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Registration is OPEN! Join us on Friday April 25, 2025 for the 2025 International Forum on COVID Rehabilitation Research. This is a FREE hybrid event! Register with this link: forms.office.com/r/9GUY7HJ25F

This week for #LongCovidAwarenessDay, we’ve compiled a fact sheet of up-to-date statistics & citations on Long COVID. Data is one of the most useful tools to strengthen understanding of #LongCovid. We hope this resource helps our community's fight.🩵 patientresearchcovid19.com/2025-long-covi… 1/

Year 5's theme is looking like adventures with functional medicine

Still true but I feel more hopeful about the state of trials this year than the last 2

Mercury News: 'Q&A with a researcher fighting long COVID and searching for relief' 'Five years after the pandemic, scientist says clinical trial landscape must expand' mercurynews.com/2025/03/17/a-q…

A Q&A with Julia MV on her long COVID journey and what she would do if she was appointed the national long COVID czar. The San Diego Union-Tribune Paul Sisson sandiegouniontribune.com/2025/03/17/a-q…

I believe my mom was right — speaking out has and will help many people. I'm not going to stop. I wish I had more time with her. She was an incredibly special person, an uncanny sense of moral clarity, & made people feel seen and heard in a way few do. I miss her so much.

“The inconvenient truth is that what happened to me with #LongCovid can happen to anyone after a viral infection. Though my illness has weakened my body, it has only strengthened my resolve to tell others how to avoid the same fate.” — Julia MV

Here's the link to contact your reps: win.newmode.net/longcovidcampa…

LETS GO!!!!! GRANTS RESTORED🔥🔥 “#LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding” — The Sick Times thesicktimes.org/2025/03/28/upd…

#ICYMI: Julia MV was featured in a The San Diego Union-Tribune Q&A on long COVID and what she’d do as national long COVID czar. “I would improve how we count cases, I would focus on finding new treatments and I would focus on streamlining the disability application process." ow.ly/1u4E50VrTs2

Mayo Clinic studied 40 people with ME/CFS. After 3 months of rapamycin, patients showed statistically significant improvements in fatigue, function, and symptoms, suggesting rapamycin may help restore cellular health in ME/CFS.

Michael Mina We are on the edge of multiple health crises At a time when our health leadership is wavering At a time when risks are only increasing This is no time for half-hearted statements and actions If we don't immediately correct course We will regret this END

This fascinating first in human study of a non-invasive device to reduce cognitive dysfunction is still recruiting - highly recommend looking into it if you have Long COVID can make it to NYC for 3 study visits.

The only way to not get worse and possibly better is to live within the confines dictated by #MECFS, which according to illness tropes can look like laziness or not "trying hard enough". But it actualiy takes so much more will power to live less, do less, and not push oneself.

Don't miss out on the 2025 International Forum on COVID Rehabilitation next week! In-person registration closes on Thursday April 17 and online registration closes on Thursday April 24. Register at forms.office.com/r/9GUY7HJ25For or visit rehabcovidnetwork.med.utoronto.ca/2025-internati… for more information.

PLRC is 5 years old today!!!! If you are able, please consider donating to help sustain Long COVID research when it’s needed most. bit.ly/plrc-donate 1/

At this month's #FrontRow lecture, Scripps Research EVP Eric Topol will discuss the themes of his new book on longevity and reveal how these advances extend lifespans and improve health at every stage of life. Join us on Wed, May 21 | 🕓 4 PM PT 🎟️ FREE: ow.ly/bwgQ50VNirc

🧵 THREAD: Skeletal Muscle Alterations in Long COVID and ME/CFS 1/ 💡 Study Overview We studied whether skeletal muscle changes in Long COVID and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients are due to inactivity or distinct pathological processes.

Here is the final version of our research demonstrating that providing at-home COVID-19 tests, along with on-demand telemedicine and rapid prescription delivery can reduce COVID ICU stays in immunocompromised people (more info at bsky) bsky.app/profile/julial…