re incredibly grateful to Tara Anderson Queen's University Belfast 🎓 leading 1st ever NI-M.E. based research-a milestone for our community! Watch 📺 youtu.be/54ewzQgO-XU?si… #MEAwareness #Hope4MEandFibroNI #MyalgicEncephalomyelitis #Stormont #ResearchMatters

This is such a positive outcome for people with #MyalgicEncephalomyelitis thanks to Southern Trust - So encouraging to hear 1hr webinar “Learn About ME’ is bringing welcome change 👇 gpni.co.uk/webinars/gpni-…

Community rehabilitation saves lives & strengthens our economy. Appointing a dedicated Lead is key to transforming policy into real impact in N. Ireland. Let’s drive change! Great meeting with Alliance Party & Danny Donnelly MLA #RehabLeadership #HealthInnovation #NIHealthcare

New research has identified that long term persistent pain, commonly experienced by people with ME/CFS and those with Fibromyalgia, is processed differently in the nervous system from pain that comes from an injury or over exertion. Read more: bit.ly/4dXimMJ

Highlights from Prof Chris Ponting’s presentation to the joint APPG on ME & Long Covid: He made clear that graded exercise is harmful, and warned that despite rising numbers, there’s still no research strategy, no effective treatments, and almost no funding. #MECFS #LongCovid

#ME/CFS isn’t just chronic fatigue-it’s a complex neuroimmune disease with brain & CNS symptoms, often involving brain inflammation & very different from general fatigue Differential diagnosis between “chronic fatigue” and “chronic fatigue syndrome” - PMC pmc.ncbi.nlm.nih.gov/articles/PMC65…

Still worth noting -#ME the commonest alternative psychiatric diagnosis was depressive illness. 49% patients had alternative diagnoses Alternative diagnoses to chronic fatigue syndrome in referrals to a specialist service: service evaluation survey - PMC pmc.ncbi.nlm.nih.gov/articles/PMC32…

📢 Over 2,000 views in 3 years on Clinical Education Centre - CEC Our charity brought world-class experts to frontline staff with 5 FREE webinars for nurses/midwives &AHPs helping close the education gap for #ME Now available on our YouTube channel 👇 Every view = better care youtube.com/playlist?list=…

youtu.be/vv0pUwoF9J0?si… Well done Dr Michelle Bull 💙 you represented Physios For ME so well. Some great #ME talks, well done all at the ME/CFS conference, digging deeper - Norway.

So proud of what we've achieved over the last six years. Four like-minded #physios trying to improve the lives of #pwme.

A promise for #PWME from NI Health Minister Mike Nesbitt: “It’s very important for me to listen…to learn…I will do what I can” 💙 Thank you-listening & learning gives hope for action on vital early & accurate diagnosis. We urge Health and Social Care Northern Ireland to highlight #ME @GPNI clinical update

New research suggests a potential 38,000 adults and children in N. Ireland now living with #MyalgicEncephalomyelitis No specialist consultant - despite successful recruitment for post in 2018 but service delivery failed 7year search for suitable applicant thus far unsuccessful

💙 Huge thanks to our #LongCovid rep Rebecca Logan♿🌻💙😷#FBLC for her powerful talk to 70+ 2nd-year QUB nursing students on post-Covid ME & the importance of understanding #PEM 🎥 ‘Discover ME’ film was screened 📚 Research by Tara Anderson ongoing 👏 Another major step forward for #ME