IndoUSrare (@indousrare) 's Twitter Profile
IndoUSrare

@indousrare

IndoUSrare is a non-profit public charity organization based in the US, which addresses the unmet needs of diverse patients with rare diseases globally.

ID: 1060916055529455617

linkhttps://www.indousrare.org/ calendar_today09-11-2018 15:24:33

2,2K Tweet

815 Followers

1,1K Following

IndoUSrare (@indousrare) 's Twitter Profile Photo

Thrilled to welcome Dr. Neerja Gupta, MD, DM, AIIMS Delhi, to the Indo US Bridging RARE Summit 2025! A pioneer in pediatric genetics, her work is key to advancing rare disease care and global equity. 💙🧬🌍 #BridgingRARE #Summit2025 #IndoUSrare

Thrilled to welcome Dr. Neerja Gupta, MD, DM, AIIMS Delhi, to the Indo US Bridging RARE Summit 2025! A pioneer in pediatric genetics, her work is key to advancing rare disease care and global equity. 💙🧬🌍 #BridgingRARE #Summit2025 #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

🌐 Join us Nov 2–4 at the Indo US Bridging RARE Summit 2025 in VA! Be a sponsor/exhibitor & #Bridge4Rare with global leaders in rare disease advocacy. 🌍 Form now live! 🔗 bit.ly/SummitSponsors… #BridgingRare #RareTogether

🌐 Join us Nov 2–4 at the Indo US Bridging RARE Summit 2025 in VA! Be a sponsor/exhibitor & #Bridge4Rare with global leaders in rare disease advocacy. 🌍 

Form now live! 🔗 

bit.ly/SummitSponsors…

 #BridgingRare #RareTogether
IndoUSrare (@indousrare) 's Twitter Profile Photo

🔬 IndoUSrare Founder Dr. Harsha Rajasimha will attend the NORD Rare Disease Symposium 2025! Join top minds in rare disease innovation. 🗓️ June 2–3 📍 Register: nord.cventevents.com/event/49359d0b… #NORDSymposium #RareTogether #IndoUSrare

🔬 IndoUSrare Founder Dr. Harsha Rajasimha will attend the NORD Rare Disease Symposium 2025! Join top minds in rare disease innovation. 🗓️ June 2–3 

📍 Register: nord.cventevents.com/event/49359d0b…

 #NORDSymposium #RareTogether #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

🎙️ Excited to share that our Founder, Dr. Harsha Rajasimha, will speak at #VCCRN2025 — VA’s first statewide clinical research summit on June 4 at The Westin, Richmond. Don’t miss it! 👉 my.vhha.com/events/s/commu… #ResearchMatters

🎙️ Excited to share that our Founder, Dr. Harsha Rajasimha, will speak at #VCCRN2025 — VA’s first statewide clinical research summit on June 4 at The Westin, Richmond. 

Don’t miss it! 👉 my.vhha.com/events/s/commu… 
#ResearchMatters
IndoUSrare (@indousrare) 's Twitter Profile Photo

📢 Social media is transforming rare disease advocacy — from storytelling to global impact. At IndoUSrare, we're proud to amplify rare voices and drive change across borders. 💙🌍📲 👉 Learn more: indousrare.org/social-media-i… #RAREAdvocacy #Bridge4RARE

📢 Social media is transforming rare disease advocacy — from storytelling to global impact. 

At IndoUSrare, we're proud to amplify rare voices and drive change across borders. 💙🌍📲

👉 Learn more: indousrare.org/social-media-i…

#RAREAdvocacy #Bridge4RARE
IndoUSrare (@indousrare) 's Twitter Profile Photo

Team @IndoUSrare proudly welcomes Dr. Ratna Dua Puri, a pioneer in medical genetics, to the Bridging RARE Summit 2025! Her leadership drives progress in rare disease care, diagnosis & global collaboration. 💙🌍 #BridgingRARE #Summit2025 #ROAR4RARE

Team @IndoUSrare proudly welcomes Dr. Ratna Dua Puri, a pioneer in medical genetics, to the Bridging RARE Summit 2025! 

Her leadership drives progress in rare disease care, diagnosis & global collaboration. 💙🌍

 #BridgingRARE #Summit2025 #ROAR4RARE
IndoUSrare (@indousrare) 's Twitter Profile Photo

🎙️ Excited to share that our Founder, Dr. Harsha Rajasimha, will speak at #VCCRN2025 — VA’s first statewide clinical research summit on June 4 at The Westin, Richmond. Don’t miss it! 📷 my.vhha.com/events/s/commu…… #ResearchMatters

🎙️ Excited to share that our Founder, Dr. Harsha Rajasimha, will speak at #VCCRN2025 — VA’s first statewide clinical research summit on June 4 at The Westin, Richmond.   

Don’t miss it! 📷 

my.vhha.com/events/s/commu…… 
#ResearchMatters
IndoUSrare (@indousrare) 's Twitter Profile Photo

🚨 Join changemakers at the Indo US Bridging RARE Summit 2025! 🧬 Nov 2–4, Manassas, VA. Speak, present, or pitch to advance rare disease care. Apply now! 🌍 summit.indousrare.org #BridgingRARE #RAREInnovation #Pitch4RARE #GlobalHealth

🚨 Join changemakers at the Indo US Bridging RARE Summit 2025! 🧬 Nov 2–4, Manassas, VA. Speak, present, or pitch to advance rare disease care. 

Apply now! 🌍 summit.indousrare.org 

#BridgingRARE #RAREInnovation #Pitch4RARE #GlobalHealth
IndoUSrare (@indousrare) 's Twitter Profile Photo

Join IndoUSrare at Bullpen & BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM. Limited seats! 🤝Request your invite: bullpen.club/bio-internatio… #BIO2025 #RareDisease #IndoUSrare

Join IndoUSrare at Bullpen & BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM. 

Limited seats! 🤝Request your invite: bullpen.club/bio-internatio… #BIO2025 #RareDisease #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

💡 Got a game-changing idea for rare diseases? Pitch4Rare is BACK! Apply now to pitch at the Indo US Bridging RARE Summit 2025! Gain mentorship, visibility & funding! 👉 indousrare.jeevatrials.com/DD82B44AE31944… #Pitch4Rare #InnovateForRare #IndoUSrare

💡 Got a game-changing idea for rare diseases? Pitch4Rare is BACK! Apply now to pitch at the Indo US Bridging RARE Summit 2025! 

Gain mentorship, visibility & funding! 👉 indousrare.jeevatrials.com/DD82B44AE31944…

#Pitch4Rare #InnovateForRare #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

Join IndoUSrare at Bullpen & BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM. Limited seats! 📷 Request your invite: bullpen.club/bio-internatio… #BIO2025 #RareDisease #IndoUSrare

Join IndoUSrare at Bullpen & BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM.   Limited seats! 📷

Request your invite: bullpen.club/bio-internatio…

#BIO2025 #RareDisease #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

🌐 We’re live! IndoUSrare’s new site is here — uniting and empowering the rare disease community globally through programs, tech, and advocacy. Explore our mission and get involved: summit.indousrare.org #RareButNotAlone #IndoUSrare #HealthcareEquity

🌐 We’re live! IndoUSrare’s new site is here — uniting and empowering the rare disease community globally through programs, tech, and advocacy. Explore our mission and get involved: summit.indousrare.org #RareButNotAlone #IndoUSrare #HealthcareEquity
IndoUSrare (@indousrare) 's Twitter Profile Photo

🧬 Rare Disease Care in India: Join us to discuss improving diagnosis & treatment access. 🎙 Dr. M. Pradeep Kumar & Dr. Ann Agnes Mathew 📅 June 28, 2025, 7:30 PM IST 🔗 bit.ly/RDcareinIndia #RareDisease #HealthcareEquity #RareCareIndia

🧬 Rare Disease Care in India: Join us to discuss improving diagnosis & treatment access.

🎙 Dr. M. Pradeep Kumar & Dr. Ann Agnes Mathew

📅 June 28, 2025, 7:30 PM IST

🔗 bit.ly/RDcareinIndia

#RareDisease #HealthcareEquity #RareCareIndia
IndoUSrare (@indousrare) 's Twitter Profile Photo

📸 VCCRN 2025 Summit Highlights! A privilege to join Virginia’s 1st clinical research summit—full of inspiring keynotes & connections. Proud of our Founder, Dr. Harsha Rajasimha, for representing us! #VCCRN2025 #ClinicalResearch #Innovation

📸 VCCRN 2025 Summit Highlights!

A privilege to join Virginia’s 1st clinical research summit—full of inspiring keynotes & connections. Proud of our Founder, Dr. Harsha Rajasimha, for representing us!

#VCCRN2025 #ClinicalResearch #Innovation
IndoUSrare (@indousrare) 's Twitter Profile Photo

A powerful gathering of leaders in the rare disease space! 🌍 Dr. Harsha K. Rajasimha of IndoUSrare joined global experts at #NORD2025 to drive equity, collaboration & innovation in rare disease research. #RareDisease #IndoUSrare #RareTogether #GlobalHealth

A powerful gathering of leaders in the rare disease space! 🌍

Dr. Harsha K. Rajasimha of IndoUSrare joined global experts at #NORD2025 to drive equity, collaboration & innovation in rare disease research.

#RareDisease #IndoUSrare #RareTogether #GlobalHealth
IndoUSrare (@indousrare) 's Twitter Profile Photo

📢 New: IndoUSrare & RDDC reveal <12% of U.S. rare disease trials report demographics—leaving many, including the Indian diaspora, unseen. They propose a 6-pillar equity framework. More at BIO 2025, DIA, & Bridging RARE. Read More - tinyurl.com/raretrialgapht…

📢 New: IndoUSrare &amp; RDDC reveal &lt;12% of U.S. rare disease trials report demographics—leaving many, including the Indian diaspora, unseen. They propose a 6-pillar equity framework. More at BIO 2025, DIA, &amp; Bridging RARE.

Read More - tinyurl.com/raretrialgapht…
IndoUSrare (@indousrare) 's Twitter Profile Photo

🌍 Join us at the Indo US Bridging RARE Summit 2025! 🌟 Nov 2–4 at George Mason Univ., VA. Explore rare disease research, global collaboration & patient stories. Register now: summit.indousrare.org #BridgingRare #RareDiseaseResearch

🌍 Join us at the Indo US Bridging RARE Summit 2025! 🌟 Nov 2–4 at George Mason Univ., VA. Explore rare disease research, global collaboration &amp; patient stories.
 Register now: summit.indousrare.org 
#BridgingRare #RareDiseaseResearch
IndoUSrare (@indousrare) 's Twitter Profile Photo

Join IndoUSrare at Bullpen & BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM. Limited seats! 📷 Request your invite: bullpen.club/bio-internatio…… #BIO2025 #RareDisease #IndoUSrare

Join IndoUSrare at Bullpen &amp; BIO 2025! 🌍 Don’t miss Dr. Harsha Rajasimha at the Rare Disease Forum on June 16 @ 11AM.   Limited seats! 📷 Request your invite: bullpen.club/bio-internatio…… #BIO2025 #RareDisease #IndoUSrare
IndoUSrare (@indousrare) 's Twitter Profile Photo

Honored to welcome Tina Aswani-Omprakash, MPH, of the South Asian IBD Alliance to #RARE2025! Join us Nov 2–4 at GMU as we advance inclusive, cross-border research in rare disease. 💙 Details: summit.indousrare.org #BridgingRARE #GlobalHealthEquity

Honored to welcome Tina Aswani-Omprakash, MPH, of the South Asian IBD Alliance to #RARE2025! Join us Nov 2–4 at GMU as we advance inclusive, cross-border research in rare disease. 💙

 Details: summit.indousrare.org #BridgingRARE 
#GlobalHealthEquity