Here's a peek at resources we've been able to offer the primary immunodeficiency community in 2025! Have you utilized any of these support services this year?

We're excited to attend the National Hispanic Medical Association conference June 5-7 to discuss primary immunodeficiency (PI) diagnosis, research, and treatment! Stop by booth 504 to learn more and say hi!

Ready for more messages like this delivered right to your phone? 📱 Text "Affirmations" to 410-321-6647 Twice a week. Every week. Because you deserve daily reminders of how amazing you are. ✨ #PISupport #DailyAffirmations #Strength

Amy Johnson encourages people with primary immunodeficiency (PI) to be informed about their condition and find support through IDF. “Definitely get involved. It’s worth it," said Johnson, diagnosed with common variable immune deficiency (CVID) in 2011. bit.ly/4mnQG7r

Many times, abnormalities in the immune system that lead to PI also result in immune dysregulation. Learn more here: bit.ly/4kE5QE6

Tomorrow, we'll be in Baton Rouge to talk about the importance of community immunity and plasma donations for the #PIcommunity. If you're in #Louisiana, help us amplify the message! bit.ly/4588RYF

Thank you to our advocates in Louisiana for meeting with legislators on the importance of community immunity and plasma donations for the #PIcommunity!

#WalkForPI highlight: Milwaukee! With the Walk season here, we will be spotlighting each location. Our first event this year is on August 02 at the Milwaukee Zoo, a venue we are returning to from last year. Will you be there for a 2025 group photo? bit.ly/4k2P7dg

Donating plasma saves lives. Here's how!

Calling all clinicians! Join the Immune Deficiency Foundation October 8-9, 2025, in Bethesda, MD, to strengthen your clinical toolkit, network with leaders in the field of immunology, and connect the dots on primary immunodeficiency care. Register today: bit.ly/3Fd5xkE

We shared Susan's story #LivingWithPI last month, but did you know she organized a meaningful neighborhood Coast to Coast walk in 2024, which featured decorated golf carts and more? That's right, you can join the virtual walk and make it your own. bit.ly/3F0q6R5

Please take a moment to send this action alert to let your policymakers know the vital role vaccines play in community immunity and the overall health of people with primary immunodeficiency: bit.ly/43E0NOg

The immune system is a complex set of organs, cells, proteins, and other substances. Many times, abnormalities in the immune system that lead to PI can lead to autoimmunity. #autoimmunity #immunesystem

Primary immunodeficiency (PI) patients who experience several infections a year, even though they are on immunoglobulin (Ig) replacement therapy, should consider requesting an increase in the dose of Ig therapy to achieve better health. bit.ly/45saP6k

Caitlin BenVau, 27, is diagnosed with common variable immune deficiency (CVID), but that didn’t deter her from living in a Texas desert for five years while working on rocket engines. BenVau encourages her peers to follow their ambitions. bit.ly/3SDKtqt

🌍✈️ Headed somewhere fun this summer with primary immunodeficiency (PI)? We've got you covered! ☀️✨ A little planning goes a long way so you can focus less on logistics and more on making memories. 💛❤️ Jeffrey Modell Foundation (JMF)

#WalkForPI fundraising efforts directly support our Research Grant Program! IDF is committed to advancing the scientific knowledge on PI, and walking is a great way to bolster this key program. Read about IDF's research before signing up to walk: bit.ly/45luaX0

Another update on respiratory syncytial virus: U.S. FDA approved a new monoclonal antibody to prevent severe #RSV in infants. Check out our summary of all the RSV preventatives available and their approved use: bit.ly/4dXPST7.

Our offices will be closed today, Thursday, June 19, for Juneteenth. We will return to the office tomorrow, Friday, June 20.

We're excited to attend the National School Nurse Association conference June 26-29 to discuss primary immunodeficiency (PI) diagnosis, research, and treatment. Stop by booth 231 to learn more and say hi!