🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

🌍 One Voice for the HD Community Discover why our global members joined HD-CAB, uniting to strengthen the voice of the Huntington’s disease community worldwide. 💬 Their stories inspire collaboration and drive progress for research and care

🚲 ExploreforHuntington, Dimitri Poffé's bicycle adventure through South America raising awareness for Huntington's Disease, inspired a documentary called "The Present", now available for free on Youtube 🎥 Read more and watch the documentary here ➡bit.ly/3ZKq07L

💊 uniQure, a leading gene therapy company advancing transformative therapies for patients with severe medical needs, announced yesterday an alignment with the FDA on key elements of an Accelerated Approval pathway for AMT-130. 🔗 Full press release➡bit.ly/4guPmff

📢 What is an Advisory Board and how can HD CAB help? HD-CAB connects the Huntington’s Disease community with industry and researchers, ensuring the voices of those impacted by HD are heard. 🗓️ Book your Ad board today, virtually or at the HDYO Congress, next March!

📖 Emma Wajswasser is a 12-year-old student from Toronto whose grandpa is living with HD. She wrote this book because she wanted to educate kids and adults about the disease and how to interact with people in a kind and compassionate way 🔗 bit.ly/49WrkrL

Reflecting on an Incredible Year: A Look Back at 2024 with HD-CAB ✨ 📈 As we step into the new year, it’s the perfect time to pause and reflect on the journey we've shared over the last 12 months. 2024 has been a year filled with growth, collaboration, and incredible milestones.

🤗 Thank you to everyone who has been a part of this journey – your support, passion, and dedication continue to inspire us. As we look ahead, we are more excited than ever to build on these achievements and continue pushing boundaries in the year to come.

No estoy llorando, se me metió una causa en los ojos. Vean el documental “The Present” del director Timothy Dhalleine, el viaje de Dimitri Poffé de México a la Patagonia para encontrar el sentido del presente y el maravilloso regalo que es la vida. Cascada Expediciones 🎥

🚀 @rarediseasesint announced the launch of the RDI Youth Leadership Programme, that aims to ensure that the perspectives of young leaders are actively represented in global discussions and decision-making processes that shape the future of rare diseases. bit.ly/3WiW801

🌍 One Voice for the HD Community Our advocates share how being heard & empowered through HD-CAB advisory boards makes a difference for the HD community. ✨ Learn more or schedule your board at hd-cab.org.

📣 Research Update 🔬 SOM Biotech announced yesterday the results of Phase 2b study with SOM3355, demonstrating a unique profile with robust improvements of chorea in Huntington's Disease Patients 🔗 Read the full press release ➡ huntington-disease.org/2025/02/06/som…

HD-CAB ensures the HD community’s voice is heard in research & drug development. We discuss key topics that matter most—& we can adapt to cover more! 💡 Want patient insights on a specific topic? Let’s talk! #HuntingtonsDisease #ClinicalTrials #PatientVoice #OneVoice4HD

🎥 Video Interview 🎥 Switzerland and China are working together to support the Huntington’s disease community. Watch this conversation about how international collaboration can make a difference. 📺 Watch here: bit.ly/4k9deYE

🌎 HD-CAB brings together 40 members from around the world. ✨ Meet Juan Carlos, whose passion for advocacy and personal connection to the HD community drive his commitment to making a difference 🌐 Learn more about HD-CAB at hd-cab.org

✨ More Than You Can Imagine | Rare Disease Day 2025 🙌 This Rare Disease Day, we celebrate the strength, resilience, and individuality of the HD community. More Than You Can Imagine reminds the world that people with HD are more than their diagnosis. youtube.com/watch?v=PLHdka…

🛫 HD-CAB will be present at Huntington's Disease Youth Organization (HDYO) International Young Adults Congress in Prague, next week from 14-16th March! Come by our booth to learn more about our advocacy work and to win some prizes 🏆 See you there 👋 #HDadvocacy