I AM ALS (@iamalsorg) 's Twitter Profile
I AM ALS

@iamalsorg

I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.

ID: 1064599477342875649

linkhttps://iamals.org/ calendar_today19-11-2018 19:21:09

6,6K Tweet

25,25K Followers

732 Following

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This isn't just a statistic—it’s a call to action. We work to ensure those who served receive the support, care, and justice they deserve. Learn more about Veterans' risk of ALS: bit.ly/3HGHXO2

This isn't just a statistic—it’s a call to action. We work to ensure those who served receive the support, care, and justice they deserve.

Learn more about Veterans' risk of ALS: bit.ly/3HGHXO2
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🇺🇸 Families of Veterans who lived with ALS deserve the care they’ve earned. The Justice for ALS Veterans Act, if passed, will ensure spouses of Vets who pass from ALS receive the support they need no matter how long they lived. Learn more & take action: bit.ly/4munnQN

🇺🇸 Families of Veterans who lived with ALS deserve the care they’ve earned.
The Justice for ALS Veterans Act, if passed, will ensure spouses of Vets who pass from ALS receive the support they need no matter how long they lived.
Learn more & take action: bit.ly/4munnQN
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🧠 Join us July 24 at 7pm ET for a webinar on Specialized ALS Care for long-term care providers! Learn from people living with ALS and care experts about best practices, unique issues, compassionate care, and more. 📌 Register: bit.ly/3HzteV2

🧠 Join us July 24 at 7pm ET for a webinar on Specialized ALS Care for long-term care providers! Learn from people living with ALS and care experts about best practices, unique issues, compassionate care, and more.
📌 Register: bit.ly/3HzteV2
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Happy Pride Month! Today marks the 10th anniversary of a pivotal milestone in LGBTQ+ and civil rights history. Did you know that the Supreme Court ruling ten years ago centered around two individuals from the ALS community? Read more about it: bit.ly/3T4z8Qw

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ALS Awareness is returning to Major League Baseball one more time this summer: the New York New York Mets are helping to Strike Out ALS on July 2! Join I AM ALS, ALSUnitedGNY, Her ALS Story, @MacAngelsNY, and Target ALS by signing up today: bit.ly/4jW57gw

ALS Awareness is returning to Major League Baseball one more time this summer: the New York <a href="/Mets/">New York Mets</a> are helping to Strike Out ALS on July 2! Join I AM ALS, <a href="/ALSofGNY/">ALSUnitedGNY</a>, <a href="/HerALSStory/">Her ALS Story</a>, @MacAngelsNY, and <a href="/TargetALS_fdn/">Target ALS</a>  by signing up today: bit.ly/4jW57gw
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The #LongitudePrizeOnALS has launched! 🙌 This global, $10M challenge prize will drive AI-led innovation to transform drug discovery for #ALS. If you work in #ALSResearch #Biotech #ComputationalBiology or #AI learn more: bit.ly/43CUPfb MND Association Challenge Works

The #LongitudePrizeOnALS has launched! 🙌 This global, $10M challenge prize will drive AI-led innovation to transform drug discovery for #ALS. If you work in #ALSResearch #Biotech #ComputationalBiology or #AI learn more: bit.ly/43CUPfb <a href="/mndassoc/">MND Association</a> <a href="/Challenge_Works/">Challenge Works</a>
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🧾 Caregivers deserve credit—literally. The Credit for Caring Act of 2025 would provide up to $5,000 in tax relief for unpaid family caregivers—including those caring for someone with ALS. Tell Congress: Pass the Credit for Caring Act. 👉 Take action now: bit.ly/4eiJkyr

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Writing is a powerful way to process your emotions and express yourself. Just ask the Scribes of Strength! ...No, really, you can actually ask them about it! Ask Me Anything ALS: Encouraging Writing in the ALS Community is coming up on July 15. Register: bit.ly/4e8S5Lr

Writing is a powerful way to process your emotions and express yourself. Just ask the Scribes of Strength! 

...No, really, you can actually ask them about it! Ask Me Anything ALS: Encouraging Writing in the ALS Community is coming up on July 15. Register: bit.ly/4e8S5Lr
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Thank you Gus Bilirakis for standing with us as part of the #ALS Caucus! The ALS community is so grateful for your commitment to prioritize the urgency of ALS, funding for research, support for people living with ALS, and more.

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The phrase "Voice Technology" encompasses so many amazing tools being used by people with speech challenges. 🎤 Check out this webinar we hosted with Bridging Voice about all the cool voice tech being utilized by people living with ALS! bit.ly/45tBW0Z

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Wait, June is almost over already?! That means we're gearing up for July Social Hour! Wait out the dog days of summer in a cool, air-conditioned Zoom room to hang out with and get to know your fellow ALS advocates. bit.ly/4jbhYuS

Wait, June is almost over already?! That means we're gearing up for July Social Hour! Wait out the dog days of summer in a cool, air-conditioned Zoom room to hang out with and get to know your fellow ALS advocates. bit.ly/4jbhYuS
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You know her name, and now you know her face (and her incredible fashion sense, too!). Thanks for all you do, Deb! Learn more about Empathy Dinners and request a copy of the toolkit today: bit.ly/3T0YBu2

You know her name, and now you know her face (and her incredible fashion sense, too!). Thanks for all you do, Deb! Learn more about Empathy Dinners and request a copy of the toolkit today: bit.ly/3T0YBu2
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Thank you Senator Chris Van Hollen for standing with us as part of the ALS Caucus! The ALS community is so grateful for your commitment to prioritize the urgency of ALS, funding for research, support for people living with ALS, and more.

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The New York New York Mets are Striking Out ALS TONIGHT at Citi Field! Enjoy the game, ALS advocates. Remember to tag us in your posts so we can share! #EndALS

The New York <a href="/Mets/">New York Mets</a> are Striking Out ALS TONIGHT at Citi Field! Enjoy the game, ALS advocates. Remember to tag us in your posts so we can share! #EndALS
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Join us in two weeks for a webinar about the critical role of brain donation in research, with FAQs, and a panel of community members discussing how they decided whether or not to donate. bit.ly/4ngvRvb #EndALS #BrainDonation

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Repost from last night's final Lou Gehrig Day game of this season 💙 📷 by @macangelsfoundation: Strike Out ALS Night at Citifield, supported by @macangelsfoundation alsofgny I AM ALS @heralsstory @targetals #als #pals

Repost from last night's final Lou Gehrig Day game of this season 💙 

 📷 by @macangelsfoundation: Strike Out ALS Night at Citifield, supported by @macangelsfoundation alsofgny <a href="/iamalsorg/">I AM ALS</a> @heralsstory @targetals #als #pals
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Just diagnosed with ALS? You're not alone. We know this moment can be overwhelming—but we have a community to support you every step of the way. From care guides to personal stories, I AM ALS will help you navigate this new chapter. 🌟 Start here: bit.ly/3SYk6eX

Just diagnosed with ALS? You're not alone.

We know this moment can be overwhelming—but we have a community to support you every step of the way. From care guides to personal stories, I AM ALS will help you navigate this new chapter.

🌟 Start here: bit.ly/3SYk6eX
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Ask Me Anything ALS: Encouraging Writing in the ALS Community is coming up! Whether you're a seasoned writer or have only ever thought about making the leap, this session is for you. ✍️ bit.ly/4e8S5Lr

Ask Me Anything ALS: Encouraging Writing in the ALS Community is coming up! Whether you're a seasoned writer or have only ever thought about making the leap, this session is for you. ✍️ bit.ly/4e8S5Lr
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July may have just begun, but this month's social hour is already drawing near! Join us on July 15 to hang out with your fellow ALS advocates and get a taste of what I AM ALS is all about. bit.ly/4jbhYuS

July may have just begun, but this month's social hour is already drawing near! Join us on July 15 to hang out with your fellow ALS advocates and get a taste of what I AM ALS is all about. bit.ly/4jbhYuS