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When we started Synapticure, our focus was on ALS as we knew the needs of the community from my lived experience. But the plan was always to expand to care for all neurodegenerative diseases. The first one on my list was Parkinson's as I lost my uncle to it.

Care coordinator Rebecca Andrews lost both sons, Ethan & John, to a #genetic form of ALS caused by a mutation in the #SOD1 gene. Rebecca's passion to help educate & care for people in the #ALS community inspires us every day. #EndALS #Hero #genetictesting vist.ly/nkmd

.Seth Rogen and wife Lauren Miller Rogen are the co-founders of Hilarity for Charity (Hilarity for Charity (HFC)) — which is characterized by a signature irreverence and commitment to bringing light and levity to those impacted by Alzheimer’s and related dementias. pasadenaweekly.com/sports/the-rog…

Join us and Duke Men’s Basketball in the fight against ALS with the inaugural Hoops4ALS games. 🔗 tr.ee/Hoops4ALS #H2P

This isn't just Brian's diagnosis, this is OUR diagnosis. And caregivers need care too. ~ Sandra Abrevaya Join us tonight at 7 pm ET to learn about Synapticure's new Mental Health support team that's here to help patients & their families with #ALS,, #Parkinsons, #Alzheimers

She was in her early 30s when she was diagnosed with ALS. Instead of letting it her get her down, she did this:

Innovation junkies have a thing for maps and discovery. Love this tribute to micromapping and deeply exploring the small worlds around us. noemamag.com/a-single-small…

Black Americans have a 2x risk of #Alzheimers & comprise 14% of the US population, but are less than 5% of #dementia trial participants. Dr. Amanda Fletcher is committed to changing this inequity. vist.ly/zkzx #Neurotwitter #MinorityHealth #BlackHistoryMonth

What a difference they are making. Thank you Sandra Abrevaya and Brian Wallach for your courage, your passion, and your drive to move humanity forward. We are all so grateful to you!

#RebelHealth is out in the world! Grateful to all the patients, survivors, and caregivers who trusted me with their stories. Let's shine a bright spotlight on the path forward! On sale now: mitpress.mit.edu/9780262048897/…

Last night I burst into tears when I saw that Brian posted this picture. There is so much grief in what has already been lost. Before we fell asleep I told Brian how sad I was and he said, "don't be, I'm still here." I am anchored by my husband's hope ❤️

When you have a #RareDisease like #ALS, #PLS or #Huntingtons, few neurologists have expertise in your disease, less know about clinical trials & almost none understand the unique mental health burdens in your disease. At Synapticure, we wanted to change that. #RareDiseaseDay 1/2

ICYMI I wanted to share this quote by the current FDA commissioner. “We’re about to see a tsunami of therapies for a rare and ultra rare disease, and I don’t think any of us think the current pathways are optimal,” FDA commissioner Robert Califf said.

Every 8 seconds someone turns 65 years old in the United States. Tomorrow there will be ~11,000 more of us. There will be more Parkinson's. It is a disease of subtraction and not addition and that is why each day we need to work to 'add things to our lives' and to enrich our

So excited for the partnership between Synapticure and The ALS Association. Here's to all of us impacted by ALS getting the care we deserve.

In this study, a high proportion of individuals meeting clinical consensus criteria for Parkinson disease, dementia with Lewy bodies, multiple system atrophy, and pure autonomic failure had phosphorylated α-synuclein detected by skin biopsy. ja.ma/4awh8Wa

Join us in recognizing & supporting #caregivers during #CareWeek & all year long. The Guiding an Improved Dementia Experience (GUIDE) Model, launching on 7/1, helps caregivers of people w/dementia access resources + support. Let’s walk this path together: go.cms.gov/guide

Film profiles Brian Wallach's fight against ALS Watch the full video here: tinyurl.com/yfhdawmh Brian Wallach

Brian and Sandra are the epitome of hope. When Brian was diagnosed with ALS, he turned tragedy into action by launching I AM ALS and leading a movement to find a cure. I’m inspired by these two—and after you hear their story at the 2024 Democratic National Convention, you will be, too.

We’re thrilled to announce our partnership with Pearl Health We’re bringing breakthrough support and specialized care to #Medicare patients and caregivers impacted by #Dementia. Learn more about how we’re transforming care through the GUIDE program. synapticure.com/press-release/…