🔥The 9th Round of Easy Loan, Earn $40 Reward is in progress❗️ ⏰ Promotion Period: January 15th - Feburary 15th, 2025 👉 Register now and check more details at gate.io/campaigns/358

Appreciating this gallery from Rick Guidotti featuring images of people with genetic differences, to de-stigmatize and empower individuals and families living with rare genetic conditions positiveexposure.org/images/

Join us for Getting To Patients, Tues, 9/3! Dr. Alexander Fay shares “Gene Therapy for Duchenne Muscular Dystrophy” with patient perspective, and discussion Julia Brown, PhD tiny.ucsf.edu/Fay

Glad to have written this piece for The Conversation U.S. to explain why ethics and patient engagement matter so much for prenatal gene editing developments, as with other controversial health technologies... my collaborations UCSF Center for Maternal-Fetal Precision Medicine give me hope!

Bringing the clinical-scientific and patient/family voice together is so important! Join us in person next Tuesday at UCSF Parnassus for some great conversation

‼️ Mark your calendar for "Getting To Patients" next Tuesday, Sept. 3rd‼️Dr. Alexander Fay will present on "Gene Therapy for Duchenne Muscular Dystrophy." Hear a patient’s story and join the discussion with Dr. Julia Brown Julia Brown, PhD. Join us here 👉 tiny.ucsf.edu/Fay

We are getting excited to share this upcoming event! Join us on Tues, 9/3, for "Gene Therapy for Duchenne Muscular Dystrophy" part of the Getting to Patients series featuring Drs. Alexander Fay, Julia Brown, PhD, and patient. The program starts at 4 PM in HSW-301.

“You have to allow people an area of self that doesn’t submit to a mathematical program” - Zadie Smith on point as ever podcasts.apple.com/us/podcast/the…

When you don't get what you pay for

Another brilliant piece from Andrew Solomon. This time on the relationship between social media and teen suicide, centering family stories. newyorker.com/magazine/2024/…

My piece in the The Hastings Center for Bioethics Bioethics Forum on the Trump campaign's discussion of "bad genes" thehastingscenter.org/the-alarming-h…

Every medicine has trade-offs between immediate and long-term effects, with some pediatric gene therapies really testing that threshold for acceptable risk science.org/content/articl…

“Private enterprises offer preimplantation genetic testing with polygenic scores to select embryos with ‘desirable’ potential … the selected embryo would rely substantially on the choice of polygenic score method and randomness in score construction” nature.com/articles/s4156…

With a joyous heart, I want to share a link to my new book, Breaking Points: Youth Mental Health Crises and How We All Can Help with UC Press. doi.org/10.1525/lumino… I waived all royalties so everyone can read for free (download the PDF).

Disease burden, hope, treatment burden, then hope again. Stories like these can help prepare future CRISPR patients. nytimes.com/2024/10/21/hea…

‘274 volunteers joined the trial without Eisai telling them they were at an especially high risk for brain injuries’ nytimes.com/2024/10/23/hea…

I have some real concerns about what another Trump presidency means for women in this country — and I wanted to share some of my thoughts. If this resonates with you, send this video to every single person you know and remind them what’s at stake in this election.

Parents and kids are under too much pressure. Screening embryos for complex, polygenic conditions won't help! Daphne Martschenko, PhD and I explain some ethical and social implications of Superbaby tech with the help of our great local newsroom The San Francisco Standard sfstandard.com/opinion/2024/1…

In this Viewpoint, Julia Brown, PhD, Winston Chiong, and Nora Hutchinson explore how current ethical challenges of N-of-1 trials for serious neurological diseases could be addressed by integrating current approaches into learning healthcare systems. ja.ma/3PSN3re

Ambassador Caroline Kennedy’s statement to the US Senate on RFKJr’s nomination for HHS Secretary This is a reading of a letter she just sent to Senate Committee on Health, Education, Labor and Pensions I’m so proud of my courageous mother, who’s lived a life of dignity,

An excellent podcast with insightful comments from Felicity Lawrence, one of the first journalists to have doubts about the Lucy Letby case. Her colleague Josh Halliday, who attended most of the trial, bravely explains why he has changed his mind. theguardian.com/news/audio/202…