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Health Level Seven International's #FHIR specifications are becoming increasingly popular and instrumental in advancing interoperability in healthcare and transforming digital ecosystems around the world. But can this be measured? A team of researchers led by Roberta Gazzarata

On July 16th, Claudia Egher presented the work done so far on #IDEA4RC together with @susanvanhees and Wouter Boon Utrecht University at #EASST4S2024, a global event that brings together every four years the Science and Technology Studies community #STS Read the abstract of Claudia's

#IDEA4RC has just launched its Community of Interest, beginning with #patients' representatives from EURACAN, the European Reference Network devoted to rare adult solid cancers. How can patients contribute to research? What are the best ways to engage with them? How did

In building its #RareCancers ecosystem, #IDEA4RC is following a #FederatedLearning approach. This means that the data of each clinical centre participating in a specific research study will not leave the centre. Instead, the results of the analysis on each centre’s data will be

✉️ The seventh issue of the #IDEA4RC #newsletter is out! 🎤 Want to discover what is #FederatedLearning and how the IDEA4RC platform will employ it to allow clinical centres to run analyses on the combination of their data while preserving their patients' #privacy? Read our

Are you interested in learning more about the solutions #IDEA4RC is developing to reuse #RareCancers #data? Would you like to better understand how the #EuropeanUnion is regulating #HealthData reuse, especially for research purposes? Are you part of a rare cancer #patient

#IDEA4RC has just launched its Community of Interest, beginning with #patients' representatives from EURACAN, the European Reference Network devoted to rare adult solid cancers. The Community will gradually include other professional categories, collectively shaping and

Are you interested in learning more about the solutions #IDEA4RC is developing to reuse #RareCancers #data? Would you like to better understand how the #EuropeanUnion is regulating #HealthData reuse, especially for research purposes? Are you part of a rare cancer #patient

🎤 Read our interview with Vasiliki Tsiompanidou, legal researcher Europrivacy , about the legal challenges in navigating the shifting hashtag #EU #legal landscape concerning #HealthData sharing and re-use. To deploy the pilot projects, which will start later this year to test

Among the goals of the #EuropeanHealthDataSpace is facilitating data access for research and innovation purposes. A recent #comment published in Nature Medicine by experts in various health data research fields highlights how cross-border sharing of health data can benefit the

Among the goals of the #EuropeanHealthDataSpace is facilitating data access for research and innovation purposes. A recent #comment published in Nature Medicine by experts in various health data research fields highlights how cross-border sharing of health data can benefit the

Many of the variables that clinicians find essential for #RareCancer research are hidden within clinicians' notes, pathology reports, or radiology records. These documents are written in natural language, which can be processed by training #LargeLanguageModels on labelled text.

Many of the variables that clinicians find essential for #RareCancer research are hidden within clinicians' notes, pathology reports, or radiology records. These documents are written in natural language, which can be processed by training #LargeLanguageModels on labelled text.

📩 The 8th issue of the #IDEA4RC #newsletter is out! In this issue: 🎤 IDEA4RC researchers are developing a Natural Language Processing (NLP) model to extract data on rare cancers from the notes and reports written by clinicians, radiologists and pathologists. We interviewed

One out of four cancers diagnosed each year in #Europe is a rare #cancer. Research on #RareCancers would greatly benefit from the analysis of large and diverse data sets, which is currently hampered by lack of interoperability among clinical centres and personal data protection

#IDEA4RC has just launched its Community of Interest, beginning with #patients' representatives from EURACAN, the European Reference Network devoted to rare adult solid cancers. The Community will gradually include other professional categories, collectively shaping and

Are you interested in learning more about the solutions #IDEA4RC is developing to reuse #RareCancers #data? Would you like to better understand how the #EuropeanUnion is regulating #HealthData reuse, especially for research purposes? Are you part of a rare cancer #patient

📩 The 8th issue of the #IDEA4RC #newsletter is out! In this issue: 🎤 IDEA4RC researchers are developing a Natural Language Processing (NLP) model to extract data on rare cancers from the notes and reports written by clinicians, radiologists and pathologists. We interviewed

Next week members of the #IDEA4RC project will gather in Rome for the fifth consortium meeting, hosted by ENGINEERING GROUP Read the agenda on our website 👉 buff.ly/4emBQJ7 #HorizonEurope #EHDS #EuropeanHealthDataSpace #ArtificialIntelligence #LargeLanguageModels #AI

Next week members of the #IDEA4RC project will gather in Rome for the fifth consortium meeting, hosted by ENGINEERING GROUP Read the agenda on our website 👉 buff.ly/3AD2y2E #HorizonEurope #EHDS #EuropeanHealthDataSpace #ArtificialIntelligence #LargeLanguageModels #AI