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Congratulations to The National Brain Appeal RareDementiaSupport on their award winning Rare Space garden at the Chelsea Flower Show - raising awareness for non-memory led dementias like FTD. #endftd

Thank you Jon Rohrer and the whole GENFI team and especially Barbara and Brescia team for the awesome GENFI meeting in beautiful Brescia!🤩So happy to be part of #GENFI ! University of Oulu Pohjois-Pohjanmaan hyvinvointialue Oulun yliopistollinen sairaala @Oulu_Brain_Mind FinFTD #C9orf72 #EndFTD

Team FTDtalk are off to #AAIC2023 in Amsterdam. Please come and speak to us after our talks or at our posters to hear about the latest on FTD and GENFI. @immy_swift @aitanasogorb Mica Clarke Kerala Adams-Carr Rhian Convery Phoebe Foster Sophie Goldsmith Lucy Russell Dr Martina Bocchetta

ISTAART PIA day has been fantastic…. And it was great to run the FTD PIA meeting this afternoon with a fantastic committee Lucy Russell CarmelaTartaglia Maura Malpetti and a great set of ECR talks - we even managed to start a mentoring scheme! #AAIC23

The #CASResearchGroup "Tools for Transnational Neuropsychiatric Research" led by Nikos Nikolaos Koutsouleris & Johannes Levin @LMU_Uniklinikum has successfully started at Schloss Fürstenried. We look forward to welcoming the fellows of the #CASResearchGroup for their longer stays.

'Altered plasma protein profiles in genetic #FTD – a GENFI study' Abbe Ullgren, Linn Öijerstedt ... Caroline Graff GENFI Karolinska Institutet #FrontotemporalDementia #biomarkers #C9orf72 bit.ly/3QZ0OWt

Prodromal frontotemporal dementia can be tricky to identify with confidence, making the detection and study of early stages of illness especially difficult. New research diagnostic criteria for "MCBMI" have good accuracy Alberto Benussi GENFI ALLFTD alzres.biomedcentral.com/articles/10.11…

This year’s FTD UK meeting will be May 15th in Cambridge - registration is already open via the website ftduk.org. Programme to follow! Please join us. #endftd

Final programme now online for May 15th’s meeting - ftduk.org. From digital metrics (Rhian Convery) and novel pathology (Tammaryn Lashley) to TBK1 models, extracellular vesicles (Dr. Steph Fowler) and TDP-43 (Anna Sanchez Avila), with novel therapies (Orchard Therapeutics - U.S., Alchemab Therapeutics).

Thanks to UCL Global Engagement and their funding support, Jon Rohrer and Rhian Convery have set up a research site in Indonesia to help tackle frontotemporal dementia (FTD)▶️bit.ly/44tMOJH Applications are open (24 May - 21 June) for future projects🗓️bit.ly/3QwcOyj

Phoebe Foster and I had the pleasure of hosting the first annual GENFI Participant Spring Webinar 💻 Big thanks to our speakers and most importantly to all participants who joined & continue to participate in the GENFI study as without you this research wouldn’t be possible ☺️

Talking all things type 1 diabetes with Rachel Besser (pinched your photo!), Alzheimer's with Jon Rohrer and the brain with Nick Davis at New Scientist Events Future of Medicine event

CAS warmly welcomes Jonathan Rohrer Jon Rohrer @uclhas #CASFellow and member of Johannes Levin's and Nikolaos Nikolaos Koutsouleris' #CASResearchGroup "Tools for Transnational Neuropsychiatric Research“. @LMU_Uniklinikum @DZNE_de @SyNergy_Cluster LMU Section for Precision Psychiatry

Arabella Bouzigues summarizes progress in ⁦GENFI⁩ at ⁦The AFTD⁩ Roundtable Meeting. Its longitudinal deep phenotyping is leading to biomarker discovery, validation & trials support - with essential input from participant, family and clinician ⁦⁦UK Research and Innovation⁩

We are looking for a new postdoc to work on digital measures and trials in genetic FTD - come and talk to us at ISFTD Jon Rohrer Lucy Russell #isftd2024

Great to be involved in this documentary along with Jon Rohrer - an exploration of the impact of dementia on families including those at risk of developing a genetic form. Anna Richardson: #LoveLossAndDementia Tune in - 2 Oct, 10pm. youtube.com/watch?v=JHsRuj…

Tune into Channel 4 tonight at 10pm for Anna Richardson 🏳️‍🌈: #LoveLossAndDementia. This powerful documentary explores the huge impact of #dementia on families, featuring Jon Rohrer (UCL Queen Square Institute of Neurology) & Prof Cath Mummery (DRC@UCL). bit.ly/47NUyrq

💙 Agnès' reaction to hearing Jordan may be able to get into clinical trials says it all for us. Investment in research brings us all hope for the future. #LoveLossAndDementia Channel 4

You can still watch Channel 4's #LoveLossAndDementia doc. Prof Prof Cath Mummery discusses the causes of dementia & how researching younger brains can help detect the earliest signs of the disease & Prof. Jon Rohrer discusses new drug trails. bit.ly/3YaAyMy

Great to be at JPND Research meeting on digital technologies in frontotemporal dementia today. A jointly led meeting between UCL Queen Square Institute of Neurology and Erasmus Medical Centre in Rotterdam - Rhian Convery Jackie Poos. EDiT-FTD is a 1 year programme to develop a roadmap for implementation. #endftd