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Today we need to stand (or sit or lay down in my case) in solidarity with Millie, who is in hospital with very severe M.E.. She is being kept against her will, her M.E. deteriorating every day. Hospitals aren't equipped to deal with severe M.E. #BringMillieHome #DontLetMEDie

Truly could not be more excited for this 😭 Thank you Bernie Sanders for your leadership, thank you Michael Peluso, MD for calling for this with me in our Nature comment, and thank you Long Covid Moonshot & entire #LongCovid community for getting us to this point! sanders.senate.gov/press-releases…

Bernie Sanders (Bernie Sanders) has released a #LongCovid Moonshot Legislative Proposal calling for $10b in research funding!! This is thanks to so much advocacy from patients & allies 💓 Immense gratitude to Lisa McCorkell Patient-Led Research Collaborative @lcmoonshot Michael Peluso, MD & the community!

New Severity Scale for ME/CFS I wrote this new severity scale for ME/CFS about 2 years ago.  I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale.  And I wanted to make it more

Incredible stuff — so much gratitude to Lisa McCorkell & Michael Peluso, MD for inspiring the community around this #LongCovidMoonshot last fall — and to Bernie Sanders for once again proving to have unparalleled moral clarity, courage & vision that leads this country forward.

The first #MillionsMissing #TeachMETreatME event happens tomorrow! UNC Family Medicine UNC Family Medicine hosts an *internal* Grand Rounds first thing in the morning on Wednesday, April 12th. More #MEAction Network #MillionsMissong24 events coming up in April & May

Starting to see a pattern in patients who undergo jugular decompressions and their #POTS symptoms are greatly reduced or go away all together (self reported, of course!) 😅

More and more #longcovid patients, like #mecfs patients, are learning they have a connective tissue / structural problem that is most likely contributing to their neurological symptoms ⬇️⬇️⬇️

To those who tried Truvada, how long until the side effects went away? It’s been 2 weeks - the nausea has decreased a lot but still feel at a generally lower baseline, much more susceptible to PEM, all the immune symptoms very prevalent, worse POTS & light sensitivity. #longcovid

This is great. I was in the moderate to very severe A category for much of my illness

🧵 May is Myalgic Encephalomyelitis (ME) Awareness Month. You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea🦒. youtu.be/Fb3yp4uJhq0 #MyalgicE #MyalgicEncephalomyelitis Day #1

May is Myalgic Encephalomyelitis (ME) Awareness Month! You can help by liking and/or sharing this video. This 2017 TED talk features Jennifer Brea🦒 youtu.be/Fb3yp4uJhq0 #MyalgicE #MyalgicEncephalomyelitis #missmunchkinz

The first time I saw someone else experience what I did was when I watched Unrest by Jennifer Brea🦒 , during the parade scene. I knew the exact feeling she had as she progressively got worse. My husband even said, "that's how you look, too!"

This is a big deal — the absolute best bet for more #LongCovid research funding in next year is through the appropriation process. The fact we have these Senators leading a letter calling for $1 billion is a *huge fucking deal*.. Absolutely, 100%, ask your senator to sign on👇

2. Watch the incredible Netflix documentary about #MECFS by Jennifer Brea🦒 — Unrest — it’s now free on YouTube. This is a stunning & incredibly well done film — it’s content like this that really starts to bridge the gap for folks on illnesses like this. youtube.com/watch?v=XOpyLT…

“[#LongCovid] is a full NIH activity.. We must find better ways to.. restore the lives of these people” “We are not where we want to be right now in terms of rapid, nimble clinical trials.. testing promising treatments.. that is our focus right now moving forward” — @NIHDirector

I've been putting off watching this since I first heard about it a couple years ago, but I ended that procrastination tonight. #Unrest truly broke me while giving me hope for the future. Thank you, Jennifer Brea🦒. youtu.be/XOpyLTyVxco?si…

This makes me cry each time I watch it. And I'm curious how long it took Jennifer Brea🦒 to recover from having done this in-person speaking event. Days? Weeks? I wonder if the audience even imagined what the gift of her time & energy meant or cost her? #MECFS #LongCOVID

Were wealthy donors key to Trump’s campaigns in 2016 and 2020? I'm thrilled to announce a new paper in which @ SKates5350, Eric Manning, Tali Mendelberg and I analyzed data on 108 million (!) homeowner-voters. See cup.org/4cfm0Az 🧵 1/

I made a book. It’s playful, sexy, a little vulnerable—and very gay. It helped me heal, and I hope it sparks something for you too. Grab the free sample 👉 [playwithmebook.com] #PlayWithMeBook #GayMen #QueerJoy