When PhD-life gives you posters, strike a pose and present like a #pediatric #psychologist at #EPPC2023 📊 Poster is on barriers to care in pediatric #raredisease – main findings in thread👇collab with AndrewDwyer Prof Markus Landolt / @markuslandolt.bsky.social

Don't fret if you missed our booth and podium discussions at #Scientifica last weekend👀! While the physical booth has vanished, the incredible knowledge and fun memories are here to stay🥳. Thanks to everyone who stopped by #raredisease UZH Science Kinderspital Zürich Institute for Regenerative Medicine

📢 Join us at the ITINERARE Symposium 2023 on Nov 30th at University of Zurich ! Explore cutting-edge rare disease research, gene therapies, and more with global experts. Register by Nov 17th - it's free! Don't miss out! 🧬🔬 #RareDisease #UZH itinerare.uzh.ch/en/ITINERARE-S…

Seltenheit als Herausforderung – Die kostenlose Helpline Seltene Krankheiten unterstützt betroffene Kinder und Erwachsene, Angehörige und Fachpersonen bei der Recherche nach Experten, Informationen und Ressourcen. kispi.uzh.ch/helpline-selten

A new week is upon us and so is a new quiz question! 🥳 How many % of the Swiss population have a rare disease? 🔍

Just in time for the first ❄️ representatives from research and practice meet for the annual URPP ITINERARE Symposium in Zurich. 6 exciting presentations allow participants to learn about the latest findings and challenges in the field of #RareDisease

Our PhD Student Susi Wehrli & PostDoc Sebastian Wäscher published a new paper on healthcare access and health equity in #RareDiseases. Congrats Susi Wehrli & Sebastian 🥳!

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🎙️ Entdeckt die neueste #PodcastEpisode "Ich habe eine seltene Gefässerkrankung". Corinne, 36, teilt ihre Erfahrungen mit dem Klippel-Trénaunay-Weber-Syndrom, einer Herausforderung, die ihr Leben seit Geburt prägt. srf.ch/audio/rehmann/… SRF

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Great group of talented people that does and will shape our field!

📸 Sieh dir diesen Beitrag auf Facebook an facebook.com/share/J5Qdiaae…

Don't forget your registration for this years ITINERARE summer school: linkedin.com/feed/update/ur…

We have moved - you will now find the management team and many of the URPP ITINERARE researchers in the ultra-modern Research and Teaching building at the University Children's Hospital in Lengg.

Yay! We are overjoyed to announce that the #UZH Universität Zürich has approved the next funding period for the URPP ITINERARE! Thank you all for making this possible!