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Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up

Is this an opp to match comparison schools w/out filters to look at wider health impact of air filtration, inc on covid & post-viral disability in kids & families? #longcovid #ME ⁦@CathNoakes⁩ ⁦⁦Sadiq Khan⁩ ⁦UK Health Security Agency⁩ ⁦HM Treasury⁩ bbc.co.uk/news/uk-englan…

A Wren's real voice.. 🎶

📢🚨🚨🚨New paper dropping Thursday. Embargoed until 2:00 PM ET Thursday February 22 . Interested journalists, email me. No DM please. #LongCovid

"There's a culture and attitude that M.E. doesn't exist." For years many doctors believed M.E. was 'all in the mind' of those who were suffering. Times reporter Sean O'Neill lost his daughter Maeve 2021 aged 27 after suffering from severe M.E.

Rishi Sunak met King Charles at Buckingham Palace yesterday afternoon for the first time since his cancer diagnosis. 🔗 bbc.co.uk/news/uk-683632… Now, do you see what I see?! 👀 It’s a HEPA air filter, prominently positioned in the background of many of the photos! 1/

📣 New in Science Magazine I teamed up with Eric Topol to write this #SciencePerspective on Long Covid Solving the puzzle of #LongCovid A long 🧵 science.org/doi/10.1126/sc…

Watched #Breathtaking? Appalled by what you saw? Some NHS workers never recovered from the infections caught due to non-existent/suboptimal PPE and now have Long Covid. In this vlog Brenda Eadie - NHS Workers United for Scotland talks about loosing her job : shh-uk.org/i-now-have-no-…

For Long Covid Awareness Day on March 15th, we will be hiring a Digivan for 8 hours and will be covering a route that includes the Palace of Westminster, the DWP building and Downing Street in London. The van will be able to park in the streets around this area and drive as close

#DidYouKnow #AScreenReaderCanReadThis #butnotthis And that's why it's important to use Camel Case in your tags Especially if you're a disability/Long Covid advocate 💕Solidarity doesn't leave our community and allies out💕

I think it's a positive sign that such a large consumer-focused outlet like Men's Health Mag is warning its readers about COVID reinfections, Long COVID, and is recommending masking in 2024. More of this, please!

I'm looking for #LongCovid patients over18 yrs old who live in Ireland to contact me or Long Covid Advocacy Ireland via DM. We will reply with details of the study & survey link The study is to assess LC as a fluctuating illness; an aspect we believe its very important for society to understand

Olenka Sayko Sawyer Michael Peluso, MD Putrino Lab Ziyad Al-Aly, MD Add Ron Davis to the list of critics. For one thing he’s been ready to go with a clinical trial of Abilify and can’t get it funded. There are many clinical trials that are ready to go but don’t have funding. That response is so disingenuous

How to support Millie in the UK who is currently at risk of dying. She is no longer sectioned but they STILL will not give her a feeding tube. 😱 IF you have the energy please send Millie a card showing solidarity and support so Millie knows we care about her and the hospital

Billboards for LC/MECFS #pwLC #pwme VOLUNTEER OPPORTUNITY - Do you live in London? Are you available on #LongCovidAwareness on Friday, March 15th? We are looking for volunteers to help hand out #LongCovid leaflets to the public between 10am and 6pm around the Westminster area. Our

So how about instead of doing “parent resilience workshops” we do “why are our processes destroying families?” workshops? How about “trauma informed provision for SEND families”? How about “how to treat SEND children and families like human beings?”

Was thinking of my dear friend and former The King's Fund colleague Jo Maybin as I asked my first question in Parliament today. #LongCovid

So brilliant to see newly elected Labour MP Anna Dixon MBE 💚 use her first question in Parliament to raise awareness of #longcovid. Thank you Anna 🙏 Let this be the govt which invests in prevention, research, care & support for all those suffering from post-viral illnesses #ME

🚨 Coming Soon: We're publishing a major review on Long COVID and a comprehensive roadmap for policy and research priorities. 🗓️ Release Date: Friday, August 9, 5:00 AM ET 📣 Journalists who are interested in covering this, please contact us via email.

Hi DHL Express UK You were due to collect a medical sample from me this morning. Nobody has arrived, your customer service line isn’t working & your website & online chat say they don’t recognise the waybill number. Pls can you get in touch? 🙏